Breast cancer diagnosis

Hello everyone 

I got my breast cancer diagnosis yesterday, it was expected but today has been a really hard day.

I really feel I will find it benificial to talk to ladies going through the same thing as myself as atm I feel so alone and feel that no one understands. I just feel some reassurance from other ladies would help me. 

I am currently waiting for an mri of my boobs and a ct scan which is adding to the wait! I've never wanted to surgery or medication so much in my life. I suffer with health anxiety so as you can imagine I am abit of a state atm.

Any reassurance, advice or just a chat would be mostly appreciated 

Xx

  • Hi Laura 

    so sorry

    It's tough to go through 

    I'm 4 years down the line 

    All I can say is stays off google 

    You shouldn't torture yourself with worst cast scenarios it really doesn't help 

    I know how unreal it all seems and it's the waiting which drives us all crazy 

    I can honestly say I've never had a days illness 

    mine was picked up on a routine mammogram 

    lots of biopsy's I had a big area of DCIS 

    and a tiny ductal invasion 

    this is not a death sentence I had to have a mastectomy due to the DCIS I had reconstruction straight away 

    home the next day and at my grandsons birthday party 6 days later with my drains pinned up under my blouse 

    I've had dark days people say oh you are so strong I'm really not 

    there is no choice but to get on with it 

    I didn't have any other treatment except some

    bone strengthening infusion every 6 months for 3 years 

    The pandemic must be making it more difficult 

    if you would like any more info I'm here 

    chin up you will get through it 

    xx Joan xx

     

     

  • Hello Laura,

     

    I am a little ahead of you, I have a date of 25th November for Masectomy, right boob 5cm mass grade 3 invasive ductal carsinoma, I had my pre op assessment yesterday. I swing from disbelieving and despair to hell I can do this. When you get told to keep positive I feel like screaming at them although I know they mean well.  On this site  there is a band of breast cancer warriors all in full battle dress and all looking ot for each other.

     

    huge love x x x

     

  • Hi Laura,

     

    I'm so sorry. I was thinking about you. I can't give you any advice as I haven't got my diagnosis yet. 

     

    I can say try not to think of worst case scenarios and don't Google but it's exactly what I keep doing. It's been helping me to talk to friends and family and try to stay occupied.

     

    Good luck!

     

  • Hi Laura

     

    How are you doing? So so sorry for your diagnosis. I'm a little bit ahead of you but am happy to chat whenever and answer any questions you have. I completely understand where you are coming from and how you are feeling. I think I looked at this forum 24/7 for answers and reassurance but what you have to know is you are in the best possible hands now and have taken the biggest step going and getting checked.

     

    I'm just over 3 weeks after a mastectomy and all lymph node removal. I'm recovering well and have found my arm movement is better than they said it would be. I see my oncologist next week and will get my treatment plan in place. I currently have panic attacks waiting to know what will happen but as soon as the plan is in place I'll have something to focus on. If you can try and  ask questions and record the appointment conversations you have if they allow it. 
     

    What I have found that worked for me is talking about how I feel, to my partner to my friends and family. Be honest and say if you don't feel ok, but also say when you do feel good and relish in those positive times. I am a very closed, private person but not any more. You mentioned you have health anxiety, I would speak to your breast care nurse and consultant and let them know and see if they can call you as soon as any results come back to save you waiting longer. I believe the waiting game is one of the parts of this. So be kind to yourself and look after you. 
     

    Best of luck and please stay in touch to how you get on. 
     

    Luce xx