Triple Negative Breast Cancer

Hi there,

Just wondering if there's anyone on here having treatment for triple negative breast cancer? 
 

I only found yesterday I had it and I'm still awaiting scans and a treatment plan. The lymph node under my arm is swollen as is my tonsil on the same side. I've also got a lot of pain in my shoulder, arm and back and was wondering if this is normal? 
 

I'm really frightened I'm trying to be brave for my husband and kids but I'm so so scared. I have no optimism of getting through this I've convinced myself this is a death sentence and I don't know how to change my thought process. 

 

  • omg i know what you mean

    Im Ruth aged 54 diagnosed  with stage 2 grade 2 hers 2 breast cancer in december started chemo last week  so i feel your pain im having anxienty panics every hour

  • Hi, 

    Im so sorry to hear about your diagnosis. I can't help with your question but, I'm awaiting testing as the NHS are backlogged so I've got a private appt on Thursday after finding a lump in my right breast and found a pea size lump tonight in my left one too.  I too have shoulder, back and arm so I didn't want to scroll past without commenting. Xx

  • Hi Ruth,

    I hope you're ok. Thanks for replying to my post. Sorry your having to go through this. 
     

    My anxiety is through the roof too. I'm trying to take it one day at a time, it's all we can do right? Sending you lots of love

  • Thanks Kerry

    since November 2020 id been back a forth to the breast clinic with benign cysts but I kept having an awfful feeling something wasnt right .

    Then the end of November 2020 i felt a lump in righr breast thought it was another cyst no BC 

    Im having chemo with herceptin for 5 mths you will probably be the same but not with herceptin

    when is your oncology appt you need a good treatment plan 

    im very stressed i cant even move from my bed ps  dont be brave youve got to be really selfish now and stopp being the giver

    you should be top priority in the NHS im in BUPA so was having chemo in three weeks this is ridiculous post me privately if you wish

     

     

  • Thanks for your reply. I hope your results come back ok. I know anxiety is high during this time but do try and not stress too much. Iots of love xx

  • Thank you Ruth. I hope your treatment goes well and your anxiety quiets down. Im here if you need to talk to someone 

  • After a year of various scans and cameras as they suspected colon cancer I was diagnosed with triple negative breast cancer with metastes in liver and bones, in November.

    I know how you feel after fairly healthy life (I am 68) everything has fallen apart, I need my gall bladder removing but can’t because of the cancer.

    I feel like Alice in Wonderland falling down the rabbit hole.

    I was supposed to have immunotherapy alongside my chemo, but the final test also came back negative too, so that was out of the window.

    i have now started chemo, just finished first course of two sessions, two weeks off then another two, then repeated.

    i will not lie I feel pretty dire at the moment and if it wasn’t for my family sending me regular messages and sending little gifts for chemo day I don’t know what I would do.

    Of course I can’t see anyone which makes it worse but makes the messages all the more precious.

    You will need the full support of all your family and have got to be selfish, look after yourself, they will never know how you truly feel.

    You must fight this for your husbands and children’s sake. 

    There are new drugs coming on the market make sure they know if you wish to be put forward for them.  I have read that as this is a fairly rare cancer and there is more research into it going on all the time.

    I will pray for you and hope you can get some peace of mind to help you go forward.

    Take care my lovely and good luck

    xxx

     

  • breast cancer now has a board for tnbc

  • Hi Kerry , there's a fb page just for TNBC   answers a lot of questions and shares stories  x