Please help, terrified of ovarian cancer

Hi everyone,

im new to the forum.I've been having symptoms on and off the last 6 weeks that point to ovarian cancer. Back pain, frequent UTIs that weren't lab confirmed, and for the last 3 weeks terrible indigestion and tummy problems to the extent I can't eat without abdominal pain. I have terrible gas and feel awful. My GP referred me for a scan which is happening tomorrow and I'm worried sick. I'm 44 with 2 children 11 and 8. I'm terrified. My gut feeling says this has to be OC and with the symptoms it must be late stages. How do you cope with waiting? I'm having panic attacks, nightmares, can't sleep. I can't even eat. I'm losing weight through anxiety. I don't know if I can go back to work. I know I'm not diagnosed yet but I know this is it. I'm a mess and it could be weeks before I get answers. Please help. 
Thanks for listening. 
S x 

  • Hiya I'm in the exact same position as you. I was supposed to had my scan on the 30 but it was cancelled. I got it tomorrow.I got raised ca125 and all symptoms. I'm so terrified I havnt ate in 3 weeks 

  • Hi Hoping1977, 

    I just wanted to reply and say how much I am thinking of you and empathise with you. 

    I have been having symptoms of pancreatic cancer and I'm also a complete mess whilst I'm waiting for the next investigation (early stage - have only had a blood test and an ultrasound so far). I am totally convinced that I have it and my anxiety is so unbelievably bad. 

    I'm also 44 and have 11 y/o twins. I keep running up to my bedroom to cry away from them but I'm finding it really hard to hold it together. 

    I can't be of help, as obviously it's a different type of cancer that we're each worried about but I wanted you to know that I'm scared too but hear to listen. x

  • Hi SunshineH. 
    Sorry you're going through this dreadful time too. It's like your worst nightmare come true isn't it. I cry every time I see my girls & go to my room to cry too. 
    what did your US & blood tests show that is making you so worried? 
    my symptoms seem to be getting worse but I don't know if that is my anxiety or not. 
     
    Hi Andreake, sorry to hear you are also going through this. What are your symptoms? 
    i wonder will the sonographer comment on the scan? 

  • Hiya, not sure if I can help, but lst thing to do is breathe, don’t let your mind run away till you have all your tests.

    i have endometrial cancer or had before hysterectomy, a lot of my symptoms pre results you have, but my best friend who was having all the same symptoms did not have cancer. My mind run away from me as urs is doing, panic anxiety and stress fear all rolled into one. But you need to wait till all ur tests are done, and your results are in, could be something could be nothing, but try not to make yourself ill in the process of waiting. I know this is easy to say I’ve been where you are, xxx

  • Hiya I've had constant uti for a year . I got constant period pain my ca125 is 137

  • It's horrendous and it does feel like my worst nightmare. I've literally cried so much. 

    My blood test and US were normal but the US did not see the tail of my pancreas, which is where I am convinced there is a mass. PC is hard to detect and often needs a number of tests.

    I've got a lot of symptoms - some I've had for about 18months and some which have recently developed.  I would love to think that anxiety is responsible but I've only found out some of the things are symptoms of pc recently and I've been having them a long time but not thinking anything of it. 

    x

  • Andreake, sorry to hear that. I haven't even had a CA125 yet. My GP wanted a scan first. It's a nightmare to even get apts for these things at the moment too. Do you have any digestive symptoms like gas or indigestion? 
    I will be thinking of you tomorrow and hope it's all goes ok & you get some information. 

    Mario11 thanks so much for your lovely post. It helps to know I'm not the only one that's falling apart. I'm sorry to hear your diagnosis & hope your treatment is going well for you. X 

  • Sunshine1

    sorry to hear the US didn't give you the information you needed. Did they give you results on the day or did you have to wait for GP? I'm hoping they tell me something tomorrow. 
    what are the next steps on your investigation? Are you with a specialist? 

  • The radiologist, who did my US, did tell me at the time that she hadn't seen anything suspicious and also that she was unable to see the tail of my pancreas (she said it was about 5% of the pancreas was unseen). I'm not sure if this is normal to be told, as my appt. was at a private hospital. I was told by the GP beforehand that the radiologist should give me some info. on the day.

    My GP has written the referral to a specialist but it's a bit complicated, as I'm with BUPA, and the referral mentions the fact I had a perforated bowel 6 years ago following a car accident. I feel like the GP is linking my current symptoms just to this when I've not had any follow up symptoms from this for a number of yrs. I am worried that BUPA will now consider this a pre-existing condition and may not cover further investigations. I'm speaking to my GP on Thursday to see if I can get the GP to amend the letter with a focus on a different symptom (raised node in collarbone) which can't be linked to my bowel op in any way!

  • How was your scan Hoping1977? Hope you are doing ok. X