Hi [@Jassoscared]‍ oh wow what an up and down day you have had. I read your first post from today and was thinking how brilliant that was of a Ford to sort you out like that. It sounded like a dramatic day for you but one with a happy ending.

Then I read your second post and can see it all went a bit pear shaped again with that gauge being back on red. Grrr! Really feel for you.

Hang onto that happy feeling from your sunny walk. Tomorrow is another day and if Ford were that helpful today I am sure they will want a happy ending for you.

I am sending positive vibes. There is enough to deal with with cancer "stuff" so you deserve a lucky break xx

Kiwirunner 

Hi kiwirunner, I called Ford's this morning and they sent a lovely young man out called Craig and he took my car and drove it back to ford's to check it all again and he brought it back and everything was fine now. He talked to me and said " he had cancer and it was testicular cancer, like my son had, and he was around my sons age,He said" he is fine now and has checks every 3 months on his bloods,just like my son does. He was so lovely and caring,and said " jasmin if you get any more problems, then please call ford's and ask for me ,Craig and ill help you. Such a lovely young man.  

So all.is well again, and its another lovely sunny day,so im going to take myself off this afternoon for another walk .Hope you have a lovely weekend. Xxx

Hi [@Jassoscared]‍ what brilliant news about your car and the lovely young Craig who has taken you under his wing. Such a good outcome and managed with such kindness and empathy. You must be thrilled. I didn't know your son had had testicular cancer, so you must have felt quite a bond with Craig which is lovely.

I think when others have had a direct experience with cancer, or have had a loved one who has, they really 'get it'. While I was in the middle of waiting on all of my test results (having been told to expect it was cancer) I had to have an urgent root canal (Feb was not a good month!) due to awful toothache. The dentist was so amazing at moving his patients around and doing all that he could to fit me in as he has three nieces, two of whom had breast cancer so he had huge empathy towards me. I was so grateful and sometimes we have to let people do kind things for us.

As you say, the sun is shining, your car is working again and things are looking up. I'm feeling much better in myself and starting to reclaim the old me which feels good. I'm meeting a good friend for a walk this afternoon and really looking forward to a chat in the sunshine. You enjoy the rest of your weekend too xxx

Hi kiwirunner 

Yes I agree people who have had, or know someone who has had cancer are really emphatic towards you, and this helps a great deal.  Hope you enjoyed your walk and catch up with your friens,truly been sone nice sunshine this week. 

This evening I'm having my second Covid Vaccination  the Astra Venica, so hope I'm OK this time, I was last time,  but a tad nervous about the blood clots that have been reported, but it won't stop me from having it, I'm sure I'll be OK. My son is taking me to appointment this evening, which us at 18.20pm. Will be nice to see my son,Have spoken to him on phone, but not seen him scince Easter when I gave him thier Easter treats on the doorstep, which seems ages ago now.  

Well enjoy the rest of today, and its great your feeing good,  long may that last. Speak soon.x

Hi [@Jassoscared]‍ hope you are doing OK after your second jab? So good to get that done and how lovely to think it gave you a chance to see your son. 

How are your aches and pains at the moment? Is getting out walking helping to ease it a bit? I'm managing to walk or run every day at the moment and starting to feel so much better physically and mentally. I feel like I am getting the old me back and 2.5 weeks into the Anastrozole I haven't had any side effectrs yet apart from a hot flush on Sunday night that lasted about 1 minute so that was bearable. Did they do a bone scan for you before you started on Letrozole? My oncologist has requested one for me but there is about an 8 week wait at the moment. It will be good to know how strong my bones (hopefully) are as I don't like the idea of the bone thinning effect of these drugs :-(

On a more positive note, I'm the office today for a change from working at home and there are quite a few colleagues in which is really lovely. Not the same seeing people on a video screen!

Take care xx

Hi kiwirunner 

Yes its good to far bith covid Vaccinations over and done with, and was good to see my son.

I did have a bone scan when I was first  diognosed, but that one was to check if csncer had spread to my bones. I had a letter today ftim hospital  and I have an appointment come through for June, for a Dex scan,whuch is a bone scan, but its to measure the density of my bones  as you say,but different to the other bone scan I think. 

I'm on another letrazole brand Amerox ,and I am so tired all the time ,within around half an hour of taking thrm st 8.05am in the morning, I fall asleep for hours, and by 7pm, I'm feeling tired again.  

