Newly diagnosed breast cancer awaiting further tests

Hi all,

I have posted in other places on the forum but this seems like the most appropriate place now I have been diagnosed. It will also be helpful for me to type out my story and appreciate it if anyone reads this. 
 

I'm 36 and had a baby in December 2020. I had difficulties breast feeding and noticed a lump in my left breast. I was told repeatedly it was a blocked milk duct and given massages/ pumping advice. I phoned the GP as they said they didn't need to see me and could give me antibiotics, I did ask if I could come in and be seen. They saw me, said the lump moved and it was a blocked duct most likely and I was given antibiotics. I went back a few weeks later as the antibiotics did nothing. 
Another GP examined me and said they weren't satisfied it was a blocked duct and referred me for a scan. I had an untrasound a few weeks later and the lady said it looked like a lactational adenoma and said it was benign and to come for a biopsy 6 weeks after I'd stopped breast feeding.

I got a call a few weeks later saying a Dr requested I gave the biopsy now. I had it and was told again not to worry and it looked like a lactational adenoma.

So I went back Friday for my results and was told I have cancer. The Dr said it was small and said it was an inch (which seems big to me). They told me I'll need chemotherapy which will start in about 4 weeks time. I had an MRI when I was there and have to go back Wednesday. From what I remember (it was a bit of a blur) they are going to put a clip in me and I'll have lymph nodes taken from under my arm. They said it tested positive for eostrogen and HER2. They have also recommended genetic testing due to my age and the HER2. My mum has also had breast cancer in both sides but had it in her 60s.
 

Everything seems very strange at the moment, I was due back to work the end of this month after maternity leave. I'm also in the process of moving house. Have felt a bit numb which I know is the shock. Just trying to keep busy before Wednesday. 

I don't really know what anything means at the moment or what to expect. Has anyone had /experienced anything similar?

 

Parents
  • Hi 

    I didn't want to read and not respond. I am not in exactly the same situation. I had a biopsy on a lump two weeks ago and go back for my results this coming Wed. I have been told that due to how the lump is 'presenting itself' the likelihood is it's cancerous. It's 33mm in size apparently. 
    I wasn't expecting this at all. I had convinced myself that I would be one of the 8 people tested that would be in the clear! When the nurse examined me at the one-stop breast clinic initially,  she said that what she was feeling was more than likely cysts, that it felt totally benign and that she didn't think I had anything to worry about. I really wish she hadn't used some of the words she did! It really gave me a false sense of security. The mammogram and ultrasound showed something very different. 
    I have been in a total daze since then. The waiting is awful - as so many people say on here. I have two teenage sons and although I've not mentioned anything to them yet and have managed pretty well in holding it together in front of them, I'm so fearful of the potential journey ahead. 
    I'm sorry I can't offer more specific support to you and your situation right now. It sounds like you are holding things together so well. Such a lot going on for you with baby and house move. This like you say, is keeping you busy.  I'm trying to do the same. Just wanted to reach out and send some love your way. 
    Sarah xx 

Reply
  • Hi 

    I didn't want to read and not respond. I am not in exactly the same situation. I had a biopsy on a lump two weeks ago and go back for my results this coming Wed. I have been told that due to how the lump is 'presenting itself' the likelihood is it's cancerous. It's 33mm in size apparently. 
    I wasn't expecting this at all. I had convinced myself that I would be one of the 8 people tested that would be in the clear! When the nurse examined me at the one-stop breast clinic initially,  she said that what she was feeling was more than likely cysts, that it felt totally benign and that she didn't think I had anything to worry about. I really wish she hadn't used some of the words she did! It really gave me a false sense of security. The mammogram and ultrasound showed something very different. 
    I have been in a total daze since then. The waiting is awful - as so many people say on here. I have two teenage sons and although I've not mentioned anything to them yet and have managed pretty well in holding it together in front of them, I'm so fearful of the potential journey ahead. 
    I'm sorry I can't offer more specific support to you and your situation right now. It sounds like you are holding things together so well. Such a lot going on for you with baby and house move. This like you say, is keeping you busy.  I'm trying to do the same. Just wanted to reach out and send some love your way. 
    Sarah xx 

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