Indeterminate breast calcifications

Hi, has anyone else had this issue?  I went into breast clinic with another lump (I've had numerous fluid filled cysts over the last four years).  That was all fine but they flagged up calcifications on the other side.  I was really shocked.  I've got a biopsy next week and I'm in that horrible inbetween place of not knowing and worrying.  Is this likely to be DCIS?  Thanks x

Parents
  • Hi All!

    I hope everyone managed to get at least a little bit of respite from the fear and anxiety this weekend.

    Vicki - how was the beach hut? Hope that fresh air did the trick for you.

    Take care of yourselves xx

  • I took the kids to the cinema on Saturday, and then had my sons 4th birthday party on Sunday. So I've managed to keep quite well distracted!! 
     

    The breast clinic just called, and they've moved my results appointment to 9:40 on Thursday, instead of 11:40. So at least I don't have to worry all morning. It will be school run, then appointment!! Praying for benign results!! Xxx

  • Hi, I'm new here and in the same boat as PositiveT. I was supposed to get my results from a Vacuum assisted biopsy tomorrow morning and just had a call to postpone for A WEEK, as 'we can't rush these things' (according to the sweet nurse, who rang). It's absolute torture! 

  • Thank you. I will let everyone know how I get on. Keeping everything crossed.

    Wishing you all the best for tomorrow. Sounds like you are getting fully prepared to enable yourself time to rest and recover afterwards.

    Take care x

  • Welcome Tinylon. 

    You're not wrong....waiting is absolutely hellish.

    And really sorry to hear you now have to wait for another week. That's ****.

    The ladies on here are all fabulous and supportive so feel free to moan, vent, or whatever helps! I've really valued having this forum to share with others who are going through similar and truly understand. 

    Thank you for sending luck! Right back at you for next week xx

  • Thank you kindly - I'm trying to find some patience to apply...

  • Hello Bubblesmum and Tinylon!

     

    So sorry you're both here!! I just wanted to wish you both the best of luck and I'll be sending prayers. 
    Bubblesmum - that your surgery goes straightforward, without any stress and that there are no further findings post op! I hope you make a quick and full recovery. 
     

    Tinylon - that's so frustrating that you have to wait longer! You have to really psych yourselves up for these things, so to have to wait longer is awful! Just try and keep yourself busy and distracted! 
     

    I had benign results last Thursday, so stay positive. Xxx

  • Hi Mary,

     

    How did your second biopsy go? Praying you don't have anymore hold ups and you can get your op done and dusted ASAP! Xxx

  • How are you doing Vicki? Have you had the results or your other biopsy yet? I hope you're closer to getting a plan in place and getting this all sorted ASAP! Xxx 

  • Hi Linze, how are you?  Just checking my emails and saw your notification.  Thank you so much.

    Had second biopsy early this morning it was a bit of a trial tbh.  The radiologist said she was determined to get the calcifications out and she did!  Saw a large cluster of calcs in the sample when they put it up on screen and one single little beggar!  She went in 3 times and I had 2 other radiologists and a Dr in and out.  They certainly gave me the full treatment!  I'm grateful for that but I've got another weeks wait for results - next Wednesday.  What will be will be but I'm scared they will find a higher grade.

    Nurse was reassuring but we won't know until then.  I've decided I want to have a mastectomy.  These calcifications seem to be everywhere and I've got 2 clusters.  I can't risk that and whilst I'm scared of surgery I'd rather it came off.  How will they get clear margins, I'm not large busted?!

    They haven't given me a date for surgery but with everything to do again I can't see it being for at least another 2 weeks.  
     

    I feel a bit more resigned to it all now.  That feeling of sheer panic does seem to be subsiding and I suppose I'm getting used to being in this process.

    I'll let you know next week how it goes.  Hope you are okay and everyone else is doing well too, with hopefully some reassuring news.

    xx

  • Hi Linze and hi to you also Mary, I keep reading your updates when I come on here.

