Invasive ducal caricima grade 2 er positive and her2neg.

Hi . I was recently( 2 weeks ago) diagnosed with breast cancer. I had a core needle biopsy   the week before  and going by my family history I just knew I had it. ,as my family history of aunts mother big sister all had it.  So it wasn't not expected at some point. 

I had the wide local excision  and slnb done on the 4th aug. I was supposed to have got my results from the doctor last Friday but the pathology report had just arrived Thursday afternoon and the consultant didn't want to give me the report before the MDT   had went over it all first. However I'm sitting here all hours of the day and night , searching everything with  Dr google  and going crazy. I  AM going to fight it, just  as the females in my family b4 me have.its  Just i hate this waiting.  Not knowing anything  how and when did you all find out about your cancer and what treatment you would be having?   Thank you. Xx

  • Wow veroni1 - well I'll definitely not be forgetting your birthday this year! I know exactly what you mean about weird thoughts and it's comforting to know that we're all going through the same and can support each other.

    What date is your appt?

    i did chuckle at your sinkers and floaters!!!! That's definitely a new one on me ha ha - I think I would have been wondering if I was In the wrong clinic at that point.

    fingers crossed for your appt.  I think there is something comforting about having an actual full diagnosis and treatment

    plan - at least you can mentally prepare yourself for journey ahead 

  • Oh sorry lol I  thought I had explained that part.  When they did the core biopsy the bits they got would either sink to the bottom or float to the top. I had read that that if is sunk it was cancer  and floated it was fatty tissue

      But I can debunk that as I had 3 sinkers and 1 floater. They all had cancer in them

     .  that's why I kind of knew I had cancer along with my family history. Just have to wait to see if I get chemo like my sister did. X

  • Had  my pathology report yesterday. I had a 15mm invasive ductal caricoma  and 1lymph node had cancer also. So they are giving me 6months of chemo a round every 3 weeks, then 19 rounds of radiation therapy then  hormonal medication for 5 years.  Have an appointment to see the oncologist on wed 26th Aug. .  still feel like I'm in a bubble as I've not been upset about this yet , mentioned it to my breast care nurse who said the bubble will burst when I Starr having chemo as then I will look and feel like a cancer patient.   Ehich I hope not.   I hope that I won't break down as in a easy I've been waiting on this to happen. X  anyways. I shall be following your journeys and chatting to you all so we don't feel alone through this. Xxx

  • Hi Veroni1.   I'm sorry.   Was hoping it would have better news for you!   How are you feeling this morning?     I know what you mean about bubble.  But I don't think there's a right or wrong way to feel - at the end of the day it's just a *** time.    Hey if you need to have a melt down at some point then you bloody have a melt down . And if not then hey Hum. Do you know when you Chemo will start or is that to be discussed on 26th.     Sending you virtual hugs and keep posting.   We can support each other!   One thing I've found this week is this site is a godsend.   I feel like I can actually talk honestly here - whereas I feel stupid talking about my diagnosis with other people.   I almost want to laugh when I tell people - because the words sound so stupid xx

  • same process and dx, I couldnt have radiotherapy due to a previous implant for a congenital chest abnormality (Poland syndrome) which meant r breast never grew properly and ribs that side went in not out. anyway, eventually decided on mastectomy plus reconstruction, and as surgery was 3/12, \I had to wait weeks for my oncotype dx results to come back from AMerica. dk why they were sent there, basically think it was to see if chemo would offer any advantages. I get you when you talk about the pain of waiting. and Doctor google, I have access to academicv medical literature via my job. so when the oncologist asked me what I knew and what I was hoping for out of the conustlation, I told him a score of under 26, and he beamed.  I have just had bog standard nursing care and exemestane (they switched from anastrazole as it seemed to cause more aches and pains. and being arthritic that was not helpful), so ticking along. hope you get a good outcome. my sentinel node was neg, also HERneg.  worst thing was pains from physio exercises on my other side, they sent me for bone and ct scans cos the pains when examined were really bad, we now think it was pulled muscles from yoga exercises the physio gave me. good luck.

