Hello United1122, 

I just wanted to welcome you to Cancer Chat. I am sorry to hear you have been recently diagnosed with liver cancer. Poor you after surviving covid in April, that is a lot to have had to deal with in the last few months. 

I hope everything goes well on Tuesday and that the MRI sheds some light on what is going on. We're all here for you if you want to chat to others who are in a similar situation and if you needed to talk things through with our cancer nurses at any point, the free number to ring is 0808 800 4040 - their line is open Monday to Friday from 9am to 5pm. 

Best wishes, 

Lucie, Cancer Chat Moderator

[@United1122]‍ im so sorry to hear your diagnosis, my dads cancer has spread around the liver and sadly getting conflicting reports from all over, couldnt agree more get checked x

Hi Danilou1985 

Am in a very similar situation my Dad, am finding it so hard. Has your dad ever been given steroids as my dad has abs it's picked him up a little. We waiting on more results coming back. Where did your dads cancer start? 
I hope he's doing well and you are. 
 

Hi  United1122. Like yourself I was told in Januray 2020 I had liver cancer,

A year on and two procedures later,  I'm still by no means  in the clear.

I have the bloating of the stomach and was told it was fluid. I'm also diabetic which adds to the list of things. I went to see the liver specailist and was told I would be seen by Liverpool cancer unit who specialised with liver cancer. my first face to face appointment was in the middle of covid19..  After our face to face I was told two options were left.  a resection or transplant. I said I'd prefer the transplant, yes more risks and on medications to stop my body rejecting the new liver. I was told because I fitted the criteria, I was a perfect candidate for transplant.  Last Friday I had another appointment at liverpool cancer unit,  Only to be told because of recent events,  Which were the cause  of my liver I was told I was no longer a candidate for either procedure. It just seems now they are putting obsticles in the way. all down to my liver cancer.

It has got to the point now were I just don't want to go through any more tests MRI scans. all the knock backs are getting me to a new low. It's now coming up to a year since the wife passed away with aggressive cancer. it was too late for her. 6 weeks from diagnosis to her death.  I still live with sadness in my heart and miss her so much.  Who knows I may join her some day soon.

Thuresday I finally went to the cancer unit in liverpool. after the last visit my phone assessment was cancelled with a midlands transplant unit due to problems which ended up with me in hospital.

Now from past scans I was told my liver had a blood clot , a portal vein thrombosis. Now I know from my family history my dad suffered from blood clots. and died when a clot was pumped by his heart and had a heat attack.  So I know blood clots can be fatalthe hospital that are dealing with my liver cancer said they were happy with the scans apart from this clot I have. I told them I has always been there for over the year. so want me to start taking daily injections. Today Friday I recieved a phone call checking about my oesophagus varices bleed, and have said they need to look at another alternative to disolve the clot in my liver.. I did ask about why it's suddenly become a problem, when they knew about the clot over a year ago.

I am doing or meeting there requirements, but each time I find there putting obstructions in my way so In the long run time may run out before I even get to the midlands unit for transplants.

I know it's going to be at least three months plus as I am being ear marked for more more scans. seems the longer it goes on the more problems I am having.  I do wish my wife still alive today, she is the one who kept me sane

My husband portal vien thrombosis he has liver cancer only treatment they can give is target treatment I wish you well