thank you Alison lthough its me feeling sorry for you so apologies was not trying to burst our my problems on you but it is nice to be able to speak to someone. problem also is when i look well no one thinks im ill.typical! look better because i have lost so much weight lol have two more months on this medication befpore whatever happens next.

do you have a date for your scan yet? perhpas you should write down your questions so you dont forget them? 

you take care too 

Elona xx

Please don't apologize your going through a terrible time and it must feel never ending, you mentioned your eyes were deteriorating are they ok is  it to do with the medication or another illness, I know what you mean people keep saying I look really well cause I've lost 3 stone lol 

Take care Allison xxx

wow Alli thats a lot to loose. I have lost stone and a half. 

my eyes are deteriorating i think due to the medication but i cannot get an eye test until 7th feb booked it yesterday. Yes your right it does feel never ending. 

how is your lymphadenitis? 

i took Pedro for a walk yesterday down the road to our local bakers something i have not done for ages - have been sleeping ever since it made me so tired! 

thanks for listening x

Elona xx

The medication your on is awful will your eyesight go back to normal or will it be permanent, as if the other side effects weren't enough for you to deal with its so unfair.  I was a bit of a pudding lol so losing the 3 stone was the best thing to come out of all this, have been so busy I keep forgetting to do lymphedema exercises but started them again as neck stiff and swollen, I don't think the scope helped it doesn't normally hurt but it did this time.

Glad you got out with Pedro sometimes just a walk and some fresh air can make you feel so much better physically and mentally, how are the hedgehogs are they hibernating is Belvedine ok, how are you managing with work

Hope your ok Allison xxx

Hi 

Glad yoour ok and hope you are keeping up those exercises we dont want you going backwards! 

i had to have more tablets for a fungal infection in my mouth dut to the tablets and they helped am eating better now so that is good. still cant eat everything like dairy, too much fatty things and still cact drink tea! or eat chocolate. - at least it means i have to be healthier lol. 

foiund a doctors kitchen book written by a nhs doctor for healthy eating and i think it has heloed i have more enrgy and the lump seems to have shrunk a bit or at least one of them. the consultant felt three lumps in my neck and i have one in my nose i think can feel it when i do a lateral flow test. 

have to have a skin test and more bloods thursday seems to be the norm at the moment have never had some much blood taken lol. looking at lymes disease and things now too. 

we had a priblem with mini mafia they got into our loft and when we had the external insulation pout on they got trapped so ate their way out and i now have a lovely small eaten hole in the outside of the house!!! whnen i have energy i have to fill in and hope the mafia have left! 

we have tried putting up a sign saying no rats allowed but i think they ignore it and laugh at us! they dance along the wall in the carport and i stepped onto a piece of my front garden and sank due to a run underneath it! not impressed. trying to reach a omprosmise is difficult! 

hope your ok girlie keep in touch xx 

My brother had tonsil cancer 3 years ago. It started with a lump on his neck this was it spreading. He got all the tests and it was tonsil cancer on both tonsils. He had his tonsils removed. Then radiotherapy for 6 weeks which dealt with the tonsils and the lump. He first got a feeding tube fitted in his stomach which didn't work, then got a tube in his nose he didn't like it so even though he was I'm pain he forced himself to drink the drinks to build himself up. Don't get me wrong he went through a hard time bit he's amazing now and all clear. He's left with damaged saliva glands so has to wash everything down with liquid. He can't eat certain foods now like curry, pastries and certain bread products but he's adapted. He can eat mashed potatoes if he covers them in gravy. He eats a lot of cold meat except chicken its too dry. Stat hopeful. You can get through this my brother us proof

Hi Elona

A fungal infection as well I keep hoping your feeling better and now this and you might have lymes disease I'm not sure what it is ill look it up, you are such a lovely positive person stay positive this will all be over soon I hope. All ok with me had pet scan Monday had to postpone for a week as colitis is still playing up I will get it under control eventually, until then enemas twice a day , I'm trying not to worry about the results I see the ent doctor on Valentine's day good job I havnt got anything planned lol.

I think the mini mafia are determined to move in with you its obviously much nicer than the hotel there building 

Take care sending a big hug

Allison xxx

Hi Annie

Thank you for the post its nice to hear someone coming out of this, I'm 8 months post treatment I had 6 weeks chemo/radiation I'm cancer free I hope, I had to have another scan as the last one showed up ulcerated scar tissue this is my third post treatment scan I'm hoping this is clear.  I've had some late effects and it does feel relentless at times but staying positive

Allison x

Hi 

thank you for your briothers story good to hear he is now ok even if he cannot eat currys. Always good to hear new stories thank you.

Elona