Cancer in my oesophagus

Hi.

Thought I'd start to share my story. I have been reading posts here for the last week and it is nice to see a community. I'm 42F from ireland.

My Journey started 2 months ago with a trip to the doctors and ended up being diagnosed with cancer in my oesophagus last Friday.

I have had no symptoms apart from chronic heart burn. Which I've had for years so didn't even think of it as a symptom to be honest.

An endoscope turned up what originally they thought was low grade displasia from barrett's but ended up being cancer.

They think they might have caught it early, I had my ct scan yesterday and I have my pet scan and eus next week hopefully and then they will decide on a treatment plan.

It still feels very surreal like it's not really happening. Overthinking every little thing. The oncology nurse rang me today and said they did see something on the CT scan but they are waiting for all my tests to come back before they talk to me. Does that mean more than the oesephogus? I don't know but mind is whirling.

Anyway I know some of you guys have gone through this and I'm reaching out for some community spirit. As we go through this together. 

Ruth. X

Parents
  • Hi Ruth, so sorry you have had this awful news. Its such a shock isnt it. My husband was diagnosed in November, after hiccups and trouble swallowing. It had spread to his lung and lymph nodes. At first I just thought this is it, death, but, have since learnt, (not from medical team) that a lot of people who have even very severe oesophageal cancer go on to live for many years with it, and it is treatable in many ways. My husband is having EOX chemotherapy and doing really well, in January he could only get soup down, now he eats everything and has tons of energy (out painting the fence today!) Please do feel free to come here for any support or questions and am wishing you all the very best of luck for your treatment. 
    daisy 

Reply
  • Hi Ruth, so sorry you have had this awful news. Its such a shock isnt it. My husband was diagnosed in November, after hiccups and trouble swallowing. It had spread to his lung and lymph nodes. At first I just thought this is it, death, but, have since learnt, (not from medical team) that a lot of people who have even very severe oesophageal cancer go on to live for many years with it, and it is treatable in many ways. My husband is having EOX chemotherapy and doing really well, in January he could only get soup down, now he eats everything and has tons of energy (out painting the fence today!) Please do feel free to come here for any support or questions and am wishing you all the very best of luck for your treatment. 
    daisy 

Children
  • Thank you so much Daisy.

     

    Wishing you and your husband the best in his treatment. Xxx

  • Hi Daisy 71, 

    This post caught my eye. I am posting mostly now on RayB 's board, but always look out for you elsewhere .

    Glad your man is earning his keep. I need to kick mine in the proverbial butt. LOL. I suppose I should be a tad more sympathetic given what he has been through, but hey ho, why would I change a habit of a lifetime giving him 'jobs' to do (:.

    Really glad your man has moved on from cottage pie, nice as it can be, full fry ups, steak etc is better. I suppose for us, it was the choice of eating what you wanted was taken away with the clogging, you had to eat what you could rather than what was wanted.

    That chemo is amazing when you think about it. Same effect on my husband tumour as yours. Shrank the f*******. down. 
     

    We have decided to mark  the end of treatment (for now!) with a new tattoo each. We have almost decided on what and where , but one thing is for sure it won't be of an oesophagus !!! LOL -or maybe we should as a type of eulogy ........... nah

    keep the faith

    Hilts