Anyone similar?

Hello 

ok so I would love to hear from anyone with similar journey to me 

ER+ 8/8 HER2- Grade 3 with a greater than 30mm tumor I belive Stage IIA (nodes not considered involved)  prior to wide excision node biopsy with theraputic mamoplasty

I have a very large under arm to centre of my breast zigzag scar

I am 1.5 weeks post op and now driving myself nuts trying to preempt whats next. 

Already started on Letrzole as I am postmenopause following a total hysterectomy and bilat oophingectomy 4 years ago 

my mamo two years ago was clear and when I found the lump I was genuinely expecting to be told it was a cyst.  my breast nurse is amazing but my consultant forgets I am a midwife and not one of his students sometimes. In a very short space of time I have gone from normal to surgery and full blown menopause which on occassion it a bit overwhelming.

I am not a dramtic person however I am struggling with menopause after stopping HRT and starting Letrozole.  I am expecting to be told radiotherapy but due to the size and grade of the tumour am thinking chemo may also be on the cards.  I would just like to get my head semi perpared for the next MDT meeting as emotionally I am very up and down, especially as I feel I am letting my colleague at work down  because most of the time I feel like a fraud.

Thank you in advance 

Jules

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  • Hi so all my appointments have been delayed as they have sent off for onco score.  

    How are you doing 

  • Morning. 

    I'm currently sat at the drop in clinic. I'm due to see my surgeon. My scar is refusing to heal in one particular place. Weeping constantly! I'm 6 weeks post op now. Rest of scar has healed beautifully. Can't get back into swimming until this bit heals. Saw nurse on Friday last week and she said really surgeon needs to see/advise. Hence I'm here!

    Apart from this ... I saw the oncologist last week. Def radiation 2 x 5 day rounds. Hormone tablets too. Not started them. And my cancer too has gone off to USA for the onco test! I get my results on 19th but have had my chemo sessions booked in ready if I need it. They are due to start on 6th Aug x 4 sessions every 21 days. 
     

    When do you get your results honey? 
     

    Love Sarah xxx 

  • Wow that's all really organised.  Sorry to hear its not healing as well.  Are you letting the air get tonight? 

    My lot are so laid back.  They won't do anything till they have the score back but then I knownthey will.move quick x

    Hope it comes back good x

  • I have these special dressings that aid healing. I can't really let air get to it as it drips everywhere! Yuk! 
     

    Saw my nurse she said it's doing really well even though she knows it's frustrating for me. She wants to see me again on Friday. I'll keep you posted. 
     

    Let me know your updates too xxx