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stage 4 lung cancer spread to liver and lymph nodes

gerrythegerbil
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During Covid in 2020 I became breathless developed a new continuous cough had a fever etc - unfortunately unable to see GP - believed that I had a chest infection as I had history of pneumonia and chest infections - given several courses of anti biotics - didnt work -  eventually saw my GP sent for x ray - then referred to lung specialist diagnosed stage 1V lung cancer with two months life expectancy but with chemo life expectancy 6- 12mths . complete devastation change of life for me and family friends etc. started chemo immediately - had severe side effects - alternative treatment immunotherapy - extreme side effects - after discussion with family stopped all treatment to have a better quality of life. I suffer from extreme tiredness muscle wastage and many more side effects due to my medication. But on a positive note I live each day as it comes - at the mo have one bad day then have good day with family - I receive lot and lots of professional support to help me cope with the life changing health condition and have regular contact with the oncology department.Life is like a roller coaster up and down never know what the the day will bring.  Not sure what my life exectancy is now but do I really want to have a time frame as want to enjoy every poossible moment with my family grandchildren and friends. i feel that stopping the treatment was the best decision that I had made eventhough I have bad days but at the mo the good and bad days are equal - have CT scan at the end of the month so we will see if the cancer if still stable or spread elsewhere as I do feel quite weak and very tired not much appetite thankfully I have the supllemental drinks - 

I found a brilliant web site called lookgoodfeelbetter that gave loads of advice - I got myself a wig as my hair went extremely thin -  it is now growing back thick ad healthy which makes me feel good.

 

I am very confused as I dont know how I should be feeling as people say I am looking well but the inside of me is not - it is this facade and pretense stating that I am fine and it is all a dream and will go away and feel like shouting look I am very ill cant you see!!!!!

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    Hello gerrythegerbil,

                                   l can empathise with your feelings having been in a similar position staring down both barrels of a loaded gun,fortunately for me the trigger was not pulled and the weapon was laid down to rest.

       The uncertainty in these situations can be awful if you allow it to become the main feature of your awareness,but it can be hard to steer yourself away from that. Your positivity and determination to enjoy your time with your family must be a great help in allowing you to have some sunshine in your life and time away from the gloomier aspects of your position

    Riding a  roller coaster is only good  providing you do not overstay your welcome,so l hope your upcoming scan can provide you with some encouragement as l feel sure some stability and reassurance would be most welcome,

                                                                 take care,

                                                                                   David

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    Hello gerrythegerbil,

                                   l can empathise with your feelings having been in a similar position staring down both barrels of a loaded gun,fortunately for me the trigger was not pulled and the weapon was laid down to rest.

       The uncertainty in these situations can be awful if you allow it to become the main feature of your awareness,but it can be hard to steer yourself away from that. Your positivity and determination to enjoy your time with your family must be a great help in allowing you to have some sunshine in your life and time away from the gloomier aspects of your position

    Riding a  roller coaster is only good  providing you do not overstay your welcome,so l hope your upcoming scan can provide you with some encouragement as l feel sure some stability and reassurance would be most welcome,

                                                                 take care,

                                                                                   David

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