Hi All!

I hope everyone managed to get at least a little bit of respite from the fear and anxiety this weekend.

Vicki - how was the beach hut? Hope that fresh air did the trick for you.

Take care of yourselves xx

I took the kids to the cinema on Saturday, and then had my sons 4th birthday party on Sunday. So I've managed to keep quite well distracted!! 
 

The breast clinic just called, and they've moved my results appointment to 9:40 on Thursday, instead of 11:40. So at least I don't have to worry all morning. It will be school run, then appointment!! Praying for benign results!! Xxx

Thank you Mary,

It is immense! 
 

When is your MRI? I hope that you can feel positive about your plan going forward, and also gain that same sense of relief when you are out the other side of this! 
I will keep checking back on here to see how you're all doing. 
 

Take care and stay positive:) xxx

Thanks Linze.  MRI hasn't been mentioned and is not part of my treatment plan ....  yet!  I have lumpectomy next Friday (11th).  Back and forwards to appointments putting magseeds in and radioactive marker the day before surgery not to mention Covid tests and isolating. It will be quite a week!

I'm still very worried that my post op biopsies will show its worse as can so often happen.  They keep saying this is so tiny and so early but they can't really say for sure can they until after surgery and all results and staging is in, so it feels like empty reassurance!

I've just been reading up on oncotype testing and want it done afterwards.  They send a sample to America to genetic test risk for later spread and whether chemo will be beneficial even for early cancers.   No-one in clinic has mentioned it yet but it's my next question!    What a journey this is.

I couldn't be more delighted for your result, well done x
 

Wow - that does sound like a very hectic week ahead for you Mary.

I hope everything goes well and you can feel like that's one less hurdle to get over when the op is done. You've got this - one step at a time.

Take care and look after yourself x

Thank you so much.  I need to reign myself in a bit and take this one step at a time!  Sending all best wishes, thoughts and prayers back xx

Oh Mary, that sound like such a lot to prepare yourself for! 

Oh sorry, I think I got confused with Vicki having an MRI. 
Try not to spiral and think things will get worse. This is probably just anxiety trying to give you something else to think about, as you have so much ahead of you! 

My friend, 41, is just coming out the other side of breast cancer. She found a lump, had a biopsy, then had a lumpectomy, followed by chemo and now she's part way through radio. Her post op diagnosis was the same as the initial one from her biopsy. Her lymph's were clear, and no spread. Hers was big enough to have felt, and it was still contained. So yours being so small is very positive. 
Can you speak to your consultant about your concerns? Or even a trusted GP?

I think it's only natural to feel like this until you know the full picture. But the technology they use is so advanced now. Just focus on a time frame, say a month from now. Just think to yourself - it will all be done by then, you'll have had your op, they results from it should be back, and you can know then that it's 100% gone! Then you can breath a sigh of relief and continue to live your life.
 

You've got this! Xxx

<3

Thanks Linze.  I had a call from the radiographer this morning and she told me that when they put the magseed in yesterday morning ready for surgery next week they've spotted more calcifications in a different area and they are postponing my surgery.  GUTTED!

She said it's either benign or DCIS.  Told me they expected my other calcs to be DCIS and they weren't expecting the tiny invasive.  (Not very reassuring).  She also said they are being extra cautious as they don't want any other surprises. They can't do my op until they know exactly what this is so ANOTHER biopsy early on Tuesday.  They will fast track results.

 I've lost trust in them as it's been missed.  I've had loads of mammograms.  She said my breasts are still so dense and active even though I'm 54 so it's my fault it seems that they didn't spot them earlier!!

I feel like I'm back at square 1!  Dreading next week!

Your message was very uplifting, thanks a lot. x

Oh Mary I'm sorry to hear this, you must be devastated. 

Wish I had some words of wisdom for you. I really hope that you aren’t faced with any more unexpected hurdles and that this new area of calcification is benign. 

Hope Tuesday goes OK and you get the results quickly so you know what's what and can move forward with your treatment plan. 

Thinking of you x

Oh Mary! 
 

You poor thing! I can't believe you're back to where you started! So they picked it up on the mammogram while putting on the magseeds?! That's crazy they didn't see them before! I hope you get these results quickly and get on with your op. Another biopsy too! That's tough. But think of it as they're being cautious and making sure they have everything! 
 

I know it's near impossible, but try to remain calm while you're waiting. There must be someone you can talk things through with about all this?? To get some reassurance while you're waiting?!

This really sucks! But you will get there and out the other side before you know it. 
 

