Breast surgery

Good morning everyone LUMPECTOMY OR MASTECTOMY?I was diagnosed 17/3/20 the day my world was turned upside down however due to covid 19 surgery was put on hold so I was put on letrazole coping ok with them flushes are the worse lol anyway was due back at hospital on the 18/6/20 but got a call from my surgeon to say surgery is now brought forward to 9/6/20 which is scary but great that things are progressing , my worry is that I'm very depressed with all of this I keep fearing the worse what if they find more what if they can't cure it my head is all over the place I'm having a lumpectomy but was wanting to know if anyone has asked or been offered a mastectomy instead I feel that I just want the whole breast of that way it's all gone any advice would be helpful Thankyou .

  • Good morning, 

    I am recently diagnosed grade 3.... more results on Tuesday .... so not quite where you are. But I've had similar thinking so I get what you're saying. Massive decision and right now I want them both gone so I can get back on with living my life.

    Fear and the what ifs are like cancer.... they grow and mess with your head. Anxiety is rancid and vile.

    I would encourage you to trust yourself and know you'll make the right decision for you. You might not always feel it but you are strong and able. Trust in what you feel is right for you and your body and look to getting past the operation and becoming an even more brilliant version of yourself.

    Semding you live, positive energy and hugs x 

     

  • Hi Sandra, I presume you are Sandra,

    i was diagnosed last autumn before all the delays etc and I opted for a mastectomy- although my surgeon offered me a lumpectomy and reduction on the other breast, promising me the pert breasts of a twenty year old. Instead I opted for a mastectomy and even wanted a double mastectomy.  I begged, pleaded, cajoled and argued for so long,my daughter who was with me, finally said, "Give up, Mum, he's not going to do it!"  He said there were protocols he had to follow that didn't allow him to remove a healthy breast.  

    To cut a long story short(ish) I had the mastectomy with sentinel node biopsy in October. Unfortunately I had to have further surgery a month later for lymph node clearance because the surgeon felt something in one of the sentinel nodes.  That could have happened whether I had lumpectomy or mastectomy. He was mistaken! The nodes were all clear.  I didn't require radiotherapy because I had the full breast off.  In fact the surgeon did say he was glad I had opted for that because the tumour, which was a lobular one, was bigger than first expected.  Apparently they are a bit harder to measure pre-surgery than others.  I wasn't offered chemo therapy, happily, I might say. I was prescribed hormone therapy that I was loath to take initially because I had read about terrible side effects, but mynGP talked me into taking it and I can't say I'm bothered too much by the side effects  

    Six months down the line and my six month checkup was done by phone!!!   I have a slight problem with fluid retention in my surgery site, for which I am waiting for.laser treatment at the lymphoedema clinic. Again, that's on hold because of the lockdown but in all other respects I am back to my old self.  Prior to discovering my cancer I had been a bit worried about the fatigue I had been feeling, wondering if I should ask the doc for a blood test in case I was anaemic.  Once I got my diagnosis it explained a lot of things.  Now I'm back to walking the dog, gardening and enjoying life as much as lockdown allows. 

    Obviously there are considerations to be made about your own situation, I just wanted to give you an example of life post mastectomy!

    Christine x

     

  • Hi Sandra, thank you for the post.  AS Ihave been undecided on all counts.Redaing from others has been very helpful and have felt that I am not alone.

  • I wasn't given the option of having a mastectomy and some lymph nodes removed from under my arm. I was very worried before but according to the feedback on here the surgery is straight forward which does not require a long hospital stay so less worried now although everyone respond in their own unique way. When I was diagnosed and my treatment plan discussed I too wanted them to remove both breasts but they won't remove a healthy breast like someone has said already. 
    What a choice but there is lots of info around but getting advice from someone who has experienced it is better. I'm sure you'll make the decision that is best for you good luck x

  • Hi all, 

    I had mastectomy and sentinel mode check 2 weeks ago today.

    The surgery was straight forward....I had a expander put in for reconstruction at a later date.so have my own skin with a 4 inch scar and no nipple.

    I was home at tea time the same day and can honestly say I have took nothing stronger than paracetamol since and that was only first few days for the ache under my arm.

    I know each person reacts differently to surgery but it is straight forward and for me it meant that it was gone x 

    Hope this helps 

    Hayley xx