Newly diagnosed breast cancer awaiting further tests

Hi all,

I have posted in other places on the forum but this seems like the most appropriate place now I have been diagnosed. It will also be helpful for me to type out my story and appreciate it if anyone reads this. 
 

I'm 36 and had a baby in December 2020. I had difficulties breast feeding and noticed a lump in my left breast. I was told repeatedly it was a blocked milk duct and given massages/ pumping advice. I phoned the GP as they said they didn't need to see me and could give me antibiotics, I did ask if I could come in and be seen. They saw me, said the lump moved and it was a blocked duct most likely and I was given antibiotics. I went back a few weeks later as the antibiotics did nothing. 
Another GP examined me and said they weren't satisfied it was a blocked duct and referred me for a scan. I had an untrasound a few weeks later and the lady said it looked like a lactational adenoma and said it was benign and to come for a biopsy 6 weeks after I'd stopped breast feeding.

I got a call a few weeks later saying a Dr requested I gave the biopsy now. I had it and was told again not to worry and it looked like a lactational adenoma.

So I went back Friday for my results and was told I have cancer. The Dr said it was small and said it was an inch (which seems big to me). They told me I'll need chemotherapy which will start in about 4 weeks time. I had an MRI when I was there and have to go back Wednesday. From what I remember (it was a bit of a blur) they are going to put a clip in me and I'll have lymph nodes taken from under my arm. They said it tested positive for eostrogen and HER2. They have also recommended genetic testing due to my age and the HER2. My mum has also had breast cancer in both sides but had it in her 60s.
 

Everything seems very strange at the moment, I was due back to work the end of this month after maternity leave. I'm also in the process of moving house. Have felt a bit numb which I know is the shock. Just trying to keep busy before Wednesday. 

I don't really know what anything means at the moment or what to expect. Has anyone had /experienced anything similar?

 

Parents
  • Hi

    So sorry to read your story. 
    I'm in a similar situation. I'm 29 and been told I've got cancer which is also positive for her2 and estrogen, they haven't discussed treatment but this weekend I've been for an MRI scan and a CT. 

    I had a clip put in me at the time of the biopsy (prior to the scans), I think it's just a marker so they no where the lump is if they need to do an operation etc. 

    I feel the same as you in shock... I'm a healthy 29 y/o with no breast cancer in the family. Prior to been told it was cancer 2 DRs one been a cancer surgeon told me my lump was moveable and felt benign.. again I wish they never told me that as now I question everything. 

    I'm currently waiting for my results from the scans. 

    Good luck with everything ️

  • Sorry to hear you are going through something similar missdior1.

    The moveable comment is so strange as I had that twice as well. I completely understand the questioning everything I'm also now doing the same. 
    How did you find your scans? I've had an MRI and am going to have a clip put in I think on Wednesday when I get my MRI results. 
     

    Also sending luck your way x

  • The scans were both fine and quick, how did you find yours? 
    Just as an FYI the clip they pop in is fine, it doesn't hurt (well it didn't hurt me) it's just more the noise, sounds a bit like a staple. They used an ultra sound machine on me to guide the clip in the right position. I did bruise heavily but I think this was more to do with the biopsy but apparently that's normal, it looks worse than it was. 
     

    Take care 

    x

     

Reply
  • The scans were both fine and quick, how did you find yours? 
    Just as an FYI the clip they pop in is fine, it doesn't hurt (well it didn't hurt me) it's just more the noise, sounds a bit like a staple. They used an ultra sound machine on me to guide the clip in the right position. I did bruise heavily but I think this was more to do with the biopsy but apparently that's normal, it looks worse than it was. 
     

    Take care 

    x

     

Children
  • I had an MRI but not CT scan. It wasn't too bad, I assumed it would be worse but almost easier as I was face down. Glad to hear yours were ok and quick.

    That's good to know about the clip. It sounds similar to the biopsy. I also bruised a lot after the biopsy but it didn't hurt during or after. 
     

    Sending well wishes your way.