Cancer in my oesophagus

Hi.

Thought I'd start to share my story. I have been reading posts here for the last week and it is nice to see a community. I'm 42F from ireland.

My Journey started 2 months ago with a trip to the doctors and ended up being diagnosed with cancer in my oesophagus last Friday.

I have had no symptoms apart from chronic heart burn. Which I've had for years so didn't even think of it as a symptom to be honest.

An endoscope turned up what originally they thought was low grade displasia from barrett's but ended up being cancer.

They think they might have caught it early, I had my ct scan yesterday and I have my pet scan and eus next week hopefully and then they will decide on a treatment plan.

It still feels very surreal like it's not really happening. Overthinking every little thing. The oncology nurse rang me today and said they did see something on the CT scan but they are waiting for all my tests to come back before they talk to me. Does that mean more than the oesephogus? I don't know but mind is whirling.

Anyway I know some of you guys have gone through this and I'm reaching out for some community spirit. As we go through this together. 

Ruth. X

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  • Hi Ruth,

    I hope Hilts post has helped. It is my husband who was diagnosed at the end of October. Our journey definitely seems to have been a longer one initially as my husband didn't start treatment until the end of January which was extremely stressful and lots of brain whirling and still is! However the care has been excellent and COVID 19 definitely delayed things and that situation has improved. 
     

    My husband has had the standard 4 x FLOT and whilst he had side effects, nothing major and he managed them. His advice would be drink lots of water (he took 2 flasks upstairs at night and drank them both! We are now waiting to 'Meet the surgeon'. Re the CT Scan I don't know either - it's hard but they will tell you when they have all the info. My very best wishes to you and the members on here are very supportive and will help if they can.

     

    Hilts mentioned the other link and I'm going to post a question on there now. 
     

    Kindest regards,

    Mandy (aka Milly)

     

  • Hi Milly,

    Thank you so much for your reply. I will definitely keep in mind about the water, something I am guilty of not doing is drinking enough water so will try and get into the habit now. 

     

    Ruth. Xx

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