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Had results today from biopsy on tonsil and now know its cancer, its all been really quick what with scans and hospital visits so not really had time to think about it now it's just starting to sink in but I'm pretty positive, I'm told its spread to a lymph node has anyone else had this 

HiAli

I am sorry to hear your diagnosis, but the first thing I would say is there is always hope. Al my friend here has the same and is currently undergoing all the treatment. He is having a six week course of radiotherapy and chemotherapy over most of the week meaning daily trips. The first thing they have to do is make sure you have no teeth that will get corroded by treatment so need removing first,. They then measure you for the mask this apparently is quite comfortable. They then arrrange the neginnings of the treatment. It will not be easy so you will need a good support system around you - family, macmillans, friends especially when you have down days. Some people loose taste buds during treatment some can find swallowing hard but if you look back on our talks there are mouth exeercises to do. 

Find all the exciting food things you love that are highly flacoured and stock up you will need to keep your weight up and need things that are exciting to make you smile. 

good luck i am here is you want to talk. 

stay strong x

Morning 

Alli - thinking of you today hope all goes well. 

Al thank you you made me laugh cant wait to hear more abiout the sinister movements of the garden it reminded me of tales of the unexpected! 

Hubby and i have decided not to vote today - i forgot to sign up for postal vote as i am still suposed to be shielding and Clacton district does not generally change its counsillors much anyway. We would have definately made the effort if it had been a general election. Hahahha yes we could do with more Lord screaming Sutch!!! 

I think we had a jay in the garden on the hedge/fence yesterday it was hard to see because of the light but it was very handsome. Alli i love blue *** we had a nesting box that was used by them yearly until this year and i think that is because of my mothers cats that were here have spooked them, hope they come back again. 

Standoff with cousin mini mafia who sneeked onto bird table in the dusk yesterday. Was being observed very closely through the windo by Rum tum but cousin was brave and seemed aware that rum tum could not get to it. i had to open the top window to get it to move. Mind you it had stuffed its face by them!! 

I have decided my garden needs some lights so I have seen and am going to recreate a watering can dripping water onto the garden and the dripping water is a curtain of fairy lights. i have ordered a curtain of white lights and have an old watering can just need a post to set it up and we should be ready. Things dont always come out as well as my brain says but we shall see. 

Have good day and keep smiling x

Hi Elona :happy:

I hope Ali is feeling ok, she would have had a long day yesterday.

I love Jays, thay are without doubt one of my favourite birds.  I lived in Hampshire for 10 years and the place that we used to walk the dogs was full of Jays, I had never experienced before so many in one place.  I could sit there and watch them for ages.  I don't think that I have seen one since living here.

We have lots of lights in the garden, every year they are replaced or added to.  I expect you can see our garden from space!  Loving the watering can idea, I may have to borrow that :wink:  I am going to transplant my herbs into pots today, still not going to risk them going outside.  Mind you the sprouts were transplanted outside a couple of weeks ago and they're doing well.

I removed my feeding tube yesterday, 4 days ahead of time.  Watched a 'How To' YouTube video and out it came :happy:  I wont lie I was nervous but it was such a relief once out.  And a lot easier than I expected.

Lovely and sunny here today, not warm though.  A lot of rain heading in from the south west tomorrow so will have to make the most of today.

Stay Strong

Al x

Hi all.

So, treatment finished on Tuesday. Sufficed to say I nearly yanked the bell off the wall

Saw my Oncologist same day as well in Clinic. He has said he's pleased with how I've coped with the intensive treatment (I don't feel pleased but!!!) My outer skin is a bit itchy but Flamigel sorting that well. He also went on to feel around my neck and had a little look inside. Said because things are so swollen he can't necessarily say it's gone but used the term 'I currently have no reasons to think the treatment is working and going in the right direction' so... took some comfort from that.

Throat discomfort isn't toooooo bad. Basic fluids are still a bit sore to go down but having guzzles every now and again, have even been trying some fruit juices but mouth still way too sore.

My NG Tube came out for the 5th time a few days back, tried to go onto Ensures but with the amount of Phlegm rattling around, my tummy just won't have it.. ended up vomming so I drove myself back to my Unit and they refitted it for me. Finding that I can only be in certain positions with it (like bolt upright in bed). Otherwise I get loads of coughing fits, I have to keep them controlled otherwise I end up wretching and we lose the tube!

After treatment they said that I should start getting some improvement After a week or so, but generally varies from person to person. So kindly hoping that the Mucus buggers off reasonably quickly. 

Great to hear on your recovery DF... keep pushing. 

