Tonsil Cancer HPV Swollen Lymphnodes

Found large lump in neck at end of April, after initial Ultrasound, then Endoscopy and Biopsy, leading to MRI and CT scans. Diagnosed as having cancer coming from Right Tonsil and spread to Lympnodes. Cancer is HPV related. Full prognosis given on 16th June.

Scary and concerning time from realising I did have cancer on 14th May before I heard on the 16th June what was actually wrong.

Specialist positive that they can cure the cancer, through planned 6 weeks of Chemotherapy each Monday from 3rd August, and Radiotherapy Monday to Friday for 6 weeks also, starting on 3rd August also.

 

lots of appointments and video calls, fully explaining all the steps and stages going forward. NHS Scotland have been brilliant, very informative and caring/supportive. 
 

Scary thinking the possible side effects, but imagine everyone is different, so will do as I am advised and hope and pray that outcome is the best possible.

 

Just had 7 back teeth removed as precaution from possible side effects of Radiotherapy. Radiotherapy moulded mask has been made also, which was ok, but required to keep head in place for the Radiotherapy 

 

Peg Tube being fitted on 22th July, as Throat will get sore during treatment, so might need to use this to feed myself, as important to maintain weight and strength. 
 

Swallowing exercises have been given also, to try and strengthen swallowing, again to help the long term during and after Radiotherapy. 

 

Busy now trying to get as many tips to help during treatment and recovery. 
 

Never failed at anything, do not plan to start now..

 

bobby. 

  • Hi Michelle

    Hopefully you won't have to wait to long after extractions before treatment starts think it about 10 to 12 days, I feel like I've been waiting forever but had a lot done in that time just want to get started. I think there's 2 types of feeding tube but a bit confused with it all now my heads going to pop with all the info lol, let me know how he gets on hope all goes well

    Alli x

     

  • Hi Alli 53 

    lbe  just seen your friend request if i can help please ask. I am now 33 month post radiotherapy for tonsil cancer with several affected lymph and living my life to the  max. Remember h p v positive is an imminently curable Cancer. The treatments brutal can’t lie but if I can do it anyone can .I hadn’t the n g feeding tube. My chemo was also delivered in larger doses was due for 3 but in the end had 2 and 35 radiotherapy sessions .if I can help please contact 

    regards Hazel my blog is www.radioactiveraz.wordpress.com 

    dont be scared it’s hard but doable 

     

  • Hi Hazel

    Thank you for replying I can't say I'm not worried but I'm staying positive and I've read a quite bit about side effects of the treatment which is scary but if it will get rid of this then I'll try anything, its great to hear from someone that's beat it how did you manage without the feeding tube

    Alli x

  • Hi alli I had n g the nasal feeding tube at week 4 of treatment then wad taken out eeek 3 of recovery. I managed to eat until week 4 then hit the wall. After it was taken out I had ensured tgen started slowly introducing food. 
    hazel x

  • Hi Hazel 

    Just about to go on your blog, I'm in today for dental assessment and mask fitting they are doing a scan not sure if its head or full body, I'm scared now that its spread its been a while since I had last scan and I can feel a lump between my breasts and down sides of them is sore to, as you can gather not slept I'm getting picked up at 7 to go to hospital, going to be a long day.

    My story is I'm 53 like the odd glass of wine but not a big drinker packed in smoking 18 years ago, I noticed I had one tonsil bigger than the other sore throat so finally went to gp end of Feb spent next 3 weeks seeing consultant getting scans covid swab then tonsil biopsy, that was at one hospital was told I was getting transferred to another hospital for surgery, was called and told it was cancer,  then waited again to see consultant there then back in for camera down throat was then told they couldn't surgically removed it more waiting and now finally getting closer to treatment but its been 2 months waiting around so I'm scared what they will tell me, sorry that went on for a while lol

    Alli x

  • Hi Ali how did the mask making go ? If you want to send me a friend request we can chat privately? I'm ok either way. 
    Hazel x 

    ps don't stress it's highly unlikely tk have spread do you know your h p v status ?