The walking is good, but yesterday was so cold I didnr go out  as it rained for a while as well,but it dies help.  Must be nice to be back in the office again working, and goid your beginning to feel more lije yourself again, I think I would if I didn't feel.so tired all the time whije on these letrazole, but hopefully it will settle.down.  .xxx

Hi [@Jassoscared]‍ good to hear from you. Not so good to hear of how tired you are feeling on the medication. That is really interfering with your life to be feeling that tired you poor thing.

I take mine at 10pm every day and since starting on it three weeks ago I have been sleeping the best I have in years -  normally I am a terrible sleeper. I wonder if that is because the 'tiredness' impact is hitting my body when I am actually sleeping. They told me I should take mine at the same time every day but it was up to me to decide when to take it. As I am up earlier in the week but a bit later at weekends, I decided to do it in the evenings as I usually sit down and watch the news at 10pm. Even so, I am glad I set an alarm on my phone to go off each day as I always forget until the alarm goes off!

I'm off to collect my next prescription soon for my Anastrozole as I have one week left of my first supply I got at the hospital. I am on the original version of Anastrozole so am hoping that whatever  brand of it my GP surgery dispenses is not going to feel different when I take it as I am still feeling very lucky to not be having any side effects so far. Last Sunday I had a hot flush for about a minute and I had a bad night sweat two days after starting on it but that has been it!

Glad to hear you had your second jab. I've got mine this afternoon which is only 7.5 weeks since I had my first one which is better than I expected. 

Just took my son to the train station so he can head back to Leeds for his university exams. It has been so nice having him home for three weeks - he came back for a visit and to pick up some shifts at a hotel near us where he works on the bar. He has now topped up his 'beer fund' to go back to uni :-)

Hope you feel a bit better with it all soon and hope the car is behaving itself! xx

Hi Kiwirunner 

Just finished Radiotherapy....what they call Fast Forward but only 1 week....Not so good ...had immediate reaction Very swollen and nipple was agony.Got to see nurse next day so got zerobase and advice to take anti inflammatory and painkillers. Helped some but burning is sooooo bad it’s waking me at night .

Wondered if anyone else had advice and if anyone felt tingling during actual treatment. Everything you read says ...feel nothing. Swear it wasn’t my imagination as it same tingling... but ramped up ....I’m feeling now

Letrozole causes some side effects but trying to live with it.

Keep up the posting and advice everyone 

Jess

Hi [@mrsmac77]‍ sorry to hear you are having a rough time with the tingling etc. I also did the five-day radiotherapy Forward treatment plan. Like you, I had a reaction from the outset - about four hours after my first treatment my nipple was so sore and my breast was tingling like crazy! The tingling settled down after about  12 hours but over the five weeks since I finished the treatment I have had a range of sensations from a feeling of firecrackers going off in my breast (!) with lots of popping and explosive sensations, to really sharp pains when I leant down to do things like put washing in the machine, or things just being incredibly tender (nipple mainly). Yesterday my teenage daughter gave me a big hug and unfortunately, it made me yelp in pain as it just hurt! Other days I can have a hug with my husband it feels not as sore, but I can go for a run or a walk where my breast aches - but this is not every time. Taking pain relief has helped a bit and over time it has improved so hopefully, it will for you too.

I kind of figure that it is a good thing as it shows our bodies are working hard to repair the damage caused by surgery and radiotherapy, but it is disconcerting. I guess we just need to be patient?

Did you get any fatigue? I was amazed that I didn't as I was fully expecting to be sideswiped by that but do wonder if being fit helped. All I know is that the cancer business is anything but predictable.

How are you getting on with your Letrozole side effects? I'm on Anastrozole which is another aromatase inhibitor. Touchwood, a month in I have dodged side effects so far but I did wake up last night drenched in sweat. Nice. Not! I can live with that but am dreading the idea of any joint pain that may yet kick in. Do you also need to get a bone density scan done to check how strong your bones are? I am waiting on my appt to come through.

[@Jassoscared]‍ hope you are also doing OK. I have been thinking of you - just been rubbish at being on here much lately as work has ramped up and I am mentally tired at the end of each day. Thought I'd grab a moment betweem meetings :-)

Good to hear from you xx