Hi Judy

That sounds promising and hopefully the swelling will go down soon, I'm the same I now have swelling below left ear which is painful on the same side as the cancer was I originally had it on the right but that went down and i still have a patch of what I think is Mucositis on left side of throat but doctor wasn't worried, I hope you have a lovely holiday try not to worry 

Take care

Allison x

hi everyone 

sorry to hear people are still having problems or effects from the treatment and I really hope you get sorted. it is such a long road for you guys for recovery. Judy enjoy your malta trip. 

take care 

x

Hi Alli

hope you are doing ok just wanted to let you know hubby had his results today, they said he had a really good response to treatment, the MRI was clear and there is no sign of any cancer.  We are absolutely delighted.  The swelling I told you about below his ear has gone, they think it was a blocked saliva gland which is common due the radiotherapy damage.

Its fantastic that we've all had such positive results isn't it.

Take care

Judy x

Hi Judy

That's amazing news I'm so pleased, I had a pet scan last week so waiting for results I'm hoping its just precautionary did your husband have a pet scan as well as the mri

Allison x

No, just the MRI but he had a PET scan 2 weeks before he started chemo because the CT scan showed 'highlighted' chest nodes! It scared us to death at the time but they were sure they were just reactive nodes and the PET scan confirmed this.
 I asked the consultant today if he would be having anymore scans and he said only if they had cause for concern.

im sure everything will be fine, it seems every hospital trust does things a little differently.  I'll keep everything crossed for you, let me know how it goes.

Good luck x

Hello everyone,

I just was going through this post to get some insight into tonsil cancer. My granda (74) has been diagnosed with tonsil cancer (hpv positive) with one lymph node involvement. No spread anywhere else and the doctors have seemed very positive they can cure this from radiotherapy alone.

My question is why is he only getting radiotherapy? A lot of members on this forum with a similar diagnosis are having surgery chemo and radiotherapy or at least more than radiotherapy anyway and they have the same diagnosis - tonsil cancer with no spread and lymph node involvement - I can see some members even had tonsils and infected lymph node surgically removed.

my granda has his first meeting with oncologist tomorrow so I want to go in prepared with questions. I know the consultant had said due to my grandas previous heart attack and need for stents 15+ years ago and *slight* poor kidney function from years ago they may just tackle this cancer with radiation.

he did go in for a tonsillectomy 2 weeks ago but instead decided to only take biopsies and leave the tonsil as it allows for more treatment options.

any advice would be so appreciated. Is their any questions I should ask tomorrow with my Granda?  
 

Thanks 

Hi, my husband had tonsil cancer with spread to several lymph nodes, he had four lots of chemo and 6 weeks radiotherapy, no surgery just a biopsy as it had spread into the soft palate slightly.  It's now 5 months since he finished treatment and yesterday we were told his scan is clear and there is no sign of any cancer.  
I think the reason your Grandad isn't having chemo is because of his other medical conditions, the chemotherapy can affect your heart and kidneys amongst other things, they do lots of checks on these before going ahead with chemo.  Maybe his age could be a factor too, it's a very brutal regime when it's combined chemo/radiation. HPV+ cancer is very treatable, if the oncologist thinks radiotherapy alone will be enough have confidence in them.

good luck tomorrow, let us know how he goes on and if you want to know anything else just ask, for some of us it's all still very fresh in our minds.

Judy

Hi Judy brilliant news about your hubby am so pleased. 

I am now undergoing TB treatment and it is nasty, they are hoping this is the cause of the necrotising granulomatous inflammation in my throat and neck. the medication makes me loose some taste, have difficulty swallowing, so have special mouth stuff, made my throat feel like it had swallowed paint stripper so on high dose preds and increased omepraxole - only 5 more months to go lol. 

glad though all is ok take care xx

Elona 

Hi Elona, so sorry to hear this but it's good that they finally got to the bottom of your problems.  Is the treatment all medication? The side effects sound as horrible as ever.  Did you ever hear how Dragonfinch went on, I think he's the only one ive not heard about since finishing his treatment?

Hope you're feeling better soon

X