Sending lots of love and prayers your way. Xxx

Thanks ladies, I'm grateful for you both replying with wise words and positivity.  I still haven't told my boys but I have now told a couple of close friends and family who have been amazing.  No-one knows unless they've been through it though do they and non of them have.  An aunt of mine is doing brilliantly 17 years on with only one recurrence and she had it pretty bad.  I try to focus on her positivity and success.

Yep, It's very much back to square one and I'm left reeling why it's been missed.  I want a second opinion.
Take care both of you xx

Hi Vicki. 

Wishing you all the best for your results and consultant appointment this morning. 

Really hope it goes well and you come away with a treatment plan and can see some light at the end of the tunnel 

Xxx

Hi Vicki. 

Wishing you all the best for your results and consultant appointment this morning. 

Really hope it goes well and you come away with a treatment plan and can see some light at the end of the tunnel 

Xxx

Thank you SO much for remembering and thinking of me. You are so lovely. Just on my way there now. 

How are you doing? Xxx

Good luck Vicki. Praying for you xxx

Hi ladies. Only just on way home now. So, I had to have another ultrasound and three more biopsies of the calcifications in my suspected DCIS. I also had to have an aspiration of a lymph node in my neck as it was flagged on my pet scan. However, I was riddled with covid at the time of the scan as I did a lateral flow test that evening that was positive. So, the consultant thinks that is why it has shown up. My tonsils showed inflammation too. Can't believe I've had covid on top of all of this too!! They need to absolutely ensure it is deffo DCIS before I get my treatment plan. However the rest of the scans showed clear lymph nodes and no distant spread. So, silver linings and all that. Honestly my poor boob, never had so many needles in it. Its only small too! Thanks for checking in on me. I'm so grateful to you both xxx

That's really good news, Vicki! I'm sure that node in you neck was just inflamed due to covid, or I doubt he would have suggested it as a possibility! And that totally makes sense! 
Your poor boob indeed! Mine is still super sore and bruised from my biopsy last Thursday!! 
 

So glad the rest of the scans were clear! I hope you can start with your treatment plan soon, and get on to the home stretch! It sounds like they're taking good care of you! Xxx

So glad to hear there is no spread and that the lymph node was covid related! Who knew having covid could have some positives?!?

Did they say when they would have the biopsy results?

I am the opposite (pretty hefty boobs lol) but like Linze am still bruised. Its a very impressive shade of green and purple at the moment haha! Our poor boobs are really being put through the ringer!!

Sending hugs x

How are you doing Vicki? Have you had the results or your other biopsy yet? I hope you're closer to getting a plan in place and getting this all sorted ASAP! Xxx 

Hi Linze and hi to you also Mary, I keep reading your updates when I come on here.

So I'm due to get my calcifications biopsy results tomorrow evening. I had a good look at the letter that was sent to my GP following Saturday's consultation. Interestingly my two invasive nodules are described as ill defined,  and I also read that they only showed low grade uptake on the pet ct scan which I believe means they are not classed as aggressive or fast growing. Phew. It also said that if the calcifications biopsy shows it isn't DCIS then I'll have a stereo tactic biopsy. I'd rather not have any further needles in my poor tiny boob! I'm hoping it is not DCIS but a bit of old trauma so we can just concentrate on the two tiny nodules. 

How are you doing? What is the next stage for you? Thank you for checking in on us. You are fabulous. Xx

Oh that all sounds quite positive, Vicki. Yes let's hope this other area is of no concern! My calcification could have possibly have been from a previous infection, such as mastitis, so there are so many possibilities. I will be thinking of you tomorrow evening, and praying for good results! 
 

The consultant just said that given my mother had breast cancer, he recommended that I have yearly mammograms until age 47, then every 3 years after that. He said I'll get an invite in the post. But he wasn't concerned for now. At least now that I've had my first one, they know what's normal for me. 

I hope that like Mary, you are feeling less anxious about what is ahead of you  stay positive and visualise yourself out the other side of this!

Thank you - I'll keep you all in my thoughts and prayers and keep checking in on you all! 

Take care. Xxx

All the best for your results tomorrow Vicki.  Thinking of you x

Thank you so much.  

I've been so calm and I put it all down to daily meditation and visualisations which are just amazing! I'm watching loads of documentaries on healing and meditation etc. Eating well and have a hypnotherapy session booked tomorrow. I'm rocking and rolling with it all!! 

So glad you are OK and have been well looked after. Xx