Referred for possible Polycythemia. Has anyone had this?

Hi,

I recently had a blood test, where my full blood count came back abnormal as well as my b12. My full blood count showed high haemoglobin (167 g/L) high total white cell count (119 10*9/L) high Haematocrit (0.49 L/L) high red blood cell count (5.45 10*12/L) high Lymphocyte (4.0 10*9/L), my b12 is high (1045 ng/L). My GP called me and queried Polcythemia, my GP carried out a advice and guidance to Haematology who just advise that is the haematocrit was above 0.48 then to refer. My GP has referred me routinely to the haematology department, but also said to me they was looking a myeloproliferative disorder Polcythemia - (I googled I shouldn't of i know) Im Scared now. Has anyone else had this? or can advise me in any way of what will happen at the Haematologist first appointment? 

  • Hello rachella,

    I'm sorry to hear that after running some tests your GP felt the need to refer you to the haematology department due to an increase in the cell count which is making you understandably worried.

    I hope that others who have been in a similar position will stop by soon to advise you about your appointment but if you wish to ask one of our nurses some questions before you go, they can be reached Monday - Friday between 9a.m - 5p.m on this phone number 0808 800 4040.

    The other thing I wanted to mention is that we have some information on our website about polycythaemia and myelofibrosis which might be helpful for you to read but it's important to remember not to make any assumptions before you have a chance to speak to your doctor again.

    I hope all goes well for you, rachella, and once you know more please come back and give us an update.

    Best wishes,

    Renata, Cancer Chat Moderator