Recently diagnosed with lobular breast cancer

Hi,

I've just recently been diagnosed with lobular breast cancer. I wondered if anyone else found that they were very tired before they even started treatment?  I have been extremely tired for about the last year but the cancer Nurse said you only get tired from cancer in the later stages. Just wondered what other people's experience of this was?

Also, the Nurse told me the cancer was staged and graded after the surgeon removed the lump but I thought it was done before that.

Any help/ feedback would be much appreciated.

Dee x

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  • [@DeePat7]‍ , Hi Dee, I had to reply to you with my experience. Firstly I was raging at what the nurse said, she was wrong on both counts. I have felt tired for the last 18 months, I asked my breast care nurse about it, and she said she hears that many times daily. I was diagnosed in late december, at that point I had probably had my tumour 2 to 3 years, and my body would have been fighting it with all it had, hence the total debilatating tiredness, I thought I was going crazy, I have an underactive thyroid, so suffer with feeling tired anyway, but this was on another level. Also you would get your cancer stage and grade with the biopsy results. I was given them the day I was called back for the original biopsy results, and met by both the surgeon and cancer care nurse at the same time - they were handed to me on a white sheet of paper filled in by the cancer care nurse. Things can change along the way, that is certain, I learned that quickly, but not the original biopsy. All the best, stay here and keep asking questions, all kinds of lovely ladies far more knowledgeable than me will pop up and try help you. All the best with things, big hugs, Lyn. X

     

     

     

  • Hi Lyn,

    Thanks for your response.

    Yeah, I feel fatigued more than tiredness even.

    I thought that the cancer was staged and graded after the biopsy but according to the Nurse I saw I would have to wait until the lump is removed - I'm a bit confused about it all.

    I will be glad once I've had my MRI because apparently lobular cancer is a "sneaky one and good at hiding" at least after I've had the MRI I will know exactly what I'm actually facing.

    Take care and thanks.

    Dee

     

  • [@DeePat7]‍, No worries Dee, Could that be the case because its lobular? I have invasive ductal carcinoma, so totally different. I find it really odd, but every one on here is different I guess, you’d think she’d know. Anyway, all the best for the MRI, do let us know. All the best, Lyn. X

Reply
  • [@DeePat7]‍, No worries Dee, Could that be the case because its lobular? I have invasive ductal carcinoma, so totally different. I find it really odd, but every one on here is different I guess, you’d think she’d know. Anyway, all the best for the MRI, do let us know. All the best, Lyn. X

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