Breast cancer stage 2

Hi 

I am 49 years old I have stage 2 breast cancer, I've had a lumpectectomy done already where a 2cm tumor was removed,

Results IBC cancer HER2 Negative ER8 & PR 8  cancer has gone into 5 lymph nodes 

Monday 3rd August 2020 I had total Axillary lymph node clearance and breast reconstruction, 

 

On my Bone and CT results my bone were clear but my CT had detected very small nodules on my lungs 

I am trying to stay as strong as possible for my husband who has just had a full Stem Cell Transplant,  my mum son and sister are so worried 

 

But I am terrified my BC has gone into my lungs 

I am so scared TBH I know if it has then my condition is not curable it has Mestatsized, 

Can someone please tell me could these nodules still be benign I have to wait 3 mths for a CT scan 

I'm in so much pain from Operation, I'm crying with worry every day, 

If a consultant writes chronic as well on discharge form is this bad? 

 

Thank you 

 

 

  • Hi Cath45

     

    Sorry to hear your in pain post op. I had a bilateral lumpectomies and reconstruction and luckily had no pain associated with the operation. Have you discussed the pain with your breast nurse?

    I think a lot of us breast ladies worry about spread but so far you've got the all clear on bones as for the small nodules on the lungs, these are fairly common and doesn't mean your cancer has spread. I had a look online and found this

    www.wsh.nhs.uk/.../5706-1Informationaboutlungnodules.pdf

    hope it provides you with some reassurance. 

    Difficult to say why 'chronic' is written on your discharge letter without the context but cancer is a chronic condition and will require further treatment - so perhaps in relation to this? If its really bothering you, you could ask your GP to explain.

    Try not to jump to conclusions, they won't help you. Your doing well so far, you've come through the operation and you should find it heals in the coming weeks. So now its the next stage of treatment but you'll get through that too.

    Take care x

  • Hi

     

    Im sorry to hear you are going through so much pain but it will start to ease.  Do speak to your nurse to see if they can give you anything else to ease the discomfort.

     

    Like you, Im 49 years old and 2 weeks pro mastectomy.  Ive just had my results and was told Im now grade 3 as its spread to my lymph notes so waiting on a ANC on 10 Sept.  Im in complete shock as I was told my ultrasound and MRI there was no sign of spread. 

     

    Ive  now been referred for a CT scan so Im petrified its spread further.   Cant sleep and just think the worst.  I know they are doing this to be thorough and to determine my course of treatment but this waiting is a nightmare!  How soon did you get your CT date and results?

     

    Ive already had an Oncotype check and my recurance score is very low so was told Chemo wouldnt be suitable but this may now change depending on these new results.

     

    I just dont know how im going to manage this but know I need to be strong for my husband and two girls.

     

    Good luck with everything.

    x

  • Thank you for writting back I am usually a very strong willed lady, I will not let this beat me I will fight it hard 

     

    And with what I have been through with my husband already this year he had aggressive myeloid leukemia 

     

    The pain is very bad Im afraid from surgery, I'm right handed as well which is not helping, 

     

    Xxxx

     

  • They have not given me a date as of yet for my CT scan, just said it will be 3 mths time, 

     

    I wish you beautiful woman speedy recovery like me, 

    Talking to other ladies with same condition helps xxx

  • Hi Cath45

     

    I 'm sorry to hear about your husband, what an awful year for you all. Glad your strong willed and up for a fight, I found handing all of that over to the specialists to fight on my behalf far more beneficial and I just focused on being positive, which took me a long way plus a sense of humour works well too.

    Where is the pain? I did experience a little pain from the lmph nodes removal sites but it went after about a week but no pain in my breasts. I would take this up with the nurse or GP.

  • I've been to CN this morning they have removed drainage bag and attached what looks like a colostomy bag to collect any fluid,

    I feel a bit more at ease as the drainage tube was hurting, 

    I had nipple reconstruction as all my nipple was removed its very tender to the touch, 

    And underneath my arm I had lymph nodes and some mussel removed they took 40 lymph nodes Axillary nodes out, 

    I do feel a bit more better since nurse as seen me now, 

    As last op being lumpectamy I got a really bad infection and hematoma which was awful, 

     

    I'm going to bed now and to lay down for a few hrs, 

    Thanks so much xxx

     

  • I had axillary lymph node clearance  and some mussel removed,

     

    I have fibromyalgia  which does not help, And epilepsy

     

     

    Xxxxxxx