Tonsil Cancer HPV Swollen Lymphnodes

Found large lump in neck at end of April, after initial Ultrasound, then Endoscopy and Biopsy, leading to MRI and CT scans. Diagnosed as having cancer coming from Right Tonsil and spread to Lympnodes. Cancer is HPV related. Full prognosis given on 16th June.

Scary and concerning time from realising I did have cancer on 14th May before I heard on the 16th June what was actually wrong.

Specialist positive that they can cure the cancer, through planned 6 weeks of Chemotherapy each Monday from 3rd August, and Radiotherapy Monday to Friday for 6 weeks also, starting on 3rd August also.

 

lots of appointments and video calls, fully explaining all the steps and stages going forward. NHS Scotland have been brilliant, very informative and caring/supportive. 
 

Scary thinking the possible side effects, but imagine everyone is different, so will do as I am advised and hope and pray that outcome is the best possible.

 

Just had 7 back teeth removed as precaution from possible side effects of Radiotherapy. Radiotherapy moulded mask has been made also, which was ok, but required to keep head in place for the Radiotherapy 

 

Peg Tube being fitted on 22th July, as Throat will get sore during treatment, so might need to use this to feed myself, as important to maintain weight and strength. 
 

Swallowing exercises have been given also, to try and strengthen swallowing, again to help the long term during and after Radiotherapy. 

 

Busy now trying to get as many tips to help during treatment and recovery. 
 

Never failed at anything, do not plan to start now..

 

bobby. 

Parents
  • Hi bobby

    this is Hazel I am almost 2 year since post radiotherapy for right tonsil cancer h OMG with several affected lymph nodes the treatment is pretty brutal no,point lying recovery can be long .but a postive mental attitude got me through it. If u can help just shout I have a blog www.radioactiveraz.wordpress.com with links to other blogs and sites if u want to chat send me a friend request if I can do it anyone can.

    hazel x

  • Thanks for your reply Hazel.

     

    Jenn suggested to read your and few others blogs.

     

    So will finish reading that today, did read a few others also yesterday, so all 3 were slightly different but some common themes also.

     

    Especially good to see some potential things to consider to help with treatment and recovery, appreciate everyone is slightly different and as you mentioned this is a life changing moment not a journey. 

     

    Few weeks before all kicks off for real, so trying to get prepared as much as possible just now. 

     

    Admit after reading the blogs, it certainly hit home a tough time Especially with the mouth and throat is ahead, which is a little scary, but necessary to get better.

    Interested to read that some evidence to show HPV could be passed at birth as opposed to previous relationships. 

     

    Thanks again for your reply, i think i have already sent a friend request...

     

    Thanks again

     

    Bobby

     

Reply
  • Thanks for your reply Hazel.

     

    Jenn suggested to read your and few others blogs.

     

    So will finish reading that today, did read a few others also yesterday, so all 3 were slightly different but some common themes also.

     

    Especially good to see some potential things to consider to help with treatment and recovery, appreciate everyone is slightly different and as you mentioned this is a life changing moment not a journey. 

     

    Few weeks before all kicks off for real, so trying to get prepared as much as possible just now. 

     

    Admit after reading the blogs, it certainly hit home a tough time Especially with the mouth and throat is ahead, which is a little scary, but necessary to get better.

    Interested to read that some evidence to show HPV could be passed at birth as opposed to previous relationships. 

     

    Thanks again for your reply, i think i have already sent a friend request...

     

    Thanks again

     

    Bobby

     

Children
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