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Swollen lymph nodes

BronteS
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Hi,

I was wondering if anyone has experienced anything similar. 

 

I've had a sore throat since around the middle of December and I first found a hard lump in my neck on Christmas day (no other symptoms) the lump isnt painful and doesnt move. I went to the doctors in the start of Jan where I was told it was my tonsillar lymph node that had swollen and it was Glandular fever or possibly herpes. They did the tests for both and both came back negative and it was negative for all other infections. But my ESR and liver were mildly raised.

Since then around 9 or 10 more lymph nodes have swollen in my head and neck region and 1 in my collarbone and they keep getting bigger (doubled in size in the space of 8 weeks) my skin is itching and im constantly tired. I was sent to the rheumatologist who was really rude and said it was nothing to do with rheumatology without even examining me.

I phoned the Dr who wasn't going to do anything else until I cried over the phone and begged that they did something because my lymph nodes have been swollen for 8 weeks and keep getting bigger and i feel sick with worry. They've eventually agreed to send me for a Full blood count and a non urgent ultrasound (which could take weeks to receive the appointment).

I feel like I'm going insane and I'm worried that it could be something more serious. 

 

 

Parents
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    Hi,

    I totally understand what you are going through, I'd push them to get your scan done and a biopsy asap, I had a lump appear under my arm back in Nov  but had covid at the time, so the doctors were not too concerned, they sent for a scan and the radiographer said come back in 4-6 weeks if it hasn't gone, it didn't go so went back 2 weeks ago and they did a biopsy and it's come back as cancer, so huge shock to.me, I paid and had a private mammogram last week and had my first appointment in the breast clinic yesterday where they did another biopsy on my breast where they saw some different changes, I have a CT and MRI scan next week to see if it is anywhere else,  I totally get how you are feeling as when my doctor called me she just said, sorry its not very good, its spread, ive referred you to the hospital if you haven't heard anything in 2 weeks get back to me!! Its cancer, I thought I was going to die there and then and wanted to know exactly what is was and for them to do something, if you break your leg its fixed straight away, so I understand the way you are feeling, please put some pressure on them as you could be worrying needlessly, here if you need to chat x

Reply
  • Offline

    Hi,

    I totally understand what you are going through, I'd push them to get your scan done and a biopsy asap, I had a lump appear under my arm back in Nov  but had covid at the time, so the doctors were not too concerned, they sent for a scan and the radiographer said come back in 4-6 weeks if it hasn't gone, it didn't go so went back 2 weeks ago and they did a biopsy and it's come back as cancer, so huge shock to.me, I paid and had a private mammogram last week and had my first appointment in the breast clinic yesterday where they did another biopsy on my breast where they saw some different changes, I have a CT and MRI scan next week to see if it is anywhere else,  I totally get how you are feeling as when my doctor called me she just said, sorry its not very good, its spread, ive referred you to the hospital if you haven't heard anything in 2 weeks get back to me!! Its cancer, I thought I was going to die there and then and wanted to know exactly what is was and for them to do something, if you break your leg its fixed straight away, so I understand the way you are feeling, please put some pressure on them as you could be worrying needlessly, here if you need to chat x

Children
  • Offline in reply to Icela

    Thank you, 

    I'm so sorry to hear about your diagnosis. I hope you get some good news soon and they can begin treatment.

    I'm going to ring the gp on Monday and push for a face to face and push to be referred to the correct department for testing. Because as you say, I could be worrying needlessly but I'd rather be safe than sorry which I thought the GPs would have agreed x

  • Offline in reply to BronteS

    Thank you,

    I have a CT and MRU scan next week, so hopefully I'll have a few more answers then.

    Yes definitely push your GP on Monday, I know there are so many delays because of covid and the last 2 years, but we need to be listened to.

    Take care x

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