Base of Tongue HPV+ Cancer

Hi everyone.

I am new to the forum.

My husband has recently been diagnosed with HPV + BOT SCC which has spread to the L2 lymph nodes, thankfully it has not spread anywhere else. 

He starts his treatment- 6 weeks of radiotheraphy and 6 sessions of chemotherapy (cisplatin) on 6th September 2021. 

We have been told that this is a very difficult and painful  journey.  

Looking for any advice please. 

Thanks x

Parents
  • Hi, I had cancer in my Left Tonsil and base of tongue with one lymph node, Diagnosed 23rd December 2020, I started my Radiotherapy 5 days a week and 1 day a week chemotherapy Treatment in January 2021 for 6 weeks, last day of threatment on the 26th February 2021, after the treatment and my 3 month PETScan I was told I am clear of cancer, Its now been 6 months .......... what information can I share with you from my own experience ?

    regards 

    Dave

  • Hi Dave

    Thanks for replying and my apologies for the delay in replying to you.  

    Hubbie has now done 2 sessions of chemotherapy and 9 RT.  At the moment all is good, skin is good, not red or sore, mouth is starting to get a little dry but he's keeping on top of that. 

    I am looking for any advice  ie what to expect from the treament, so I can help him get through this. 

    I believe 2 weeks after the RT stops is very bad. 

    Thanks M x

     

  • Hi M, sorry for delay in answering your reply I have returned to work, and it is now 10 months clear after finishing treatment, I hope everything is going well for your husband, if he is suffering from mouth thrush, don't wate money on coconut oils etc they don't work, just good mouth hygiene and patients and it wil go away, I found a good none perfumed moisturizer worked instead of Vaseline on lips and surrounding skin, at this point I can eat anything I like, sometimes getting burning tongue from vinegar based sauces but not enough to stop me eating them, but I like mustard and chilly sauce so was used hot burning sensation anyway, but I suggest always drinking water or squash when eating to stop throat drying out, saliva has returned, but not enough when eating dryer foods like sandwiches ( I always drink water) .....

    I hope this helps, please ask more questions if you need anymore support.

    Kind regards

    Dave

Reply
  • Hi M, sorry for delay in answering your reply I have returned to work, and it is now 10 months clear after finishing treatment, I hope everything is going well for your husband, if he is suffering from mouth thrush, don't wate money on coconut oils etc they don't work, just good mouth hygiene and patients and it wil go away, I found a good none perfumed moisturizer worked instead of Vaseline on lips and surrounding skin, at this point I can eat anything I like, sometimes getting burning tongue from vinegar based sauces but not enough to stop me eating them, but I like mustard and chilly sauce so was used hot burning sensation anyway, but I suggest always drinking water or squash when eating to stop throat drying out, saliva has returned, but not enough when eating dryer foods like sandwiches ( I always drink water) .....

    I hope this helps, please ask more questions if you need anymore support.

    Kind regards

    Dave

Children
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