Overactive Bladder? UTi? Bladder cancer?

Hi guys!

I'm literally loosing the will to live. I've had enough of my bladder. The anxiety and stress is ruining my life. I can't sleep nor can I eat. 

Im 36,very healthy, marathon runner,non drinker or smoker. No family history of bladder cancer.

I have suffered from frequent UTI's for over 15 years now. I dunno what sets them off,but in the past with investigations I was diagnosed with an overactive bladder. Usualy starts when I notice going to the toilet alot more. I've had cystoscopy,twice. Once 10 years ago,and another 3 years ago. Nothing was found.

I'm currently experiencing UTI like symptoms. Pain in the lower abdomen, pain in my groin, frequency of going to the toilet,pain in my inner thighs,buttocks arching,dull ache in my testis. Started last week,and thought it was getting better on its own,but yesterday wasn't getting any better. Went to A&E and given a prescription.  Last had this Christmas day,and before that September. 

In fairness,the urine infections I used to get a few years ago I was literally crying on the toilet. As felt I needed a wee,tiny drop came out,went back to bed,to need a wee again for another drop to come out. It's not as bad as that now.

Recently had blood tests done,along with a PSA test and all was clear/normal. Urine test came back negative for blood or infection. But being sent to the lab. Currently emailing my doctor's daily to get refferred to urology for further investigation. It's a nightmare getting appointment. 

I have severe anxiety when it comes to Cancer. I saw my mum go down hill 11 years ago with oesophagus cancer. It was horrible,and has scared me for life. Yes I admit I still need counselling,and will seek help once I get over this hurdle. I saw her die. I now have a daughter that's 3 years old,and want to protect her,and watch her grow up. So I plan to stay. Hence why I'm always on top of my health.

Went to A&E 3 times this week. On Monday my urine was clear, yesterday was clear. But today, Thursday showed small amounts of blood. 

I'm petrified that it's now cancer!!! I burst into tears in the doctor's office and she had to do calming techniques with me to chill me out. All I keep thinking is my little girl,and that I will be leaving her.

Symptoms now are real dull achey lower Abdomen,pelvic area. My balls hurt. Hurts to sit down. Feel sick. My legs ache. Back aches. Burns when urinatuing. 

I do have an ultrasound on Thursday at 14:45. I'm happy but freaking out at the same time.

I even spoke to the doctor and asked how quickly Bladder Cancer grows if nothing was there 3 years ago.

 Please any advice,support or reassurance is welocme. I like the forum and the help and support it provides. 

  • Hey FlyingCatfish.

    I was just reading your post and noticed you had ultrasound today. How did it go? I really hope you received good news but our members know how scary this time can be so whatever the outcome, I'm sure you will receive some support and advice from the community soon.

    If you have any questions playing on your mind or would just like to talk things through with someone then our cancer nurses team are available on 0808 800 4040, Monday - Friday between 9a.m - 5p.m.

    Kind regards,

    Steph, Cancer Chat Moderator

  • Hi Steph,

    Thank you for replying to me. 

    The scan went really well,the lady said I have perfectly healthy kidneys,and my bladder looks fine. So that's all good news. Really helped with my anxiety. Still need to investigate my recurring urine infections,but least I know it's now nothing to sinister. 

    I have found this forum very useful. Thank you for all your support, to me and everyone else. 

  • That's great news FlyingCatfish :happy:

    It must be such a relief to know everything looked healthy and that nothing sinister was found.

    I hope they're able to figure out what's causing your recurring urine infections soon but for now, I think it's time to sit back and relax for a little bit.

    I'm so glad the forum has been so helpful and you're more than welcome for the support.

    We'll always be here if you need us.

    Kind regards,

    Steph, Cancer Chat Moderator

  • That's great. It's lovely seeing positive outcomes, even if you need to have your recurring urine infections checked. x

  • Hi how are you doing now? I'm waiting to be investigated for microscopic blood in urine, I too have achy inner thighs and I'm terrified of cancer. Been going on almost 2 years now. Has your blood cleared up? Did they say what caused it? Sorry to hear about your mum that must have been horrendous! Cant even imagine that.

  • Heeeeey

    Sorrry to hear you are having similar problems,any update?

    My bladder has actually behaved last few weeks. Still waiting for a refferal to urology. But no blood or frequently goijg to the toilet. 

    Hope you get some answers soon. 

     

  • I have an appointment on the 1st of April with a urologist and also have a doctors appointment today about the aches in my thighs because I'm convinced its lymph nodes that are hurting. 

    Sorry to hear you are still waiting too but its good that your symptoms have calmed down! 

  • My bladder isn't actually causing any trouble at the moment,it's my stomach now  

    Don't know what's up with me! 

    Hope it goes well at your appointment,make sure you let us know how you get on. 

  • I'm also waiting for a gastro appointment to come through as I have stomach issues too! Have done for the last 10 years but seems to be getting worse lately. 

    My gp said the pain in the creases of my legs at the groin area aren't lymph node pains, its muscular pain so also been reffered to msk! Thats just physiotherapy! just get passed around don't we, they don't link things together its annoying!

    Hope your stomach issues pass soon like your bladder issues seem to have done!

  • Morning,

    I hope you get some answers soon! It's annoying isn't it. 

    I've always had a sore throat (keep clearing it),for around 7-8 years. Because my mum passed away with oesophagus cancer I always get paranoid with it, and think I have it.

    But honestly my bladder has been fine since the ultrasound,..... before that I was on the toilet all night,pain,the lot. Haven't changed anything! Weird.

    In some ways, I think anxiety can be playing a big part. I have seen 3-4 doctors over the last week and they all think I'm stressed/anxious. Been signed off work and given meds. They keep telling me I'm fit and healthy.

    Do let us know how you get on at the MSK. Any idea when you will get your gastro appointment?