Reality of treatment

Hi all,

I am 32 years older and recently diagnosed with breast cancer. 
 

Yesterday, I discussed my treatment plan. I will be having a mastectomy and immediate reconstruction of my right breast followed by 4-6 months of chemotherapy before starting hormone tablets. 
 

The news is still sinking in but I wondered if anyone has any advise or can share personal experiences of the reality of the treatment. I've been told 4-6 weeks to recover post surgery but what does this look like? How much help will I need?! Chemo is a terrifying prospect but what is the actual reality of this? How sick will I be?

I do realise that this is probably different for everyone but would really like to understand first hand experience if anyone is happy to share. Or if you have supported a loved one, perhaps you have a different insight which I could share with my partner. 
 

Thank you x

Parents
  • Hi MissThomas 1988

    First of all I am so sorry that you have to go through this difficult time. I was diagnosed with triple positive breast cancer in January, I was also 32 at the time (now 33) and have 2 small children, 6 years and 2 years old.

    My treatment plan is 3 rounds of EC chemo, then another 3 rounds of chemo using drugs to target the HER2. Then lumpectomy (although im hoping for mastectomy). Not sure if radiotherapy is on the cards for me but I will be on hormone therapy for at least 5 years. 

    I have currently had 2 rounds of EC chemotherapy (my latest session was on Monday). Everyone reacts completely differently on chemo, so I can only share my experience and hopefully put your mind at ease a little bit.

    I am currently using the cold cap, although I did lose quite a lot of hair on my crown in the shower yesterday and unfortunately the rest of my hair (which is extremely long and ridiculously thick) became all matted and tangled. My mum came round and spend 5 hours trying to tease the knots out but unfortunately lost a lot of hair and in the end had to to cut a big chunk of good hair away, so im 2 minds at the moment about whether to just bite the bullet and shave it.

    As for the actual side effects I have experienced, they have not been as bad as I thought, although rough quite different between the 2 sessions I've had. My 1st session I was extremely fatigued and basically slept for 3 days, but I didn't go off food which was fantastic as it gave me a bit more energy as the week went on. I only had slight nausea for 1 day but I use Gin Gin sweets to help with that. After the 1st 3 days I just felt quite light headed for a while (about 4 days). Then I came round and felt like my 'normal' self.

    After my second session on Monday I have felt slightly worse, but only a bit. I haven't been eating as much as I should which has made me feel weak and I've had nausea on and off since Tuesday. Just feel very drained and weak at the moment, trying so hard to get a bit of enery back but feel a bit like im having an outer body experience most of the time.

    All I did before I started chemotherapy was plan for the worse and hoped for the best, if it wasn't for my hair matting up yesterday I would probably be in slightly better spirits bit hey ho, it is was it is and what will be will be. Hair grows back and it's not the end of the world. What matters is we all stay strong and support each other through this! We will beat cancer!

    If you want to ask any questions just let me know.

    All the best

    Amy x

Reply
  • Hi MissThomas 1988

    First of all I am so sorry that you have to go through this difficult time. I was diagnosed with triple positive breast cancer in January, I was also 32 at the time (now 33) and have 2 small children, 6 years and 2 years old.

    My treatment plan is 3 rounds of EC chemo, then another 3 rounds of chemo using drugs to target the HER2. Then lumpectomy (although im hoping for mastectomy). Not sure if radiotherapy is on the cards for me but I will be on hormone therapy for at least 5 years. 

    I have currently had 2 rounds of EC chemotherapy (my latest session was on Monday). Everyone reacts completely differently on chemo, so I can only share my experience and hopefully put your mind at ease a little bit.

    I am currently using the cold cap, although I did lose quite a lot of hair on my crown in the shower yesterday and unfortunately the rest of my hair (which is extremely long and ridiculously thick) became all matted and tangled. My mum came round and spend 5 hours trying to tease the knots out but unfortunately lost a lot of hair and in the end had to to cut a big chunk of good hair away, so im 2 minds at the moment about whether to just bite the bullet and shave it.

    As for the actual side effects I have experienced, they have not been as bad as I thought, although rough quite different between the 2 sessions I've had. My 1st session I was extremely fatigued and basically slept for 3 days, but I didn't go off food which was fantastic as it gave me a bit more energy as the week went on. I only had slight nausea for 1 day but I use Gin Gin sweets to help with that. After the 1st 3 days I just felt quite light headed for a while (about 4 days). Then I came round and felt like my 'normal' self.

    After my second session on Monday I have felt slightly worse, but only a bit. I haven't been eating as much as I should which has made me feel weak and I've had nausea on and off since Tuesday. Just feel very drained and weak at the moment, trying so hard to get a bit of enery back but feel a bit like im having an outer body experience most of the time.

    All I did before I started chemotherapy was plan for the worse and hoped for the best, if it wasn't for my hair matting up yesterday I would probably be in slightly better spirits bit hey ho, it is was it is and what will be will be. Hair grows back and it's not the end of the world. What matters is we all stay strong and support each other through this! We will beat cancer!

    If you want to ask any questions just let me know.

    All the best

    Amy x

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