Radical hysterectomy - please help

Hello, 

I am 44 and due to have a radical hysterectomy tomorrow, I am absolutely petrified!

I had a tumour removed from my cervix 1b3 which showed clear cell cancer. 
Ct and mri were both good with no sign of spread.

I am absolutely petrified and also petrified they will find something else even though scans were clear. 
 

They are also taking my ovaries which puts me into surgical menopause but I am thinking nothing can be worse than what I am already going through x

 

Parents
  • Hi there Workingmum, so sorry to hear of what you are going g through. I too had a radical hysterectomy and had never been in hospital before apart from giving birth. Oh I was scared let me tell you, but literally the night before I just wanted the op, to have everything taken away would be a start for me. I needn't have worried as the hospital staff were brilliant and explained e everything in detail. I totally get where you are coming from but the op is scary cos you have no idea what to expect and how you will feel afterwards but it's really not worth all the worry. So long as you take everything slowly your body will repair .  And you will start to feel better. Much better every day. What they remove goes to the pathologists who are very good at what they do and usually you get results 2-3weeks after your op. That might be all you need, but in my case I needed some treatments.  But I have lived to tell the tale. Try to keep distracted and busy so you get a good sleep, oh and they recommend big bowl of pasta for tea before the op .  Hope this is not too much information. If you want to ask any more, I am here. Best wishes for tomorrow x

     

  • Hi there. I have to have a radical hysterectomy unfortunately ..just wondering if you could telle if you had all your pelvic nodes removed or if they did a sentinel node biopsy ? Did you have keyhole or open surgery? Your input is much appreciated ...

Reply Children
  • Hi SandiRose

    how are you doing!  Sorry to hear about your surgery. Is it for cervical or endometrial?

    I had 15 nodes removed. 5 on each side and 5 on my abdomen. My surgery was laparoscopic so was literally only in hospital 1.5 days. Please let me know if you need any further information. Good luck x

  • Hi there. Thanks for your reply. It's for cervical and it's squamous cell carcinoma. Had two cone biopsies so I believe most of it is removed and hoping not much left  if any but one margin wasn't clear so might be some residual disease there. It was quite small but doesn't keep me from worrying about it. Trying to get surgery sorted. Flying back to Toronto as they seem more experienced there with it there. 

    How are you doing now? Did you have any issues after leaving your nodes removed (lymphadema or anything?) Did the pathology show any spread to the nodes? Did you nrrd adjuvent therapy ( chemo/radiation etc)? Thanks for sharing it's so helpful!