Hi there, how are you feeling with your treatment now [@SMSM91]‍? Are you having chemo radiation? Or just chemo? Hope you're feeling ok and it'll be over with before you know it.
 

My partner is doing well, in week two of radiotherapy already, he's not getting any side effects so far but I'm sure they'll come! 

[@irate]‍ sounds like you are recovering well, great to hear 

take care all
 

Hi - glad to hear the treatment is going well. We seem to have started together.

I'm having chemo radiation for 6 weeks and just ending week 2. The side effects from radiation are very tolerable (thick saliva, change in tastes which is a side effect of chemo as well).

On the other hand chemo side effects are instant and keep me extremely nauseated the same night and tired the following 2-3 days. Anyway 2 weeks over and 4 more to go. We will fly throught this!

Take care everyone!

Seems everybody's doing ok which is great news.. it's now three weeks since I finished radiotherapy and I'm feeling better everyday and sleeping less. I really crave food, a big plate of food, I wish this flap would shrink faster.

Had my first covid jab a couple of weeks ago no issues cept sore arm. Neck going down dramatically with massage techniques which are very similar to just rubbing it.

Got appointment to see my max fax surgeon in about five weeks for scans etc.

Take it a day at a time

Good luck with your following appointments Irate! Hope all goes well and good to hear you're getting better everyday and hope the flap shrinks soon.

Have your taste buds and dry mouth got better as those seem to be the ones affecting me after the second week?

Yes taste buds are getting back to normal now as far as the dry mouth is concerned.

If my head is tilted to either side whilst awake or asleep no dry mouth otherwise gets dry.

I used the gelclair oral rinse gels all the time which the consultant prescribed for mouth ulcers but are great for keeping the mouth moist. I would ask for these now.

Don't know why but got some mouth ulcers appeared today

Got to see the dentist at the hospital as well soon suppose will need some kind of falsies unbelievable for a man in his forties !

Hello all [@irate]‍ / [@LDDR]‍ 

Finally half way through and 3 more weeks to go but I wish it was an easy week. My mouth is extremely painful and full of ulcers, taste is completely gone and I can only manage liquid diet and struggling with maintaining weight. On fortisips and esures but it was much easier at least for me post surgery than how I'm feeling now.

Strarted oral morphine which is helping with pain but being sleepy all day. Any way at least I'm half way there and hoping with gelclair ulcers would be managed. Will take it one day at a time and hope it gets better for everyone!

@irate how are you doing - hopefully getting some sort of normalcy?

Hi there [@SMSM91]‍ sorry to hear you're having a rough time, my partner is the same, painful ulcers, no taste although sweet and creamy things seem to still have some taste. Have you tried any sweet puddings instead of liquid drinks or is it too sore to eat solid food?

He's going to try and get some Gelclair this week from the hospital as heard that is good.

Just need to get through these next 3 weeks, it's a tough ride though but we'll all get through it!

How are you doing now [@irate]‍ ?

Hello [@LDDR]‍ / [@irate]‍  and All

And week 5 is over and five more fractions remaining. While things are not getting easier at least I know one more week remaining and can focus on recovery afterwards. It's been painful week fully dependent on the peg tube for feeding. Thick mucus is making everything harder so not sure if any one has any tips for that. 
 

how is everyone else doing?

Hi Gang

I'm doing well the lymphademia is a lot better still stiff on a morning but getting there.

Mouth ulcers gone just a slightly sore spot back of mouth at the top probably a burn from the radiotherapy.

Flap is shrinking but a way to go before solids food can be eaten and of course no back teeth.

I began tu gargle with salt water I'm not sure if it was responsible for stopping the mucus but soon after it stopped to be replaced with a dry mouth.

Keep ticking the days off your list..try tapioca to eat it's very easy and mix in extra cream and jam for more calories.

I've put on over half a stone since radiotherapy it was hard at first as radiotherapy drags you down slowly and batters you.

Keep going

Hi [@SMSM91]‍ [@irate]‍ 

Scott has had a very hard week with side effects, they did say the two weeks after would be tough and they didn't lie! I guess you're in the same situ [@SMSM91]‍? He's definitely lost weight and energy levels are low but hoping next week he might start to feel better. 
 

Good to hear you are getting on ok [@irate]‍ gives us hope