Tonsil Cancer - Whirlwind Week

Hi All 

Firstly Hats Off to the NHS in Wales, they have been super amazing since my diagnosis on New Years Eve. Thank you all 

The title of the post is Whirlwind Week and this is why:

New Years Eve I have a phone call from ENT confirming tonsil cancer.  Very apologetic confirmed over the phone.  Wants me in for a biopsy.   Later the same day I get calls from ward team and covid test centre booking appointments.

Monday 4th January i have a covid test at 9.30am. Results back same day, negative for Covid19.  On route to test centre call from pre assessment team asking me to go in straight after my covid test for my biopsy pre assessment.   Forgot to mention biopsy booked for 7th January. 

Tuesday 5th January have an ultrasound at 9.30am and an MRI ar 11.00am.  The ultrasound was an external ultrasound of my neck. They decided to take two needle biopsies of lymph nodes which took some doing as the nodes were so solid they couldn't get needle in... Thank goodness for local anesthetic :)

From ultrasound they decided to send me for a 3d scan of my jaw.  This was done primarily in case I need any teeth removed pre radiotherapy treatment.  Apparently radiotherapy can cause your back teeth to crumble.  Don't panic not everyone has this done.  i believe it totally depends on size, position of tumour and the amount of radiotherapy you need.

After the jaw scan I went straight for my MRI.  Think I  had two 10 minute sessions,  the second 10 with dye injected into my blood.  I had also had this done for a CT scan on 18th December.

Wednesday 6th January day off.  Which I used to eat as many nice things as possible :)

Thursday 7th January 07.30am its minus 4 degrees c and I'm back at the hospital with my overnight bag ready for another biopsy, I was told to expect to be in hospital overnight.  Due to covid we have to wait at the entrance.  Just 3 of us, asked lots of covid related questions and temperature checked before being escorted to the clean ward.

The ENT surgeon comes to see me to explain the procedure.  Remember everyone is different.   So for me they are going to remove the good tonsil and send it for tests.  What? Not the bad tonsil?  The reason for this is because when you have cancer in one tonsil it is pretty much a done deal that you will get itin the other.   Also by leaving the cancerous tonsil in it allows for more treatment options.  If they cut it out there will only be one treatment path.

During the tonsillectomy they also took biopsies of my bad tonsil and my tongue.   After the op ENT told me that it would take about 7 days for the results so they expect to be calling my Wife and I in a week on Wednesday. 

I was allowed to go home as long as I had eaten something, drunk something and had a pee.  I was home by 7pm the same day.

Sunday 10th January its 6am and I am sat in bed writing this post.  Next to me is a glass of water which I sip all night, my 6am pills and a lip balm.  My bottom lip took a battering during surgery and is very swollen and sore.   The cancerous side of my throat and shoulder is still painful and the right side is even more painful from the tonsillectomy.  Even my lymph nodes seem to be complaining  :)

But you know what, I don't feel sorry for myself,  I don't feel sad.  I'm going to lose weight, but hey I'm 5ft 6inch and 13 and a half stone (male) i could do with shedding a few pounds ;) 

I know this is just the start of a long hard journey,  but I'm ready... bring it on I say!

Parents
  • H

    Had results today from biopsy on tonsil and now know its cancer, its all been really quick what with scans and hospital visits so not really had time to think about it now it's just starting to sink in but I'm pretty positive, I'm told its spread to a lymph node has anyone else had this 

  • HiAli

    I am sorry to hear your diagnosis, but the first thing I would say is there is always hope. Al my friend here has the same and is currently undergoing all the treatment. He is having a six week course of radiotherapy and chemotherapy over most of the week meaning daily trips. The first thing they have to do is make sure you have no teeth that will get corroded by treatment so need removing first,. They then measure you for the mask this apparently is quite comfortable. They then arrrange the neginnings of the treatment. It will not be easy so you will need a good support system around you - family, macmillans, friends especially when you have down days. Some people loose taste buds during treatment some can find swallowing hard but if you look back on our talks there are mouth exeercises to do. 