My PET Scan is being booked for in 6 weeks time. So should be 2nd or 3rd week of June. Plenty of time to concentrate on recovering. 

Hey Alli. 

Best of luck today. Alot of things will be overwhelming. Both me and my other half were in tears on the way. Its a scary experience of the unknown that you're embarking on. But remember. There's People out there in your Hospital to help. No question is too much for them.

Before you know it you'll be at the end of it and on the road to recovery.

It seems forever away but you Will get there!

Hi Al

Glad your getting to eat more food and the feeding tubes out your sounding a lot better. Was such a long day yesterday didn't get home till 7pm the mask was scary hoping today's better, felt a bit weird last night a bit shaky and headachy but slept ok and feel a bit wobbly today but not to bad, round 2 today

Take care

Alli x

Morning Elona

The watering can lights sounds fab hope your ok. Yesterday was a long day didn't get back till 7 and was ok but felt a bit shaky and weird feel the same today but its to be expected, round 2 today

Hope you have a great day

Alli x

Hi Sam

Thank you it was a long day and was glad when it was over,  not feeling to bad a bit shaky and tired but not sick I've took an anti sickness just in case, hope your ok

Take care

Alli x

I'd definitely say take them even if you don't. 

It's alot easier to stop sickness before it starts by having a good amount of meds in you.

TC

Sam

Morning 

What a lovely surprise to hear from you Sam glad your doing ok and last of treatment finished. Hope things settle quickly for you and swelling goes down and eating eases. 

Alli glad you have day one over and done with I expect sometimes that is always the hardest. Hope the unusual sensations settle and you are ok today. 

Al fantastic news you have the ng tube out hope you are now eating ok. I am so pleased have you all in my thoughts constantly. 

My plants are being transplanted but not in garden yet either due to the unpredictable weather cannot be trusted with all the hard work growing the plants in the first place. Did order some more bedding plants yesterday for £9.99 for 72 garden ready plugs Suttons so hopefully i will have loads of colour this year have the need for colour lol. 

Today the skip is here so hubby and i are going to try and move items into it little by little., Thankfully the end comes down so it makes it a bit easier getting the items in. 

Hubby informed me of mini mafias family tree this morning he had been doing a bit of geaneology and it trasnpires that they come from France, Germany, Russia so they are planning a multicultural party late summer when travel bans have lifted. Should be a ruckus! The worry is if they invite the American cocodiles as well !

Well caught up with a good friend i have not seen for ages on the phone today. Had a lovely conversation hoping we can catch up properly some day. She owns a GSD x Malamute who used to love walking with Shugs and Pedro. 

hope everyone has a good day 

keep smiling x

Morning and a lovely wet weekend! 

so glad the garden is getting watered and i have an excuse not to do much as back is aching from filling skip yesterday/ I got a text from some people at work saying they are coming over to see me next saturday so really looking forward to that but also worried place will look a real mess. Put up the watering can it looks quite good just a shame the lights were not long enough for where i wanted them to go. You can get fountain lights which would be better ( i9 had curtain lights) but they seem to be only solar powered which i did not want. I also suggest if any one tries this to use a plastic watering can as the nozzle is further up the can neared the top. I tried with a metal one and it was impossible to get the lights down the nozzle. 

I have also finished the floor finally in dinning roomarea wow that has taken ages!! Hopefully get some things back to normal. 

Having a relaxful time this afternoon mexican on the hob and lying on bed with bengal boys and pedro watching Ghost wars on Amazon with Meatloaf in. He actually is a good actor as well as singer. If you like spooky things this is right up your street. 

Hope everyone has a good relaxing weekend with improvements all round. 

Keep smiling x

Morning and a lovely wet weekend! 

so glad the garden is getting watered and i have an excuse not to do much as back is aching from filling skip yesterday/ I got a text from some people at work saying they are coming over to see me next saturday so really looking forward to that but also worried place will look a real mess. Put up the watering can it looks quite good just a shame the lights were not long enough for where i wanted them to go. You can get fountain lights which would be better ( i9 had curtain lights) but they seem to be only solar powered which i did not want. I also suggest if any one tries this to use a plastic watering can as the nozzle is further up the can neared the top. I tried with a metal one and it was impossible to get the lights down the nozzle. 

I have also finished the floor finally in dinning roomarea wow that has taken ages!! Hopefully get some things back to normal. 

Having a relaxful time this afternoon mexican on the hob and lying on bed with bengal boys and pedro watching Ghost wars on Amazon with Meatloaf in. He actually is a good actor as well as singer. If you like spooky things this is right up your street. 

Hope everyone has a good relaxing weekend with improvements all round. 

Keep smiling x