Hi Kels. I'm so sorry you're going through this worrying wait right now. Im guessing no one can tell you if it's likely spread out of the lung, but I'm keeping my fingers firmly crossed for you. My grandad had lung cancer, wasn't found until stage 4 and was found coincidentally when he contracted a flu virus. My nan so had lung cancer but it was found again coincidentally when she broke her hip. Was determined as pre cancer and was removed via wedge resection with no further treatment required. Do you have a follow up booked in? My grandad had the ct, then a biopsy and pet scan before diagnosis just so you know what may be to come. Sending you all my love x

Thank you so much for replying. 

Sorry to hear your nan and grandad were both diagnosed! How are they both now if you don't mind me asking? 

My dad refused to stay in hospital to wait for the further tests, so as soon as they were happy the antibiotics were working for the chest infection they discharged him. Apparently he will be contacted to have further tests within the next two weeks. According to his discharge letter they will be doing an ultrasound, bronchoscopy and lung function test. 

The waiting is awful, I'm just so worried. 

My grandad wouldn't stay in hospital either. He was actually well though, he went straight back to playing 18 holes of gold twice a week. My grandad unfortunately passed away 10 months after diagnosis. He actually responded brilliantly to treatment and carried on his golf, going to the theatre and all sorts. Almost a normal life bar a couple of days of symptoms after each session of chemo. He actually had a bad fall down a step, it caused a blood clot that moved and got trapped in his liver. His cause of death was hepatic thrombosis. My grandad had a spot on the spine, one on the adrenal gland and one on the brain. They cyber knifed all that away and he had no pain at any point. He passed in 2016.

My nan was a very straight forward wedge resection and that was that. That was past year, 2020. No sign of recurrence on her follow up scans. 

Having seen both of them with lung cancer and both treated at the same hospital (St George's, london) I was astounded at how far things had come in the 5 years since my grandad was diagnosed. One thing to keep in mind is whilst there are options there is hope. With my grandad they said he was incurable. And to some extent he was. But he had such a wonderful response to first line treatment that options that weren't available before that treatment then became an option. Like the cyber knife. They even discussed surgery after the first line treatment success. Everyone is so different, it really is a waiting game after each line of treatment and scan. 

I hope this doesn't break forum rules but I found calling macmillan (I believe cruk have their own nurse helpline but I wasn't aware of it in 2016) a life line for me. My grandad was very laid back, what will be will be. I needed to ask ALL the questions, know all the answers. I was able to ring them and read out letters for them to explain, it helped me formulate the questions I needed to direct to his consultant, it helped me know what to expect and what I could do to support him. I just needed to talk about every single thing and they listened and talked me through it. Now looking back it has left me with peace, I know I left no stone unturned for him, and for one reason or another he wasn't going to ask those questions (I think it was a generation thing. He was 78). 

So sorry to hear about your grandad. I hope you take a little comfort knowing he could live his life in those 10 months. 

Glad to hear your nan is doing OK! 

Macmillan are amazing. I had cancer myself at 18 and my macmillan nurse was fantastic. Sounds like they were for you too. It's so important to be able to talk and ask questions isn't it? My dad won't discuss it other than telling me not to worry. 

It's the not knowing what the plan is that's hard. I just want these tests done so we know what we're dealing with! 

Thank you so much for reaching out, it really means alot to me x

I'm so sorry to hear about your dad. Sounds like we're in a similar situation. 

I'm praying my dad's heart is strong enough for whatever treatment he needs. They haven't said anything about it yet, until he has had these further tests.

Is there any plan in place at all for your dad? I'm also very close to mine. I can't even think of how we would all cope without him. 

Sending you love and hugs. I'm here if you need to talk x

Hi again.

Just wanted to update, and also get it off my chest!

My dad went downhill very quickly. Chest pain, struggling to breathe, barely eating or drinking. He was admitted to hospital just before new year. They discharged him with anti biotics saying he had another chest infection. Unfortunately he was readmitted 2 days later. Apparently the tumour and infection has caused his right lung to collapse and the left is struggling to cope. His tests had been delayed due to testing positive for covid and now they are saying he is too ill. They started daily radiotherapy yesterday and he is on IV anti biotics and oxygen. My Dad has other health conditions and is very down. We aren't able to visit due to restrictions and he isn't well enough to talk for long on the phone. 

I can't help but think this is the end. I'm struggling to sleep and eat. My little boy is 17 months old so I'm doing my best but finding it hard.