Pagets Disease

Morning all. I've just had a recent diagnosis of Pagets Disease.  I'm in turmoil and having real trouble getting my head around it. I've opted for a grisotti flap during surgery. Stupidly I've looked on Google and some of the images I've seen are horrible!! Has anyone had pagets who may be able to reassure me that I won't look deformed after surgery thanks in advance,  Donna

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  • Hi Donna

     

    I hope you don't mind me writing to you. I am currently waiting for my breast screening appointment. 
     

    I wanted to find out some information on Pagets and someone else's signs and symptoms and one of the administrators wrote to me highlighting your thread. 
     

    I hope all has gone well for you and you are through the worst xx

  • Hi Donna I hope your getting stronger each day and all the trauma from initially find out is becoming a distant memory. What were your signs and systems if you don’t mind me asking? I have experienced flaking sling and noticeable different lumping on my areole. There is also some yellow discharge. I don’t necessarily feel any lumps just tenderness. How have you managed through chemo? You sound like an absolute trouper ( although I’m sure at times you haven’t felt like it). Keep trucking through your doing amazing!! ️
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  • Hi Donna I hope your getting stronger each day and all the trauma from initially find out is becoming a distant memory. What were your signs and systems if you don’t mind me asking? I have experienced flaking sling and noticeable different lumping on my areole. There is also some yellow discharge. I don’t necessarily feel any lumps just tenderness. How have you managed through chemo? You sound like an absolute trouper ( although I’m sure at times you haven’t felt like it). Keep trucking through your doing amazing!! ️
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