    Find all the exciting food things you love that are highly flacoured and stock up you will need to keep your weight up and need things that are exciting to make you smile. 

    good luck i am here is you want to talk. 

    stay strong x

  • Hi Al

    Glad your getting to eat more food and the feeding tubes out your sounding a lot better. Was such a long day yesterday didn't get home till 7pm the mask was scary hoping today's better, felt a bit weird last night a bit shaky and headachy but slept ok and feel a bit wobbly today but not to bad, round 2 today

    Take care

    Alli x

  • Morning Elona

    The watering can lights sounds fab hope your ok. Yesterday was a long day didn't get back till 7 and was ok but felt a bit shaky and weird feel the same today but its to be expected, round 2 today

    Hope you have a great day

    Alli x

  • Hi Sam

    Thank you it was a long day and was glad when it was over,  not feeling to bad a bit shaky and tired but not sick I've took an anti sickness just in case, hope your ok

    Take care

    Alli x

  • I'd definitely say take them even if you don't. 

    It's alot easier to stop sickness before it starts by having a good amount of meds in you.

    TC

    Sam

  • Morning 

    What a lovely surprise to hear from you Sam glad your doing ok and last of treatment finished. Hope things settle quickly for you and swelling goes down and eating eases. 

    Alli glad you have day one over and done with I expect sometimes that is always the hardest. Hope the unusual sensations settle and you are ok today. 

    Al fantastic news you have the ng tube out hope you are now eating ok. I am so pleased have you all in my thoughts constantly. 

    My plants are being transplanted but not in garden yet either due to the unpredictable weather cannot be trusted with all the hard work growing the plants in the first place. Did order some more bedding plants yesterday for £9.99 for 72 garden ready plugs Suttons so hopefully i will have loads of colour this year have the need for colour lol. 

    Today the skip is here so hubby and i are going to try and move items into it little by little., Thankfully the end comes down so it makes it a bit easier getting the items in. 

    Hubby informed me of mini mafias family tree this morning he had been doing a bit of geaneology and it trasnpires that they come from France, Germany, Russia so they are planning a multicultural party late summer when travel bans have lifted. Should be a ruckus! The worry is if they invite the American cocodiles as well !

    Well caught up with a good friend i have not seen for ages on the phone today. Had a lovely conversation hoping we can catch up properly some day. She owns a GSD x Malamute who used to love walking with Shugs and Pedro. 

    hope everyone has a good day 

    keep smiling x

  • Morning and a lovely wet weekend! 

    so glad the garden is getting watered and i have an excuse not to do much as back is aching from filling skip yesterday/ I got a text from some people at work saying they are coming over to see me next saturday so really looking forward to that but also worried place will look a real mess. Put up the watering can it looks quite good just a shame the lights were not long enough for where i wanted them to go. You can get fountain lights which would be better ( i9 had curtain lights) but they seem to be only solar powered which i did not want. I also suggest if any one tries this to use a plastic watering can as the nozzle is further up the can neared the top. I tried with a metal one and it was impossible to get the lights down the nozzle. 

    I have also finished the floor finally in dinning roomarea wow that has taken ages!! Hopefully get some things back to normal. 

    Having a relaxful time this afternoon mexican on the hob and lying on bed with bengal boys and pedro watching Ghost wars on Amazon with Meatloaf in. He actually is a good actor as well as singer. If you like spooky things this is right up your street. 

    Hope everyone has a good relaxing weekend with improvements all round. 

    Keep smiling x

  • Hi Sam

    Took your advice as started to feel a bit nauseous and was so exhausted and miserable yesterday have also no appetite since chemo hope that eases, hope your ok to and are having a nice weekend

    Take care

    Alli x 

  • Morning

    Feel a little bit more human today but still no appetite so that's not helping, I'm feeling pretty down and just hope I can find the strength and positivity to get through this, sorry having a bit of a wobble day. The watering can lights are a lovely idea think I could do with some lights in my garden to make it a bit more sociable. Hope your ok Al and still trying lots of different things to eat you were brave taking the tube out

     

    Hope you have a lovely day

    Alli x

     

  • Morning apologies i did not reply yesterday but spent the day in the garden.

