Reality of treatment

Hi all,

I am 32 years older and recently diagnosed with breast cancer. 
 

Yesterday, I discussed my treatment plan. I will be having a mastectomy and immediate reconstruction of my right breast followed by 4-6 months of chemotherapy before starting hormone tablets. 
 

The news is still sinking in but I wondered if anyone has any advise or can share personal experiences of the reality of the treatment. I've been told 4-6 weeks to recover post surgery but what does this look like? How much help will I need?! Chemo is a terrifying prospect but what is the actual reality of this? How sick will I be?

I do realise that this is probably different for everyone but would really like to understand first hand experience if anyone is happy to share. Or if you have supported a loved one, perhaps you have a different insight which I could share with my partner. 
 

Thank you x

Parents
  • Miss Thomas 1988

    Hello Miss Thomas 

    I'm sorry you have been diognosed with breast cancer, it is a very scary time ,its the fear of the unknown, and of how you will cope  with everything that you will  have to go through .

    Believe me when I say ,if I can do it ,you certainly can,I was petrified hence my name on here Jassoscared.

    I didn't have a mastectomy, I had a lumpectomy my tumour was 2cm and cancer had spread to my lymph nodes, so it was stage 2. I had all my lymph nodes removed from under my right arm, as it was my right breast that had the cancer tumour. But I have a friend who had a  breast  removed  ,and reconstructed and belive me she is fine now 6 years on,she showed me her breast reconstruction and I would never have known she had had surgery,it looked incredible, and so natural. So I.can reassure you on that one,I was told by my surgeon when I asked what my breast would look like after my operation for lumpectomy and lymph node removal, I was told Jasmin we will do our best to make it look good ,we are all surgically cosmetically trained,so don't worry.  But of course you do. 

    I was diognosed in May 2020, had operation  on June 16th 2021 which went well,had a drain which didn't hurt,stayed in that night, only becsuse im not good with anesthetic. Wore a binding ,it goes across  your breasts and fastens with velcro,it just helps to support your breasts. Was given painkillers, and an excercise sheet , which I did daily,just gentle stretching excercises.  

    I started chemotherapy once I was healed,8 sessions in all ,I was soooo nervous, but it was not as bad as I had imagined it would be. I didnt feel sick once. I did have a few side effects  as I continued with the first 4 ,but not anything I couldn't handle,bit of tiredness,  funny taste in mouth but it did go. All food tasted just as it always did  and I was able to eat as per normally would. The first 4 chemotherapy were called EC,and then i changed  to Paxitaxol, I didnt get on so well with this drug ,so I changed to another  Taxol  drug ,which was better  suited to my body.  I did lose all my hair  2 weeks after 2 chemotherapy sessions, which was hard as my hair was long, so I shaved it  all off, as It looked worse with bald patches, and it felt good ,I felt in control  lol. 

    I finished the 8 chemotherapy  on December 14th . I started taking letrazole chemotherapy hormone drug ( small tablet) on 27th February 2021 which I will be on for 8yrs, it has given me some pain,but raking paracetamol now and again is helping, i was told my body will get used to it in around 3 months, so hopefully pains will go,if not I can change to Tamoxifen and see if its better. I started Radiotherapy and have 15 to do in all,I've just completed my 7th one today, so 8 more to go. You don't feel.a thing while having Radiotherapy, but you must keep completely still,as you are lined up and must be in same position every time. It is tiring.  Before Radiotherapy starts you will have a ct scan and tattoo dots, I didnt want any tattoo dots, but I agreed to have one ,and I have a pen mark a (  X) which is in between both breasts where your cleavage is,and I have a clear sticky tape over it. 

    You need to moisturise your skin on your breast, but all this kind of information will be given to you when you are seen.

    Each Radiotherapy session takes around 20mins and you have it everyday Monday/Friday  for however many weeks you're oncologist tells you ,you need. 

    I hope this post has answered some of your questions ,and I hope it has helped put your mind at rest.  Always here if you need to chat and help you if I can xxx

     

Reply
  • Miss Thomas 1988

    Hello Miss Thomas 

    I'm sorry you have been diognosed with breast cancer, it is a very scary time ,its the fear of the unknown, and of how you will cope  with everything that you will  have to go through .

    Believe me when I say ,if I can do it ,you certainly can,I was petrified hence my name on here Jassoscared.

    I didn't have a mastectomy, I had a lumpectomy my tumour was 2cm and cancer had spread to my lymph nodes, so it was stage 2. I had all my lymph nodes removed from under my right arm, as it was my right breast that had the cancer tumour. But I have a friend who had a  breast  removed  ,and reconstructed and belive me she is fine now 6 years on,she showed me her breast reconstruction and I would never have known she had had surgery,it looked incredible, and so natural. So I.can reassure you on that one,I was told by my surgeon when I asked what my breast would look like after my operation for lumpectomy and lymph node removal, I was told Jasmin we will do our best to make it look good ,we are all surgically cosmetically trained,so don't worry.  But of course you do. 

    I was diognosed in May 2020, had operation  on June 16th 2021 which went well,had a drain which didn't hurt,stayed in that night, only becsuse im not good with anesthetic. Wore a binding ,it goes across  your breasts and fastens with velcro,it just helps to support your breasts. Was given painkillers, and an excercise sheet , which I did daily,just gentle stretching excercises.  

    I started chemotherapy once I was healed,8 sessions in all ,I was soooo nervous, but it was not as bad as I had imagined it would be. I didnt feel sick once. I did have a few side effects  as I continued with the first 4 ,but not anything I couldn't handle,bit of tiredness,  funny taste in mouth but it did go. All food tasted just as it always did  and I was able to eat as per normally would. The first 4 chemotherapy were called EC,and then i changed  to Paxitaxol, I didnt get on so well with this drug ,so I changed to another  Taxol  drug ,which was better  suited to my body.  I did lose all my hair  2 weeks after 2 chemotherapy sessions, which was hard as my hair was long, so I shaved it  all off, as It looked worse with bald patches, and it felt good ,I felt in control  lol. 

    I finished the 8 chemotherapy  on December 14th . I started taking letrazole chemotherapy hormone drug ( small tablet) on 27th February 2021 which I will be on for 8yrs, it has given me some pain,but raking paracetamol now and again is helping, i was told my body will get used to it in around 3 months, so hopefully pains will go,if not I can change to Tamoxifen and see if its better. I started Radiotherapy and have 15 to do in all,I've just completed my 7th one today, so 8 more to go. You don't feel.a thing while having Radiotherapy, but you must keep completely still,as you are lined up and must be in same position every time. It is tiring.  Before Radiotherapy starts you will have a ct scan and tattoo dots, I didnt want any tattoo dots, but I agreed to have one ,and I have a pen mark a (  X) which is in between both breasts where your cleavage is,and I have a clear sticky tape over it. 

    You need to moisturise your skin on your breast, but all this kind of information will be given to you when you are seen.

    Each Radiotherapy session takes around 20mins and you have it everyday Monday/Friday  for however many weeks you're oncologist tells you ,you need. 

    I hope this post has answered some of your questions ,and I hope it has helped put your mind at rest.  Always here if you need to chat and help you if I can xxx

     

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