Hi All!

I hope everyone managed to get at least a little bit of respite from the fear and anxiety this weekend.

Vicki - how was the beach hut? Hope that fresh air did the trick for you.

Take care of yourselves xx

I took the kids to the cinema on Saturday, and then had my sons 4th birthday party on Sunday. So I've managed to keep quite well distracted!! 
 

The breast clinic just called, and they've moved my results appointment to 9:40 on Thursday, instead of 11:40. So at least I don't have to worry all morning. It will be school run, then appointment!! Praying for benign results!! Xxx

Bubblesmum, that all sounds like a very positive experience! I'm sure your results will be fine too, so don't stress about them. It's all out now, thank God!

Glad to read you're not in too much pain either. Prayers for quick healing for you xxx

Thank you so much xx

Hi lovely ladies. Sorry not to have replied last night. I was so nervous going last night. I think my brain associates the place with just trauma and shock. Anyway I do have confirmed DCIS. God darn it! Ah well, no different than I was told two weeks ago. So I have a mammogram on Saturday morning so they can see the area with the three biopsy points. Then I will be discussed, meet my oncologist and they suspect I will start with chemo first thereafter. My HER 2 is positive so I should respond well to chemo and ill have hormone therapy simultaneously. I just want to nuke the **** out of this stuff now and get on with healing. 

Had a mini meltdown last night and cried at the dawning realisation of chemo and hair loss, but I'm back on track today. 

How are you both doing and how are you Mary? 

V xxx

Hi Vicky,

Well done for getting through all that last evening.  I think everyone was thinking of you.

So they've said you have to have chemotherapy first?  I was wondering why that was with DCIS.  Sorry if I'm not keeping up.

I'm ok thanks and looking forward to a birthday this weekend with all my Kids at home for a change so be nice.  
 

I'm on a waiting game again until next Wednesday when I see the consultant to get my second biopsy results.   I'm hoping these second lot of calcs they found are just DCIS.  I'm pretty resigned to the fact that theyre just not going to be benign.

Hope you get some peace of mind after your news.  You sound amazingly positive.  Well done again.

Mary xx

Wishing you a speedy recovery.  Well done for getting through all that.  Sounds as if you had wonderful care.  
Waiting is always the worst.  You're probably right in that half term will hold up a week dammit!   At least you will keep busy and it will go quickly.

All the best.

Mary xx

Hi Mary

So I had read that chemo does not help DCIS, but my consultant told me that it does if you are oestrogen positive which I am. So I guess I have to take his word for it! It also means that if everything shrinks with chemo then they can do more breast conserving surgery I have read. I'm doing a lot of reading! 

I hope you have a lovely birthday weekend and can temporarily forget any worries. Hug lots and eat cake! Xxx

Oh and sorry, I've realised why you might be confused. So in addition to DCIS I also have confirmed area of invasive. Hence chemo and hormone therapy being first port of call for me most likely. X

Hi Mary 

Thank you - I do feel a sense of relief. Please let me know how you get on next week. The waiting is definitely the worst. But keeping busy helps and I'll probably be back at work by then. 
 

Ah I see Vicky.  Well now you have a plan I'm sure it will help you focus and stay positive.  I've got small invasive confirmed too so it'll be interesting what they tell me next week.  
 

Are you having any samples sent to that lab in America to get it all genetically tested?  Dammit I can't remember what it's called but I do know someone who is having it done.  Not all NHS trusts do it.  It can give a definitive answer as to whether you need chemo or can get away with just radiotherapy apparently.

The plan this weekend is def to eat cake xx
 

Is that your onco or your onch d score? I know someone who had samples sent to the US, so maybe its the same thing.

So, we are in a similar situation. We will kick cancer's butt together! Xx 

Is that your onco or your onch d score? I know someone who had samples sent to the US, so maybe its the same thing.

So, we are in a similar situation. We will kick cancer's butt together! Xx 

Damn right Vicki!  xx

Onchotype test Vicki

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