Hi, this is my first post. My husband has stage 4 spindle cell sarcoma with mets in pelvis bone marrow, lymph nodes, ribs, lungs and spine.
He was diagnosed in January and is currently having 3 weeks high dose radiotherapy to try to help with the pain.
He's taking Oramorph when he needs it, Pregablin for nerve pain, Fentanyl patches 25mg, Naproxen, and some gut lining protection tablets, Lorazepam was prescribed today. He has hypercalcaemia too. Due to Covid, we have no direct or face to face support from Macmillan, or similar. He has to attend his appointments alone and the oncology specialist nurse we're supposed to have is on maternity leave snd nobody is covering her.
I just really want to know what to expect in his final months, what will the deterioration look like? Can he stay at home? Will his lungs stop working? Will his heart give out? Is he at risk of falling? Passing out?
please, if anyone can help me understand all this I'd be very grateful