    Alli dont worry you are bound to wobble and feel down with chemo Al was the same. just try and think positive and see the good in everything find things that make you smile and remember hope there is light at the end of the tunnel that gets brighter each and every day. We are here for your wobbles every day. 

    The sun was lovely yesterday i had to get outside but it took all day to do what i wanted with hubbys support. We even had coffee outside and sat outisde listening to the birds in the evening. Feel it this morning though!!! We then had tons of rain last night so i weeded one bed this morning and it was great the weeds came up easily shame cant finish the job. 

    mini mafia have been sneaking around recently hubby has caught the backsides of a couple each day and there has been eveidence of their presence. the rumours are the war plans are coming to fruism and will start any day. Next door informed me she had also seen two running between our gardens. they appear to be residing under her shed and the two she saw are the scouts. 

    Have left my plugs uncovered for the last couple of days to adapt now to the weather, especially as the sweetcorn and butternut squash need to be planted soon. Some of my flowers are also needing planting so exciting if they take. 

    lights are definatley lovely in the fgarden they do bring something to the garden. i have adjusted my watering can and it now looks better and even managed to get it onto a laburnham branch so it hangs down nicely. Worth it and you can get some quite cheaply now. 

    Hope this week goes well for you Alli and AL and Sam you continue improving. Bet Al you are feeling better with no tube now hope the eating is still ok. 

    keep smiling x

  • what a day thought you might like a laugh! 

    Decided to paint spray the chimney iam now working on and had obtained a fire proof black aerosol to use so when i had sat down i felt like trying it out! 

    for the next hour or so we had to sit outside with doors and windows open as it stank the place out totally strong fumes i just breathed in lol and can still taste in the back of my mouth lol. so shivering (as it is now getting dark and cold) we are pacing outside looking like two idiots because i had sprayed the chimney black!! 

    Next Tesco arrive with the delivery thats great no problme i unpack and put everything away and we finally sit down to watch the television. I finally get up to a winging dog who doesnt understand why i have not gone to bed yet and walk into a kitchen disaster! a lovely fresh white loaf for the ubby lies half eaten on the floor still in its wrapper i hasten to add with bits and pieces spread daintly over the place - mummy we have rats i am told hmm i said they dont come in the house - this time i know it is not the mini mafia but Pedro the thief!!! he has finally sheepedly come to bed and curled up with full tum for a snooze! 

    night all x

Reply
  • what a day thought you might like a laugh! 

    Decided to paint spray the chimney iam now working on and had obtained a fire proof black aerosol to use so when i had sat down i felt like trying it out! 

    for the next hour or so we had to sit outside with doors and windows open as it stank the place out totally strong fumes i just breathed in lol and can still taste in the back of my mouth lol. so shivering (as it is now getting dark and cold) we are pacing outside looking like two idiots because i had sprayed the chimney black!! 

    Next Tesco arrive with the delivery thats great no problme i unpack and put everything away and we finally sit down to watch the television. I finally get up to a winging dog who doesnt understand why i have not gone to bed yet and walk into a kitchen disaster! a lovely fresh white loaf for the ubby lies half eaten on the floor still in its wrapper i hasten to add with bits and pieces spread daintly over the place - mummy we have rats i am told hmm i said they dont come in the house - this time i know it is not the mini mafia but Pedro the thief!!! he has finally sheepedly come to bed and curled up with full tum for a snooze! 

    night all x

Children
  • Hi Elona :happy:

    Sounds like you have been having a busy time of it, black chimney, mini mafia, half eaten loaf of bread :laugh:

    Its been raining so much here we've had no chance to get out into the garden, though we have notice another couple of eaten plugs Grrrr!  We did manage to get a bargain from Facebook Market Place...  We wanted bubble insulation for the shed conversion, I had priced it at £167 to do all the walls and the roof.  Found a 50m roll on FB for £40 a couple of miles down the road!  I do like a bargain.  Now we just need a decent week or two of weather so we can take everything out of the shed and start actual work on it.

    I repotted the herbs, but they are still inside.  The plan is to keep some inside and the rest to go outside, again just waiting on the weather.  Its at times like this I do miss living on the south coast of England.

