Bladder cancer (Female); interested in experiences of others

Hi all

I heard today following a cystoscopy that I have what they are terming 'superficial' bladder cancer (can't believe I am typing this).  This was found on an MRI scan initially, which I had in connection with other symptoms which appear unrelated and remain undiagnosed.  I am being referred for TURBT and they cant tell me more about stage, type, grade until lab results following this.  It was all very quick and a bit brutal.  I had to ask for confirmation they thought it was camcer and was given a leaflet about TURBT but that was it.  Not how I expected the experience of hearing I have cancer to be.

I am also referred for a colonoscopy and chest CT for the original symptoms (right side pain inside rib cage and dull ache in upper back) so got rather a lot going on and feel a little overwhelmed.

if you have experiences of baldder cancer especially if female, it would be so helpful if you can share them, especially regarding TURBT (I know what is is and have researched it but ersonal experiences are so helfpul) and beyond.  I am keen to know when others got specifc information  about stage, type and grade of bladder cancer.

Thank you.

Bluebear

Parents
  • I'm sorry you've been diagnosed with bladder cancer Bluebear.

    There must be a lot going through your mind right now but I'm sure some of our members who are/have been on this journey will be able to help. Hopefully some of them will be pop by soon to share their experiences and advice but if you'd like to talk things through with one of our cancer nurses they're available on 0808 800 4040, Monday - Friday between 9a.m - 5p.m.

    I hope your remaining tests go well and you're able to find out more about your diagnosis soon.

    Kind regards,

    Steph, Cancer Chat Moderator

     

Reply
  • I'm sorry you've been diagnosed with bladder cancer Bluebear.

    There must be a lot going through your mind right now but I'm sure some of our members who are/have been on this journey will be able to help. Hopefully some of them will be pop by soon to share their experiences and advice but if you'd like to talk things through with one of our cancer nurses they're available on 0808 800 4040, Monday - Friday between 9a.m - 5p.m.

    I hope your remaining tests go well and you're able to find out more about your diagnosis soon.

    Kind regards,

    Steph, Cancer Chat Moderator

     

Children