Tonsil Cancer HPV Swollen Lymphnodes

Found large lump in neck at end of April, after initial Ultrasound, then Endoscopy and Biopsy, leading to MRI and CT scans. Diagnosed as having cancer coming from Right Tonsil and spread to Lympnodes. Cancer is HPV related. Full prognosis given on 16th June.

Scary and concerning time from realising I did have cancer on 14th May before I heard on the 16th June what was actually wrong.

Specialist positive that they can cure the cancer, through planned 6 weeks of Chemotherapy each Monday from 3rd August, and Radiotherapy Monday to Friday for 6 weeks also, starting on 3rd August also.

 

lots of appointments and video calls, fully explaining all the steps and stages going forward. NHS Scotland have been brilliant, very informative and caring/supportive. 
 

Scary thinking the possible side effects, but imagine everyone is different, so will do as I am advised and hope and pray that outcome is the best possible.

 

Just had 7 back teeth removed as precaution from possible side effects of Radiotherapy. Radiotherapy moulded mask has been made also, which was ok, but required to keep head in place for the Radiotherapy 

 

Peg Tube being fitted on 22th July, as Throat will get sore during treatment, so might need to use this to feed myself, as important to maintain weight and strength. 
 

Swallowing exercises have been given also, to try and strengthen swallowing, again to help the long term during and after Radiotherapy. 

 

Busy now trying to get as many tips to help during treatment and recovery. 
 

Never failed at anything, do not plan to start now..

 

bobby. 

Parents
  • Hi Bobby

    I've just been diagnosed with tonsils cancer that's spread to lymph node with hpv I've had biopsy scans and just been in for camera and they said they can't operate, still hoping its curable and I'm so scared waiting for decision from board how are you doing now  is your treatment finished 

    Alli x

  • Hi Alli 53 

    lbe  just seen your friend request if i can help please ask. I am now 33 month post radiotherapy for tonsil cancer with several affected lymph and living my life to the  max. Remember h p v positive is an imminently curable Cancer. The treatments brutal can’t lie but if I can do it anyone can .I hadn’t the n g feeding tube. My chemo was also delivered in larger doses was due for 3 but in the end had 2 and 35 radiotherapy sessions .if I can help please contact 

    regards Hazel my blog is www.radioactiveraz.wordpress.com 

    dont be scared it’s hard but doable 

     

  • Hi Hazel

    Thank you for replying I can't say I'm not worried but I'm staying positive and I've read a quite bit about side effects of the treatment which is scary but if it will get rid of this then I'll try anything, its great to hear from someone that's beat it how did you manage without the feeding tube

    Alli x

  • Hi alli I had n g the nasal feeding tube at week 4 of treatment then wad taken out eeek 3 of recovery. I managed to eat until week 4 then hit the wall. After it was taken out I had ensured tgen started slowly introducing food. 
    hazel x

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