    Not eating as much as I should, lost over a kilo in the last week.  Not enjoying food at all, eating because I have to rather than wanting to.  Spoke to dieticians yesterday and she told me to purchase full fat milk to drink, a pint a day.  Seems like my tatse buds have taken a break from getting better.  Going out for a meal with two of my daughters on Saturday, goodness knows what I am going to order.

    Off to see my oncologist today.  Before treatment I had a lump on the back of my head which I thought was just a fatty lump.  Strangly it disappeared during chemo and radio, but now it has started growing back.  There was amusingly a lot of interest in it during treatment.  They now want to check it out as neither chemo nor radio should have had any effect on it.

    Stay Strong

    Al'

  • Afternoon

    AL hope the oncologist trip is ok and the lump nothing to worry about. You have been through enough. Sorry about the taste buds thats a pain on Saturday go for the sickliest and sweetest thing on the menu lol that will prevent loss of pounds. I could do with loosing your kilo!! 

    We have been incredibly lucky with the weather these last couple of days it has been lovely and so nice to have the energy to get into the garden. Hubby came and sat out with me whilst i weeded some of the veggie patch. The sweetcorn and butternut squash are now planted in the garden. Celeriac are still too small and yakons have not arrived yet. 

    Got through 6 more bags of compost to help raise some beds. Unfortunatley this mnice day was slightly tarred by reversing into the corner of the skip when i got home yikes!! broke the light cover thats all thankfully. Scellotape emergency fix. typically skip was removed half an hour later!!! 

    Forcast is for us to have some rain tomorrow so if thas the case will do some more of the chimney breast but after last nights fiaasco will not bother with a second coat even though it looks like it should have one. 

    Al what a bargain you cannot beat a bargain especially one on your doorstep! the shed conversion will be great once you start it. Sounds also like you will have loads of herbs to use too. I used to have a herb garden in my old house and loved it but sage was a *** it attracted all sorts of midges on summer evenings and i used to get bitten a lot so they are limited here! 

    Alli hope alls going well and you are over your wobble. take care we are here for you. 

    Sam hope the recovery is going ok

    keep smiling x

  • Afternoon

    Well today has been eventful decided lovely would do a little more weeding then phone rings could I go on BBC Essex radio and answer some questions on cat microchipping and cat behviour. Not until 2pm (turned out 2.15pm) and only lasted 5 minutes lol so morning spent topping up knowledge - not needed lol.

    Topping up pond after mending a patch last night and getting pond sealant all over my fingers - what a mess!!!! i remember the time we had a patch that was sticky not now have to cut a circle and use this most horrendous black sealant took half an hour to get fingers clean!11 then computer didnt recognise them to touch sign in as i had rubbed the top layer off!! hoping it has worked or everyone will hear me whereever you are!! 

    no sign of mini mafia as yet we are hopeful that they have relocated although hubby thinks he saw grandpa yesterday having got himself lost going home and ended up here. 

    Ended up in bed yesterday at 4pm lol shattered and fell asleep so funny woke up and wondered if it was today and then realised it was only 2 hours later. probably end up doing that tonight going early. too much excitement!! 

    hope you are all ok and doing well. 

    keep smiling 

    x

     

  • Afternoon,

    a rainy day today but has had a few dry spots so time to get compost on garden and plant my plugs all done except the begonias. The garden is now beginning to look good and iam pleased i have had the energy to do it. my coca cola smelling geraniums, hybrid foxglove and others all in. 

    watching more ghost wars getting quite suspenseful. Pedro and cats have joined me but they are not that fussed lol just a warm bod to lie next too. 

    Undercoat is on the chimney breast so tomorrow can paint it then when i can put the new tiles on. I love it when a plan gets together. 

    Hoping you are all well and doing ok. 

    keep smiling x

     

  • Hi Elona :happy:

    The trip to oncology went well.  They're not sure what the lump on my head is, they're not too worried about it at this time.  They think that maybe the steroids that I took during treatment may have shrunk it.  They're not going to take any chances though.  The plan is that they're either going to scan it at my next PET Scan, or they're going to send me to a dermatologist, or both.  They're going to discuss it at their next meeting.

