Just been diagnosed with triple negative breast cancer hopefully will be starting my chemo in a few weeks,was wondering if there was anyone else going through this x
Hello Thankyou so much,sometimes can be a struggle and I haven't even started chemo yet,I will stay strong nice that people share what they are going through it does help,did not realise there are so many people that are or going through the same thing.Speaking about this does help me and knowing what I have to deal with in the future,I will make sure I beat this.Im glad that you have finished your treatment now happy times ahead,also when the Covid disappears x
Hi, my cancer was HER2 positive so I’m not the best person to comment but you should check out YouTube #Gettingwiggywithit she documents her triple neg carncer journey.
Hi there - I was diagnosed on 28 Oct with triple negative breast cancer. Was an unwelcome surprise to say the least as my GP and the radiologist at my initial ultrasound didn't seem concerned but needless to say as soon as I discovered the lump I was fearing the worst regardless of what the doctor thought. My CT scan and bone scan thankfully came back clear after a very anxious 10 day wait and so now I'm starting chemo next Wednesday. All the waiting for results etc is awful but once you know what you're dealing with it is a lot less daunting and you just gear yourself up for treatment.
I have 2 months of accelerated EC (fortnightly) and then 3 months of Carbolatin/Paclitaxel (weekly) to look forward to...! Not sure what's in store but will soon find out. I have decided to try the cold cap as personally don't want to look in the mirror and see an "unwell" person. Am prepared for it to not work but do want to give it a try. If anyone has cold cap tips, please let me know them!
I have two little ones and a full time job so not quite sure what I will be able/unable to do these next few months but my husband, family, friends and bosses are so amazingly supportive that they said to just play it by ear and that they're all there to help.
I met a lovely lady at my consultation this week. She was 60 with triple negative breast cancer. She asked me if I was just starting my journey and I said yes. She told me she had been having treatment since April and that she is hoping next week to "ring the bell" as she'll be finished. We both shed a tear. She looked amazingly well and was so upbeat and giving me tips that I just now think "I can do this, I'm 39 and look at this lovely 60 year old lady". I really hope I get to see her ring the bell on my first day of chemo. She told me that I'm now part of a club that no one chooses to be a part of but it's a very special, inspiring and brave club to be in surrounded by amazing people and I already feel lucky in a strange way.
If anyone is interested I'm happy to do a weekly update of my first two months and how it's going with the cold cap and chemo as if you're like me you just want to know what to expect. I keep getting told that everyone is different and will react differently but it's just good to read about other people in the same boat I think.
Anyway - this support group is so great to voice worries and seek advice and tips. I definitely feel more positive about everything having read these posts. We're not alone and we are surrounded by wonderful succcess stories.
Wishing everyone a lovely and worry-free weekend x
I would love to know you are getting on with your chemo treatment so far?
I think I am on a very similar chemo journey as you with 4 x EC fortnightly then weekly paclitaxel for 12 weeks but i just had my first one last week.
I was diagnosed in September with bilateral breast cancer, had double mastetctomy in Oct then lymph node clearance in Nov. I'm 36, mum to one very busy 18 month old! I really had got my head around it all and was feeling very positive post surgery but then finding out I then had chemo to contend with really knocked me. I am so relieved to have the first one over now and it wasn't as awful as I was expecting it to be, so far thankfully. I am sure it will get tougher but can't ask for more than that at the moment.
I used the cold cap last week and didnt find it totally unbearable but assume that it gets harder as time goes on??
Currently trying to decide whether to cut my hair ahead of next chemo which is next week. I don't have an appointment for wig fitting until next week and don't know whether should wait until after that before deciding on what to do hair wise but don't want to leave it too late either as afraid I might not feel as good next time round and its getting very close to christmas!
Hi there, sorry for late reply! Hope you're doing well.
I have my 3rd EC session this Wed. The past two sessions have been surprisingly ok with me feeling ropey the day/evening (nausea/headache/grogginess the first time, just headache and grogginess the second time having been given an extra anti sickness tablet) with me feeling relatively nornal by the next afternoon. I tend to have a dodgy tummy for 4/5 days in between sessions but I'll take that! My tastebuds have changed and certain foods aren't as nice as before plus water can sometimes taste metallic but have just been switching between various cordials. I have cold capped and am not entirely sure how successful it's been as the past 5 days have lost a fair amount of hair not that anyone would notice yet. Hoping I can get away with having hair still over Christmas but seem to shedding hair each day! I too should have a wig consultation but haven't organised anything yet. I have 4 fortnightly rounds of EC and because I'm triple negative/BCRA 1 positive I switch to Paclitaxel/Carboplatin in Jan and will have 12 x weekly sessions.
Sending this now but stay in touch and let me know how you're doing?x
Hope you are doing well and managed to enjoy the Xmas and New Year. How are you getting on,? Are you finished EC now?
I had my 3rd EC on Friday. Happy New Year!! Had a good Xmas in between though so wasnt bad. So far have lost a lot of body hair and have started losing hair on my head though it's not too much yet. Trying to avoid washing my hair as much as possible which fortunately in current climate is easy as not going anywhere that doesnt require a warm hat! It took me a bit longer to come around after this 3rd session but getting there. Not sleeping isn't helping matters thanks to the steroids I think. One more EC to go then weekly Paclitaxol for 12 weeks. Have heard it's not as bad side effect wise as EC which is making me feel better about it all though I am sure it is different for everyone. I do think I've got off fairly lightly with EC so far so fingers crossed that keeps up. Have you started Paclitaxel yet?
Hope you are keeping well anyway in these testing times. Have covid anxiety going through the roof now too and not comfortable sending little guy into nursery at the mo so a long month or 2 ahead but just looking forward to getting to the other side as soon as possible.
