Ewing’s Sarcoma

My husband was diagnosed with Ewing's Sarcoma on 1st April 2021. He's 41. After having a needle biopsy, they found a growth 5cm x 5.8cm in his chest wall and this has spread to multiple parts of his spine, pelvis and hip bones.  We have a baby boy who is almost 1 years old, it is such a distressing time for all of us. It would really help me if anyone can share their experiences of this, I feel so broken and am in need of a lot of support. 

Parents
  • My son was diagnosed with Ewing sarcoma jan 2019. If you have any questions please ask. You can message me too. Unfortunately my son died in May 2021. I researched it extensively and have a background in science. I may be able to answer some of your questions or give you advice on where to get those answers. I'm not medically qualified just a parent that has been through this treatment with my son.
    Thinking of you both x

Reply
  • My son was diagnosed with Ewing sarcoma jan 2019. If you have any questions please ask. You can message me too. Unfortunately my son died in May 2021. I researched it extensively and have a background in science. I may be able to answer some of your questions or give you advice on where to get those answers. I'm not medically qualified just a parent that has been through this treatment with my son.
    Thinking of you both x

Children