Bosniak 3 and nephrectomy

Hello, I was diagnosed with a Bosniak 3 cyst on my right kidney last week.  This was discovered incidentally following an ultrasound for stomach pain, my kidneys are thankfully not causing any symptoms. I had a CT scan from which they diagnosed the cyst and my consultant has ordered an MRI for a better look.  He said the best way forward is to have a nephrectomy. Does anybody here have experience of a Bosniak cyst? Has anybody had a partial or whole nephrectomy? I am keen to know how recovery was, how you felt afterwards, how independent you were in self care and daily needs in the early days? This discovery was quite a shock and it is taking me some time to adjust to the news.  Any feedback would be appreciated. Sorry I posted this in the wrong forum I meant to post it in newly diagnosed!

Parents
  • Hello SR68

    I'm sorry to hear about your recent diagnosis. It's understandably a difficult time whilst you're waiting for the next steps. 

    I've had a look through the forum and I can see that [@Jemma79]‍ recently posted after being diagnosed with Bosniak IV. As I've tagged her into this reply she may see your post and reply. 

    We don't have any other recent posts where Bosniak has been mentioned so I'd recommend having a look at the Kidney Cancer Support Network where I'm sure you'll be able to connect with others who have been through similar diagnosis and surgery. 

    If you'd like to talk things through with one of our nurses you're most welcome to give them a call. they're available Monday to Friday 9 am to 5 pm on 0808 800 4040. 

    I hope this helps. 

    Best wishes, 
    Jenn
    Cancer Chat moderator 

  • Thank you for the information, I really appreciate it.  I have reached out to Jemma and will follow up on the sign post you offered x

Reply Children
No Data