Feeling numb after diagnosis

Following a large tumour being removed from my partners colon on May 1st, he had a diagnosis last Thursday. He was told that the oncologist would call to discuss results next Thursday , however he received a call before that from a cancer care nurse regarding his wound from the op. She then proceeded to tell him that his tumour had been staged as a t4 n2 locally advanced . She could not explain really anything about it just that the oncologist would explain next week and tell him about survival rates and treatment.

we went straight on to the internet and are now seeing that he had only about 10% chance of surviving 5 years. We are in total shock. A diagnosis straight out of the blue and our minds in complete mush. A week seems a long time to wait to speak to the oncologist and the constant surging the net for answers 

Thank you

  • Thank you David for taking the time to give us some clarity to my partners diagnosis. I think the trouble is that hearing the diagnosis and hearing stagec4 and advanced I just went into google overdrive

    i do remember she said that they didn't have a clear margin . I didn't remember the localised until after as it was like being  in a dream. 
    I think I've pulled myself so far down that I'm not seeing things with clarity and am catastrosising everything and am of no use at the moment . 
    I googled localised advanced mistake number 105 and it wasn't good reading .

    please stop myself googling and getting further down x

     

     

  • Hi Lisa, 

    I'm sorry to hear about your husbands diagnosis. It sounds as if this is a really difficult time for you at the moment. 

    I can see that some of the lovely folk here have give you lots of support and some useful information. 

    I wanted to add to what they've already said by suggesting that you give our team of  nurses a call tomorrow. It might do you good to talk things through with them as I'm sure they will be able to answer some of your questions and clarify some of the points too. They are available on 0808 800 4040, 9am to 5pm. Honestly Lisa, I'm sure that it would help if you give them a call. 

    You might also find it useful to write down all  your questions and queries. I know that if I can get things down on paper it helps to clear a little more space in my head. 

    I hope that you're able to find some moments today where you feel less anxious about things. These early days are always difficult but I nkow the community here will continue offering you lots of support. 

    Best wishes, 
    Jenn
    Cancer Chat moderator

  • Thank you for that Jenn,

    I can't ring at the moment as I don't want to upset my partner. 
    I am going to keep busy today, away from the internet and countless panic moments

    thank you to everyone for listening 

    Lisa x

     

  • Hi everyone.

    i got motivated today. Cleared out a fishpond and made lunch. I haven't googled once and for a few hours it has felt like nothing is looming over us. 
    mom not expecting it to last but it's been a real bonus.

    thank you everyone

     

    lisa x

  • Lisa - thank you so much for this update! Really pleased you managed to do something so satisfying  - clearing out the fishpound (wow!) and you got lunch. Well done!

    My day has been quite mundane by comparison... still got work to finish.

    Really good to hear from you. Hope the evening goes well.

    Take care and lots of hugsx

  • Well done Lisa. 

    A proper bit of normality, don't suppose you had fish for lunch, haha. 

    Glad it's improving you'll have to get in garden more often. Well done. 

    Best wishes. 

    Billy 

  • Thank you 

    I'm going to take the dog out later and hope the black cloud stays away. 
    big hugs lovely people x

  • Thank you billy . No I didn't eat any fish!! But at least I can see them now so I feel better

    A good day 

    Lisa x

  • It's a lovely evening for a walk.

    I find watching fish so restful... you did such a wonderful job today!

    Blue skies here still and a lot of birdsong. 

    Big hugsx

  • Thanks everyone for your support today. It's been a good afternoon. I'm feeling a bit sad tonight but all in all not as bad as the last few days. I've worked myself up into a frenzied panic stemming from stage four 

    I'm so pleased I've found this place to chat to people that understand. It has been so helpful

    thank you all so much. 
    I hope to be able to keep up positivity until the dreaded Thursday 

    thanks x