Radical hysterectomy - please help

Hello, 

I am 44 and due to have a radical hysterectomy tomorrow, I am absolutely petrified!

I had a tumour removed from my cervix 1b3 which showed clear cell cancer. 
Ct and mri were both good with no sign of spread.

I am absolutely petrified and also petrified they will find something else even though scans were clear. 
 

They are also taking my ovaries which puts me into surgical menopause but I am thinking nothing can be worse than what I am already going through x

 

  • Hi Workingmum

    It’s natural to be scared going through surgery, so it’s not surprising you’re feeling worried. But it’s very good news that the scans were clear of spread, and hopefully this will be all the treatment you need now. A radical hysterectomy does remove more than an “ordinary” hysterectomy so the recovery time will likely be longer for you and you’ll need to take things very easy after your surgery. Just think, tomorrow it will all be over! I hope things go well for you, and wish you well with the op and your recovery. x

  • Hi there Workingmum, so sorry to hear of what you are going g through. I too had a radical hysterectomy and had never been in hospital before apart from giving birth. Oh I was scared let me tell you, but literally the night before I just wanted the op, to have everything taken away would be a start for me. I needn't have worried as the hospital staff were brilliant and explained e everything in detail. I totally get where you are coming from but the op is scary cos you have no idea what to expect and how you will feel afterwards but it's really not worth all the worry. So long as you take everything slowly your body will repair .  And you will start to feel better. Much better every day. What they remove goes to the pathologists who are very good at what they do and usually you get results 2-3weeks after your op. That might be all you need, but in my case I needed some treatments.  But I have lived to tell the tale. Try to keep distracted and busy so you get a good sleep, oh and they recommend big bowl of pasta for tea before the op .  Hope this is not too much information. If you want to ask any more, I am here. Best wishes for tomorrow x

     

  • Thank you I am just so scared and feel like i am going to wake up a different person. Will I ever get back to being the person i used to be x I just feel so devastated x

  • You will! My surgery for cervical cancer was more more extensive than yours will be, and I’m still here, enjoying my second chance at life. It just takes time to adjust. x

  • Thank you . I think I am glad that my consultant is going straight for the hysterectomy. 
     

    I am very lucky in the fact that I have private health care and have one of the best surgeons in England and one of the best hospitals in London. I think if it was nhs they would of tried chemo and radio first but then this can cause complications later on so I am hoping this is the right decision x

    just want some peace in my head even if it is for one day. It's so hard sometimes to even believe this is all happening. X

  • Hey, try not to worry so much. This is THE most worried you will be as it's the day before the open so your mind is going into overdrive.  My opinion was about 0930 in the morning and by the time I was taken up to the ward I was hungry!!!!! And I only had pain relief for 5 days after - I was given bagfuls of the stuff but that was my choice. So it is all completely doable. I was in hospital a day and home the next!  So long as you have support around you - people to help with things like cooking washing g ironic g cleaning as you won't be able to do any of that for a few weeks, even told not to lift a kettle!!!! The more you take it easy the quicker you will heal.  It's amazing how our bodies can repair themselves!  My op put me straight into menopause as well and really only thing is hot flushes and night sweats but I can cope with that.  Just think that when you wake up after the op that is you starting a new chapter, looking after yourself and repairing. You will feel a bit better every day you wake up. It's a process but it's doable and just take it day by day. Hysterectomies are done in their hundreds every day, maybe even thousands. You can do this. X

  • Thank you so much , it is really helpful. 
    did you have abdominal? That's what I have got to have. They said 5 days but that might be because it is private ? But I'll take the 5 days so less for my husband and kids to do even though he said he will come up to London every day. 
     

    Re menopause, night sweats I can cope with and hot flushes just don't want to be a depressed mess like I am now. 
     

    my surgery isn't until 2 and I need to be there for 11:30, need to get to London by car so least haven't got to rush. What am I saying of course I actually rather it was first thing. 
     

    my mind has gone from worrying about will I wake up ! Which is my main concern, to will they find anything else,  to now , how the menopause will effect me. My brain is a scrambled mess. 
     

    I will take on board what you are saying though , thank you x

  • Hey, you are sounding more positive so that's a good thing! We all worry if we will wake up. It is a long op. I had my womb, ovaries, Fallopian tubes, cervix , top few cms of vagina and lymph nodes removed -  but I woke up as you will!! I didn't know if I was goi g to be laparoscopic or abdominal bu tv up was abdominal in the end. I had endometrial cancer (womb lining) and it had gone deep into the muscle, I also had a large tumour inside my womb that had grown down onto my cervix so I was in fact happy for everything to be taken away! You will be fine. If help is offered at home , accept it!! All the very best fir your op tomorrow x

  • Hi Workingmum, how are you? You will be at the hospital by now. Hope you are all settled in.  Got everything crossed for you today. Have sent you a friend request in case you need to talk. Wishing you all the best x

  • Hi,

    im here! I made it , didn't go down until quiet late in the end. It all went well with no complications and he didn't find anything else as far as the eye can see. Obviously got to wait for results but he said he seems hopeful! 
     

    hit me like a ton of bricks yesterday and had a rough night , but feeling a lot better today. I need to get up today and start getting some of these machines off me as the noise at night drove me insane last night. 
     

    prob waffling a bit as still a bit out of it x