    So I'm due to get my calcifications biopsy results tomorrow evening. I had a good look at the letter that was sent to my GP following Saturday's consultation. Interestingly my two invasive nodules are described as ill defined,  and I also read that they only showed low grade uptake on the pet ct scan which I believe means they are not classed as aggressive or fast growing. Phew. It also said that if the calcifications biopsy shows it isn't DCIS then I'll have a stereo tactic biopsy. I'd rather not have any further needles in my poor tiny boob! I'm hoping it is not DCIS but a bit of old trauma so we can just concentrate on the two tiny nodules. 

    How are you doing? What is the next stage for you? Thank you for checking in on us. You are fabulous. Xx

  • Hi Linze16

    Thank you for your message. So glad you had a benign result last week. Can't quite believe my op is so nearly here after all the weeks of waiting. Hoping that all you lovely people who are waiting are ok and hanging in there. This is a strange experience for sure. But this forum is a great place to sound off and share thoughts and worries. X

Reply
  • Hi Linze16

    Thank you for your message. So glad you had a benign result last week. Can't quite believe my op is so nearly here after all the weeks of waiting. Hoping that all you lovely people who are waiting are ok and hanging in there. This is a strange experience for sure. But this forum is a great place to sound off and share thoughts and worries. X

Children
  • Thank you, Bubblesmum. 
    I hope you can keep calm and focus on the end goal for  tomorrow. I was so panicked just for my biopsy! I had to get diazepam from my GP! But I'm just a major worrier! 
     

    I pray it all goes straight forward tomorrow, and you can soon put all of this behind you! 
     

    Take care, and do keep us updated. Xxx

  • Hi

    I took a sleeping pill as I didn't sleep the night before and have hardly slept for two months. Now drinking my tea before 7.30am! I'm nore worried about what else they find so it will be another two weeks waiting for the results.........

    Will update on Thursday.

    x

  • Wishing you all the best for today Bubblesmum. I hope it goes well.

    Sending hugs xx

  • Hi Bubblesmum. 

    Hope today went to plan and you are home recuperating and not in too much pain. 

    Take care xx

  • I hope your op went well and you can get a straight forward plan in place now. Xxx

  • Hello Positive T and [@Linze16]‍ 

     

    The op went really well thank you. I got home at about 9pm last night so it was a long day. As I had suspected, having the wires put in was the worst bit - it was uncomfortable with lots of pushing and pulling to make sure they were exactly in the right place. It took about 90 minutes including the scans before and after and the mammogram after. The doctor who did them was so lovely and positive. She kept telling me that they only use wires for small lesions and how incredibly lucky I was that they had been found so early when none of the doctors/consultants could see the puckering that I could see. I had the same nurse who did my biopsy which was nice and she reckoned someone has been watching over me - maybe time to buy a lottery ticket!!

    The op itself was fine - a lovely sleep though I was a bit fed up when they woke me up! They gave me some morphine for the pain and then some liquid paracetamol on a drip and ibuprofen before I went home. I thought I would sleep really well but annoyingly I was completely wired processing the day and only got about five hours. Sleep is not my thing at the best of times.

    Today, I've only taken the paracetamol and ibuprofen today and the pain iss fine, really maneagable. The affected breast is covered in dressings which I can't get very wet and is swollen - probably the first time in years that it could hold a pencil under it. It's about the size I've always wanted ironically. :grin:

    Back next Tuesday to have the dressings checked and then 3 weeks for the results - I thought it was two but I guess half term is in the way :cry:

    Everyone I met was so lovely - caring, kind and informative. I couldn't fault the care. Having not been in hospital since I had my youngest 17 years ago, I'd forgotten what an amazing job they do.

    Sorry for the long-winded update but I thought it might help anyone else who may be going through a similar experience.

    Thank you both for thinking of me.

    xx

  • Hi Bubblesmum,

    So pleased to hear that the surgery went to plan and that you found the team around you to be so lovely and supportive :-)

    Wishing you a speedy recovery and hoping for some good news in three (eek) weeks time.

    Take care x

     

  • Thanks - wishing you the very best of luck for your results on Friday xx