    Turns out the reason my taste buds and throat have taken a bit of a u-turn is because I have oral thrush again.  This has coated my tongue and throat.  I only had it a few weeks ago, but apparently it is common to have it multiple times post treatment.  So more mouth washes and meds, plus I have to brush my tongue with Bi Carb.

    I also found out why my good tonsil was removed.  Although the risk was low of the cancer spreading to my other tonsil the risk was still high enough to warrent removing it.  This is because had the good tonsil shown signs of cancer post treatment the human body would not handle the 6 week treatment being repeated.  Which would have made the cancer hard to remove with any success.   All makes sense now :happy:

    I will keep that in mind with the Sage, I too am an insects favourite meal.  Perhaps I will plant all the sage outside next to the citronella candles :laugh:  I should have shares in citronella.  Does the pond not attract the midges too?  Horse Flies are my worst, after being bitten by them I look like Freddie Krueger from Elm Street!

    A call from local radio eh...  From this moment onwards you will now be known as the cat lady :laugh:  My cats aren't chipped, they're completely broken!

    'My coca cola smelling geraniums?'  Please do tell me about these.

    Hope you have a fab weekend :happy:

    You too 'Keep Smiling'

    Al'

     

     

  • Afternoon,

    Hope everyone is ok.

    Al glad the oncologist is ok with lump on head but hope it gets sorted at next treatment. Ingteresting about the tonsil removal. If that had been the case i would have had to have two operations because they had not toally diagnosed mine at the tonsilectomy stage. 

    Not a pretty sight Freddie Krueger! the pond has a few midges but because it is a koi pond with no plants it is not too bad. 

    Geraniums can be flavoured with several scents. You crush a leaf inbetween your fingers and then smell it. The coca cola one really does smell of coca cola and the apple one really smells of apple. There i another flavour but it was not very good, not sure if there are other flavours or not, may have to look it up. 

    Cleaning a bit today to get the house looking at least a little respectable for our friends tomorrow. Dropped hubby at Asda for a walk around and get a few things. He quite enjoyed it. I sat in car doing a suduko, not brilliant at them but can do medium ones. It kept me occupied and i was not going to go inside. 

    Now finishing the ghost wars, turning sci fi now aliens as ghosts. Meat loaf does play a good part though am impressed. Huge fan of his songs. 

    Finally have Pedro also lying next to me at last he is quiet for a time has been very demanding today wineing a lot for attention and balll throwing. little *** decided to lie full out last night on bed leaving me very little room!! as it is i have a small square to sit with knees up resting this on them to write lol. 

    We had a blue *** fly into our carport i took a little while to fly out but it was really pretty love seeing the birds. Was surprised when hubby didnt know many bird breeds. will have to educate him. awaiting pigeon feeding time. 

    Alli and Sam hope your ok. x

    keep smiling x

  • Afternoon, 

    had a great morning with friends consequently i am shattered now and voice has nearly gone. shall fall asleep this afternoon probably. They brought me a metal hedgehog to go in the garden but it is so cute might keep it indoors. Sounds like work has not changed one bit! shame really. 

    Diet out the window this morning so all day - they brought cake and crisps and tea!! so hubby and i will treat ourselves to having chinese for tea. good job as i have no energy for cooking. 

    Finishing watching ghost wars also still holding my interest which is good, often series dont do that or have some boring episodes but this is good. 

    Hubby says he thinks the mini mafia are sneaking about again and that this morning they were clearing up the mobile restaurant out in the carport. They obviously did not do that too quietly because Pedro was showing interest. The restaurant must have been smelling good because people had come from all around to participate in the menus and i was told they were quite reasonably priced. Cleaning up was a little more chaotic they had left a couple of wrappers around so hubby is going to tell them to be a bit more careful. 

    When my friends looked around the garden they made a few comments about the good life, it does sound strange when i say over there is the veggies, sweetcorn, butternut squash, celeraic, there is the apple, pear, plum trees then there are blueberries, blackcurrnat, saskatoons, the summer truffle and walnut tree!!! i could be as nutty as they were lol. 

    anyway have good days hope things are not too bad,. 

    keep smiling x