It is so hard.  Do you know what the next stage after the MRI is?

I am in the same period of limbo.  It is horrid and I almost think knowing would be easier than this wondering.  

I am 44 with a 4 year old and imagine your thoughts are along the same lines as mine with the unimaginable thought of having to leave them without a mum.  But we are a million miles from that still and still in the land of hope I guess. 

I had my CT scan a week last Friday and still waiting for the results of that and some other bloods they took.  The consultant explained that they were looking at 'young' person ovarian issues.  She has said that if the CT scan shows nothing or is inconclusive then she will do a laparoscopy to have a look.  My googling has told me that a lot of ovarain cancer is only diagnosed at this stage or from a biopsy?  Who knows but I feel reassured that whatever is going on they will find it.  Could you ask/push for that op? x

Hi 

Time between tests and results, and living in limbo awaiting diagnosis is the worst!

I distract myself by doing small things that help me to relax, from reading a chapter of my book to having a bubble bath or taking a gentle walk.  Be kind to yourself and (although it's so hard and we all do it!) try not to spend too much time googling as it will just lead to more anxiety, without really giving you any definitive answers.

Your young age hopefully puts you at much lower risk of your symptoms being dye to OC. I've learned (from all my googling) that there are a variety of non-cancer reasons why your CA-125 may be elevated. Not everyone with elevated CA-125 has OC and it seems many women with OC do not have elevated CA-125!

I do hope you get some answers soon though, and appropriate treatment to relieve your symptoms - being in constant pain is horrible and even harder if you have children to care for! X