Hi,

I'm sorry to hear about your experience with Covid.However it may turn out that you've been fortunate as it has identified a mass that you were previously unaware of and now it will be fully investigated.

The waiting is the hardest part and our minds always focus in on the worst outcomes and make us sick with worry.  Please take comfort from the fact that only 1to2 people out of every 10 referrals to the breast clinic end up with a cancer diagnosis. The flickering pains you're experiencing may be a good sign because most cancers are painless.

I was referred to the breast clinic in October after finding lumps. Unfortunately after having mammogram scan + biopsies, I was diagnosed with breast cancer and I'm currently on chemotherapy prior to surgery.

I hope everything goes ok for you and that you get some answers soon. 

Please let me know how you get on.

Extending a big hug to you 

Lilyanne xx

Hi I'm so sorry to hear of your news! I hope you don't feel too poorly from your treatment! How very kind of you to reply to my post! I've been going out of my mind with worry! And the fact I can't feel any lumps is scary because I know something is there ! Just want the appointment over with! It's the fear of the unknown which is the worst ! And I've also read the biopsy is painful I'm so scared  

Hey Lilyanne,

Hows you?

Sorry about the confusion. Please let me explain.

I first went to my GP on 24th Oct, she sent an urgent referral to the clinic, and two days later, a nurse called me to attend the breast clinic on 8th Nov. (a letter of confirmation came through the post in the meantime). At the breast clinic, I had a mammogram, ultrasound and biopsy all on the same day. I got the results on 1st Dec, where I was diagnosed with BC, but there were problems so another appointment was made on 22nd Dec for a second biopsy, 3D imaging and a marker. I get the results of the second biopsy on 14th Jan. Hopefully I will find out my treatment plan then?

I think there is only 3 weeks difference all in all between dates where you and I are seen by our GP's and attending the breast clinic. 

Oh Lilyanne, the only thing I know right now is around mid Dec I started having having sharp shooting pains in the breast, in and around the tumor. I called my BCN who told me not to try not to worry too much, as every pain/twinge I had would make me think my BC was spreading. Now just that area is warm where the rest of the breast is cool. It is also tender whereas it wasn't before.

I haven't mentioned it again to anyone as I don't want to appear to be making a nuisance of myself.

Sorry for the mix up

Much love xx :love:

Hi Zoe,

I had 2 ultrasounds last year however the hospital lost the results of the second test so no further action was taken until I contacted the GP again before xmas. I'm waiting on another ultrasound but they told me yesterday that at the moment it's a 6-8 week wait and once again they'll only do a biopsy at a later date. If they'd done a biopsy when my symptoms first began in October 2020 I wouldn't have had to worry for all these months. 

Now with the  breast lump I have been put on the 2 week list for a breast clinic appointment. They've all told me not to worry but it's difficult given the situation. I've not been myself for the last year and I know something is wrong so any diagnosis they give me will be a relief at this point.

Charlie xx

Hi Zoe,

Let me know how you get on . Lilyanne xx

Morning lovely I've rang them they haven't referred me I'm so upset the consultant hasn't done it! Now I've got to wait for them to call me !   

xx zoe xx 

Oh Zoe I'm so sorry. Thank goodness you called them at least you've prompted some action. If your CT scan was done at same hospital (or under same health authority) they should be able to access it.

I hope they get back to you quickly and can offer you an appointment without further delay.

Sending much love, Lilyanne xx

Hiya lovely hope your ok? It was the exact same hospital, the breast clinic is part of it so there is no reason why the referral wasn't done when my discharge notes were issued! I'm so frustrated just want it over with! If it's something serious I want to crack on and get it sorted ! It's just a whirlwind of emotions right now! I do feel angry at them 

xxx zoe xx 

Hi Zoe,

You have every right to feel angry. You shouldn't have to chase up your appointments like this. I'm afraid it's probably due to how overstretched the NHS currently is.

Did they give you any indication of when they'll call you back?

Love Lilyanne xx♥️

Hi I've chased them up again and the referall has finally been done ! So it's a case of waiting for my letter now ! It's been horrible today ! I do feel a tad better knowing it's been done! I would like to know why it wasn't done but like you say the NHS is so busy I understand why it was forgotten 

xx Z xxx

Hi Zoe,

Pretty crap day, but it would have been worse if you hadn't chased it up.

Hope the letter arrives soon

xx Lilyanne xx

Thank you lovely ! Hope your ok ! And thank you so much for your support and kind words 

xxx 

Thank you lovely ! Hope your ok ! And thank you so much for your support and kind words 

xxx 

Hi 

I'm fine thanks. Going for my third round of Chemo in the morning. So early bed for me tonight.

Keep me posted on your appointment.

Love Lilyanne xx

Hope all goes well today sending you lots of love xxxx 

Hi Zoe,

Thank you for your support xx

I've just had my 3rd Chemo and so far so good. I'm now half way through (yeah!) just 3 more sessions before my surgery. In 3weeks at my next session, I will change to a different chemo and start my HERS2 targeted therapy.

Lots of love Lilyanne xx♥️

Your so brave and inspirational! Your smashing this

xxx zoe xx 

Bless you Zoe xx 

Thank you love from

Lilyanne xx♥️

Hi hope you are well ? Just wanted to let you know my referral came ! To cut a long story short ! I was taken into hospital ok the 1st Jan which was my dads birthday , the referall was made on the 7th which was the anniversary of my nans death and today is my grandads birthday who's also passed and my appointment came through! I hope it's not coincidence but all 3 dates of my family who aren't here is that a sign they are looking after me! ! Anyways I have my appointment this Thursday at 8pm the nurse said I'm booked for everything so I presume that means scans and a biopsy which I'm absolutely terrified of! I CD not stop shaking I'm so scared ! ‍♀️

Hold on in there Zoe. Try to keep your mind on the positive. Your appointment has come through quickley and on Thursday you will go through whatever tests you need to get some answers. I know this is a really scary time for you, our thoughts naturally always go straight to the worse case imaginable. Take it a step at a time. They're usually very supportive at the Breast Clinic. Try to focus on your appointment. Prepare some questions to ask your doctor. Remember at this stage , hopefully, it still might be something else xx

I'm Sending you a big hug and lots of love and positive vibes

Lilyanne xx ♥️♥️

Hey lovely thank you so much for your kind wise words ! I don't think I can go through with it , I'm so scared I can't stop crying ! I know there are much stronger people out there and I sound so bad! But the biopsy is freaking me out so bad ! I really want a general but a local is being given ! I'm *** it xxx 

Hi Zoe,

I wanted to offer some reassurance. I've had two biopsies and didn't feel either of them. You'll be given local anaesthetic and it's highly unlikely you'll feel anything more than a little pressure. I think the whole waiting side of things is the worst and you must be in shock after discovering this like you did but think of it as fortuitous as you may not have known for a long time. Just keep thinking of those loved ones looking down on you. You can do this, you really can. 

Big hugs 

Jane xx

Thank you so much for your kind words, I'm just so so scared ! I'm so worried about the outcome, it is what it is ! But the biopsy thoight is making me so I'll I've got palpitations, nausea and migraine I'm in a right state crying so bad! I've had 4 babies aswell! I'm terrified of it! I wish I could have a general not local! xxx