Merkel Cell Carcinoma

Recently diagnosed and struggling to come to terms with this.

anyone have any tips for coping or experience of what to expect?

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  • Hello, how are you doing?

    My dadhas been diagnosed with stage 4 Merkel cell carcinoma. He has had the tumor removed and also had 30 sessions of radiotherapy but he is really struggling. He also isnt telling us everything that is going on so we are finding it hard to help him. How did you cope with it all? 

  • Hi Kels44! 
     

    Sorry to hear your dads been diagnosed with Merkel cell. 30 sessions of radiotherapy sounds hard going - where is your dads cancer if you don't mind me asking? My dad is having his cut out in the next couple of weeks so very anxious time. Are you able to go to appointments with him so you can hear information first hand? 

  • Yes i am able to go to the appointments with him when they let me. Stupid covid gets in the way alot. We took him to hospital on thursday because he was in a lot of pain and nhave just found out that the cancer has spread. He is starting radiotherapy again today and then starting AVELUMAB immunotherapy. Its a very nervoud time. We are getting to the pioint of wanting to know what the long term outlook is going to be like.