Hi,

I'm sorry to hear about your experience with Covid.However it may turn out that you've been fortunate as it has identified a mass that you were previously unaware of and now it will be fully investigated.

The waiting is the hardest part and our minds always focus in on the worst outcomes and make us sick with worry.  Please take comfort from the fact that only 1to2 people out of every 10 referrals to the breast clinic end up with a cancer diagnosis. The flickering pains you're experiencing may be a good sign because most cancers are painless.

I was referred to the breast clinic in October after finding lumps. Unfortunately after having mammogram scan + biopsies, I was diagnosed with breast cancer and I'm currently on chemotherapy prior to surgery.

I hope everything goes ok for you and that you get some answers soon. 

Please let me know how you get on.

Extending a big hug to you 

Lilyanne xx

Hi I'm so sorry to hear of your news! I hope you don't feel too poorly from your treatment! How very kind of you to reply to my post! I've been going out of my mind with worry! And the fact I can't feel any lumps is scary because I know something is there ! Just want the appointment over with! It's the fear of the unknown which is the worst ! And I've also read the biopsy is painful I'm so scared  

Wow really ? I had a letter yesterday to tell me what they found and that if I haven't had a referall letter to contact my gp but not sure how long to wait before I call them! I almost called the breast clinic today to see if they had reverse referall but didn't want to be too premature ringing them! It's bloody torture ! 
 

xxx zoe xx 

I am going through something very similar at the moment. A year ago I found some lumps in my neck which are swollen lymph nodes and they have been growing ever since. Unfortunately due to covid, tests got delayed and my GP did not take my issues seriously, so I am still waiting for appointments which has been extremely stressful. To add to everything I found a lump in my breast on new years eve and have been referred to the breast clinic as well. The wait is worse than anything they could tell me, I'll be relieved just to get an answer as to why I have been struggling over the last year. 

Omg my lovely how awful for you having to wait all those months for a referral have you not had to it neck checked at all yet? No wonder your anxious and worried ! It's such a terrifying time , I really feel for you! Any idea when your appointment is? Xx zoe xx 

Hi Zoe,

If I was in your position I'd call the breast clinic tomorrow. Worst case scenario is they haven't had referral yet. I'm sure they'll understand your anxiety. Tell them you've had the letter but you couldn't get through to your GP + you want to to know if they've got a date for your appointment. If not are there any cancelled appointments they can give you 

Fingers crossed Liliyanne xx

You know what sod it I shall do that tomorrow , I should of today but got so side tracked ! I'm trying to keep busy to take my mind off it ! 
 

xx zoe xx 

Hey Lilyanne,

Hows you?

Sorry about the confusion. Please let me explain.

I first went to my GP on 24th Oct, she sent an urgent referral to the clinic, and two days later, a nurse called me to attend the breast clinic on 8th Nov. (a letter of confirmation came through the post in the meantime). At the breast clinic, I had a mammogram, ultrasound and biopsy all on the same day. I got the results on 1st Dec, where I was diagnosed with BC, but there were problems so another appointment was made on 22nd Dec for a second biopsy, 3D imaging and a marker. I get the results of the second biopsy on 14th Jan. Hopefully I will find out my treatment plan then?

I think there is only 3 weeks difference all in all between dates where you and I are seen by our GP's and attending the breast clinic. 

Oh Lilyanne, the only thing I know right now is around mid Dec I started having having sharp shooting pains in the breast, in and around the tumor. I called my BCN who told me not to try not to worry too much, as every pain/twinge I had would make me think my BC was spreading. Now just that area is warm where the rest of the breast is cool. It is also tender whereas it wasn't before.

I haven't mentioned it again to anyone as I don't want to appear to be making a nuisance of myself.

Sorry for the mix up

Much love xx :love:

Hi Zoe,

I had 2 ultrasounds last year however the hospital lost the results of the second test so no further action was taken until I contacted the GP again before xmas. I'm waiting on another ultrasound but they told me yesterday that at the moment it's a 6-8 week wait and once again they'll only do a biopsy at a later date. If they'd done a biopsy when my symptoms first began in October 2020 I wouldn't have had to worry for all these months. 

Now with the  breast lump I have been put on the 2 week list for a breast clinic appointment. They've all told me not to worry but it's difficult given the situation. I've not been myself for the last year and I know something is wrong so any diagnosis they give me will be a relief at this point.

Charlie xx

Hi Zoe,

Let me know how you get on . Lilyanne xx

Morning lovely I've rang them they haven't referred me I'm so upset the consultant hasn't done it! Now I've got to wait for them to call me !   

xx zoe xx 

Oh Zoe I'm so sorry. Thank goodness you called them at least you've prompted some action. If your CT scan was done at same hospital (or under same health authority) they should be able to access it.

I hope they get back to you quickly and can offer you an appointment without further delay.

Sending much love, Lilyanne xx

Oh Zoe I'm so sorry. Thank goodness you called them at least you've prompted some action. If your CT scan was done at same hospital (or under same health authority) they should be able to access it.

I hope they get back to you quickly and can offer you an appointment without further delay.

Sending much love, Lilyanne xx

Hiya lovely hope your ok? It was the exact same hospital, the breast clinic is part of it so there is no reason why the referral wasn't done when my discharge notes were issued! I'm so frustrated just want it over with! If it's something serious I want to crack on and get it sorted ! It's just a whirlwind of emotions right now! I do feel angry at them 

xxx zoe xx 

Hi Zoe,

You have every right to feel angry. You shouldn't have to chase up your appointments like this. I'm afraid it's probably due to how overstretched the NHS currently is.

Did they give you any indication of when they'll call you back?

Love Lilyanne xx♥️

Hi I've chased them up again and the referall has finally been done ! So it's a case of waiting for my letter now ! It's been horrible today ! I do feel a tad better knowing it's been done! I would like to know why it wasn't done but like you say the NHS is so busy I understand why it was forgotten 

xx Z xxx

Hi Zoe,

Pretty crap day, but it would have been worse if you hadn't chased it up.

Hope the letter arrives soon

xx Lilyanne xx

Thank you lovely ! Hope your ok ! And thank you so much for your support and kind words 

xxx 

Hi 

I'm fine thanks. Going for my third round of Chemo in the morning. So early bed for me tonight.

Keep me posted on your appointment.

Love Lilyanne xx

Hope all goes well today sending you lots of love xxxx 

Hi Zoe,

Thank you for your support xx

I've just had my 3rd Chemo and so far so good. I'm now half way through (yeah!) just 3 more sessions before my surgery. In 3weeks at my next session, I will change to a different chemo and start my HERS2 targeted therapy.

Lots of love Lilyanne xx♥️

Your so brave and inspirational! Your smashing this

xxx zoe xx 

Bless you Zoe xx 

Thank you love from

Lilyanne xx♥️