  • Hi. Sorry for the late post. Well had my oncology appointment on the 9th sep. Finally got the start date for the chemo. St arts on wed 23rd sep. Had to have a heart scan and then a bone scan as my alkaline phosphate was high. Just waiting  on results for that.  Anyhow.  Hope you are all doing OK. How was ur op digger girl? Hope it went well and ur not in to much pain. X

  • Hi Veroni1.    Good to hear from you.  I won't lie It's been a roller coaster 2 weeks physically and mentally.  Waiting for results is just mental torture!  Despite religiously doing post op exercises I've got cording which is "blinking" painful and small sarcoma under arm that seems to get bigger throughout day.   So two weeks in still struggling but getting there.   I had my results on Friday.   Still grade 2 but was bigger than originally thought - 15mm rather than 10mm.   6 lymph nodes removed - all clear (thank god).   "Just" managed to get clear margins too (3mm!).   Someone was smiling down on me During surgery ️.   I've been told 20 sessions of radiotherapy (5 extra boost) and 10 years on anastrozole (hysterectomy last year so classed as post menopausal).   HER2 still inconclusive despite ISH and FISH so are retesting following surgery but told irrespective I won't need chemo.   Obviously delighted!  But surprised as NICE guidelines suggest at 15mm "if" HER2 positive then should go chemo but I'm taking it that they know what their doing and if I can avoid it then so be it.  Results were with BCN after MTD so Im assuming things won't change.   I keep reading about people meeting with their oncologist but I don't have any appts?   Just told that radiotherapy would be in touch for telephone consultation and await bone scan appt?!?!?  How are you feeling?   And importantly how are you feeling about Wednesday? X

  • Hi Veroni1.    Just wanted to drop you a quick line to say good luck today (I think it's your first chemo session).   Hope everything goes ok and I'll be sending you lots of positive thoughts xxx

  • Thank you digger girl, it was my first session. Was supposed to be at 10 am but they called me as my doctor had not put in for my cocktail so they added Mr to come in at 1 pm instead.    As u can! Imagine I was a wreck. I ended up picking and buying my lovely long nails down so much I've gave myself a sore thumb lol. 

    Anyhow turned up and was sitting with another lovely lady who had only been told yesterday that she was starring treatment today so we hit it of ,as we both walked into the unknown together.  They gave me   a new set if anti sickness pills as the original ones  would interveir with my other meds I am on.. I was warned the new ones make you drowsy so no driving ,which is good as I'm not intending to strep out of the house apart from  doc and hospital appointments. 

     I never got the chemo in a drip, I had the saline solution but the chemo was in big syringes (6) in total. It feels cold as soon as it enters the cannula ( mines was in my hand ) so all in all feeling fine. Slight headache and tired.   Was told hair loss will start this cycle and will lose it all by the second one. So have my appointment booked to puck a  wig. next wed.  Also decided I'm going to shave in of when it starts falling out. Don't think I can manager with it falling out through time. 

     How arrived you doing? Is the cording easing up a little yet?    Its so good to talk to someone other than a nurse or family so thank you. Take care x

  • Hi Veroni1.   I'm glad everything went ok on Wednesday (as well as can be expected) and I'm so pleased you were able to meet up with another newbie!    I think having people who can really understand what your going through is so important.   I've found reading the stories on this site unbelievably helpful and have kept me positive.   Also being able to post and just air some of those thoughts, questions or feelings and not feel judged or stupid is sooooo healing!

    Hopefully your feeling ok (a few days on from treatment)?     Can't wait to hear about the wig you decide on.   Will you go for something totally different, radical or try and get close to your existing style/colour?    
    I completely understand you wanting to shave beforehand.

    so, I had my consultation with oncologist today and I feel so much happier.   Was able to ask lots and lots of questions - particularly around the HER results and why no chemo and Herceptin.    The good news is my er and pr results were 8/8 so about as positive as you can get and therefore I will respond VERY well to the hormone therapy on its own I'm am soooooo pleased I cant tell you!   Feel like I'm floating on air today.   The oncologist was brilliant.   Explained everything so thoroughly - I was nervous that he might think I was being a pain in the ar$e but he was really great and put my mind totally at ease.   Radiotherpy should start around 19th (got my scans and tattoo appt etc etc on 6th).    The journey begins .  Cording is easing slowly.   I'm back at work this week - couldn't stand the day time TV ANYMORE.   Although I have to admit I did become addict to "married at first site - Australia" during my time off.  That's when I knew I needed to get back to work .  Stay safe, and hope your doing ok xx