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Pagets Disease

Donna1965uk
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Morning all. I've just had a recent diagnosis of Pagets Disease.  I'm in turmoil and having real trouble getting my head around it. I've opted for a grisotti flap during surgery. Stupidly I've looked on Google and some of the images I've seen are horrible!! Has anyone had pagets who may be able to reassure me that I won't look deformed after surgery thanks in advance,  Donna

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    Hi Donna

     

    I hope you don't mind me writing to you. I am currently waiting for my breast screening appointment. 
     

    I wanted to find out some information on Pagets and someone else's signs and symptoms and one of the administrators wrote to me highlighting your thread. 
     

    I hope all has gone well for you and you are through the worst xx

  • Offline in reply to coco_chanel2925

    It turned out to be a grade 3  DCIS which had spread to my lymph nodes.  I had a second surgery in February to remove all the lymph nodes.  

    I'm due to finish chemo on Friday followed by radiotherapy starting in August. 

    I'm also her2+ so have to have 3 weekly injection for a year.

    It's been a slog, I won't lie but it's doable.

    Please ask me anything and if I can help, I will.

    Take care and best wishes,  Donna x

     

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  • Offline in reply to coco_chanel2925

    It turned out to be a grade 3  DCIS which had spread to my lymph nodes.  I had a second surgery in February to remove all the lymph nodes.  

    I'm due to finish chemo on Friday followed by radiotherapy starting in August. 

    I'm also her2+ so have to have 3 weekly injection for a year.

    It's been a slog, I won't lie but it's doable.

    Please ask me anything and if I can help, I will.

    Take care and best wishes,  Donna x

     

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