Worried wife dealing with prostate cancer

Hello, my husband was recently diagnosed with prostate cancer and I'm terrified.

He's 72, following mri and biopsy he has a Gleason score of 7 ( doesn't know if it's 3+4 or 4+3 ), PSA 5.2. Booked for a bone scan next week. Does anyone have a similar score, if so which treatment did you have and would you recommend it ? He knows three men living with it and they all had different treatments.

I know nothing about prostate cancer, he's in good health and this has come out of the blue. I'd be so grateful for any responses.

 

  • Hi bluewombat. Welcome to the forum.

    I'm not a doctor and I have no medical qualifications.  However, I have been involved with the local prostate cancer support group for the last 10 years and I've picked up a lot of information along the way.

    I was diagnosed with prostate cancer back in 2010.  My Gleason was 3+4, and my PSA 5.6. I was 56 at the time.  I had a robotic radical prostatectomy just before Xmas 2010 and I've not needed any more treatment since, although I still get regular PSA checks.

    Although I'm not a doctor, from the information you've given it looks like your husband's cancer will turn out to be early stage (T2), although we await the results of the bone scan.  Early stage prostate cancer is highly treatable, and has a very high cure rate.  The usual treatments are surgery or radiotherapy. Since your husband is over 70 he may not be suitable for surgery, but that would be for the doctors to decide. With a Gleason of 7, he may not be suitable for other options (HIFU, brachytherapy, etc), but again that's something for the doctors to decide.  As an aside, I wish doctors would stop telling patients just the total Gleason score and would instead give the individual numbers.  They will tell you if you ask, but most patients don't know to ask. 

    If you haven't done so already, tell the hospital you want to see copies of any letters sent to your GP.  It may also be worth making an appointment with your GP, since he or she may have access to hospital reports via the practice computer system.  I've actually got reports from my GP faster than I've heard from the hospital! 

    I think it's probably too early to make a decision. Wait for all the tests to come in and see what options are then available.  Don't hesitate to come back here if you want to know anything, or you just want to talk.

     

  • Thank you telemando, that's very reassuring. He already gets copies of letters the hospital sends to his GP, though he hasn't had a copy of the letter giving detailed information about the biopsy yet. He was allotted  a dedicated nurse on the urology team who seems quite helpful with information.

    I'll be glad when the bone scan's done, does anyone know how long he might have to wait for the result ?

  • Sorry to be back so soon, but does anyone have any ideas about how to stop worrying ? The bone scan's next Wednesday and I can't think of anything else but that it will show the cancer's spread already. I know what will be will be and we'll deal with whatever it is, but I'm so scared.

  • So he's just been told that the bone scan didn't show anything suspicious. What a relief. 
    He has to choose his treatment now, radiotherapy, brachytherapy or complete removal.

    PLEASE, can anyone say what treatment they chose, and if they would recommend it ?

     

  • Me again - he's read all the information he's been given, but just doesn't know what treatment to choose.

    Has anyone had a really good experience with one particular treatment ?

  • Me again, and it would be lovely to have a few replies.

    He's decided on brachytherapy and he's suitable for it but will need a mini TURP first.

    Can anyone who's had this share their experience ?

  • Hi bluewombat.

    Strange, I haven't been receiving email notifications of your postings, otherwise I would have responded earlier.

    Brachytherapy isn't particularly common in the UK yet and I'm not aware of anyone here who's had it.  However, to the best of my knowledge it is as effective as any other form of treatment and it is highly likely to be curative.  I wasn't offered it ten years ago, but if it had been an option for me then I would have given it serious consideration.

    I'm not sure if you're aware of the two major prostate cancer charities in the UK.  These are Prostate Cancer UK and Tackle Prostate Cancer.  It would definitely be worthwhile checking out the information on their pages.  Furthermore, Prostate Cancer UK has its own members' forum and you should definitely try posting there.

    In addition, there may be a local prostate cancer support group in your area.  You should find a contact name on either the Tackle or Prostate Cancer UK website.  With Covid, the groups won't be meeting at the moment, but the local contact might be able to put you in contact with someone who's had brachytherapy.