Swollen lymph nodes

Hi,

I was wondering if anyone has experienced anything similar. 

 

I've had a sore throat since around the middle of December and I first found a hard lump in my neck on Christmas day (no other symptoms) the lump isnt painful and doesnt move. I went to the doctors in the start of Jan where I was told it was my tonsillar lymph node that had swollen and it was Glandular fever or possibly herpes. They did the tests for both and both came back negative and it was negative for all other infections. But my ESR and liver were mildly raised.

Since then around 9 or 10 more lymph nodes have swollen in my head and neck region and 1 in my collarbone and they keep getting bigger (doubled in size in the space of 8 weeks) my skin is itching and im constantly tired. I was sent to the rheumatologist who was really rude and said it was nothing to do with rheumatology without even examining me.

I phoned the Dr who wasn't going to do anything else until I cried over the phone and begged that they did something because my lymph nodes have been swollen for 8 weeks and keep getting bigger and i feel sick with worry. They've eventually agreed to send me for a Full blood count and a non urgent ultrasound (which could take weeks to receive the appointment).

I feel like I'm going insane and I'm worried that it could be something more serious. 

 

 

Parents
  • Hi Bronte

    Im sorry to hear that you're are going through this. I can empathise with you as I have also found multiple swollen lymph nodes around Xmas but mine are under arms and in the crease of my elbow. I don't understand the lack of urgency to send you to get this checked using ultra sound. I am also waiting for mine. Was sent as an urgent referral but it was a week ago so it looks unlikely that I will be seen within the 14 day window. I wish I had the money to go get all the tests and scans done. The wait is agonising. Did they explain to you why you are getting more swelling in other lymph nodes and if this is not worrying, how soon it should all settle down? 

Reply
  • Hi Bronte

    Im sorry to hear that you're are going through this. I can empathise with you as I have also found multiple swollen lymph nodes around Xmas but mine are under arms and in the crease of my elbow. I don't understand the lack of urgency to send you to get this checked using ultra sound. I am also waiting for mine. Was sent as an urgent referral but it was a week ago so it looks unlikely that I will be seen within the 14 day window. I wish I had the money to go get all the tests and scans done. The wait is agonising. Did they explain to you why you are getting more swelling in other lymph nodes and if this is not worrying, how soon it should all settle down? 

Children
  • Hi, I'm sorry to hear that you're going through the same thing. It's good that you've been sent for an urgent referral and I hope they can see you within the 14 day window!

    The GP haven't given me any explanation and won't even give me a face to face appointment due to covid so this is all done  over the phone so they haven't even felt my nodes