Feeling numb after diagnosis

Following a large tumour being removed from my partners colon on May 1st, he had a diagnosis last Thursday. He was told that the oncologist would call to discuss results next Thursday , however he received a call before that from a cancer care nurse regarding his wound from the op. She then proceeded to tell him that his tumour had been staged as a t4 n2 locally advanced . She could not explain really anything about it just that the oncologist would explain next week and tell him about survival rates and treatment.

we went straight on to the internet and are now seeing that he had only about 10% chance of surviving 5 years. We are in total shock. A diagnosis straight out of the blue and our minds in complete mush. A week seems a long time to wait to speak to the oncologist and the constant surging the net for answers 

Thank you

  • Thank you. I really appreciate the time and kind words I really do. I'm actually waiting for replies to pop up as they are so comforting to know we are not alone in all this 

    please keep in touch with my ousts

    thank you

    lisa 

  • When we get talking to people on the forum we often start thinking of them as family, the forum is like one big family everyone looking out for anyone who is struggling to cope and getting them back to the fold and well looked after.

    Glad you've stopped googling lately. 

    Remember if you want to talk anytime there's probably someone nearby to reply. Hope you're looking after yourself properly. 

    Billy 

  • Billy ,

    that's what it feels like , this is a family and I hope to be part of it. Since Thursday I haven't really eaten just drunk too much alcohol that was the thing getting me thru all this. From first problem last September to diagnosis last Thursday we've kept going but the diagnosis too much to take. At least I've managed to get up and tidy a bit and make some lunch. Little things . My partner is seeming like it's not affecting him . Got to stop drinking, a bottle of wine before teatime is not good .

    thank you for welcome to the family 

    even though I've only been in here a couple of days it's really made a difference

    thank you

    lisa 

  •  

    Hi Lisa,

    I am glad to see that you have already got connected with some stage 4 guys who have been fighting their 'uninvited guests' for years and, are still living a fulfilling life. I myself have had 2 bouts of breast cancer in the past 11 years. I lost my mum to breast cancer 10 years before I was diagnosed and, cannot believe the advancement in treatments and general cancer care since then.

    I am glad to see that you have stopped consulting 'Dr Google'. Much of his information is out of date, poorly researched and aimed at the spectacular, so it is scary stuff and doesn't advance your knowledge of what you and your husband are actually facing. There are so many unknowns for you both at the moment. You will feel better once you know exactly what you are up against.

    As you have gathered  from some of the posts you've already received, a positive, 'can do attitude' is essential to get through this. You will get the support you need on this forum. I found that the support I got from this forum was absolutely invaluable, especially in the early days, when I was floundering with tests, results and treatment options. It makes such a difference to hear from people who know what you are going through, because they have experienced it for themselves.

    You might find it helpful to draw up a list of questions for your consultant before the telephone consultation on Thursday. I do this before every appointment, as it is all too easy to forget important questions in the heat of the moment. This will be a hard year for both of you, but you will get through it.

    Your role in this is a difficult one. You want to support your husband, to be there for both the good and the bad days. Try to keep communication channels open between the two of you. Be totally honest with one another about your hopes and fears. Together, you will get through this.

    I shall be thinking of you both on Thursday and, hope that after that, you will have a clearer view of the way forward. We are always here for both of you.

    Kind regards,

    Jolamine xx

  • Hi Lisa, Just to say hi, and hang in there until your 28th appointment. Stage 4 colon cancer can sometimes be treated with curative intent (which is not the case with most types of Stage 4 cancer). Here's hoping your husband is one of these cases. Best wishes, Harry

  • Thank you for your kind words. I think the trouble has stemmed from the basic details the nurse gave us ie maybe some cancer left, spread to lymph nodes , large tumour that may have not been all removed and advanced localised. So I've just google and scared the **** out of myself. Stage 4 is scary as that's the news we never expected. Thank you for taking the time to message me 

    Lisa 

  • What a lovely reply. Nothing makes sense at the moment. One minute I feel positive the next minute I feel that from the information I have read it's a lost cause. 
    I wish I could unread the stuff I've seen about advanced cancer. That's what's scared me. I've read everything from Romanian USA Japan studies all with surviving rates from 6 months at 1% upwards and with lymph positive thst seems to be the main factor. Anyway I'm going to not do that anymore and listen to you lovely people and be strong for my partner 

    so once again thank you so so much 

    Lisa 

     

     

     

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    Hi Lisa,

    By the time your husband chats to his consultant on Thursday, his consultant will have held his weekly MDT (multidisciplinary team) meeting and, will have discussed the best way forward for your husband with them. Positive lymph nodes are not a good thing, but there are many people living with them and doing well.

    Stay strong,

    Kind regards,

    Jolamine xx

  • Thank you jolamine. I'm taking the positive that 13/18 lymph nodes were positive meaning others weren't. I know that's silly but that's how I'm thinking. 
    I think I'm worried so much because in 2012 my husband died suddenly at age 48 of a brain aneurism . It took a long time to get to a place of acceptance and meet my current partner who had been a rock. With this now it just brings back such a terrible time .

    but I am going to try to be positive. Does anyone know how chemo works in lymph nodes? Nothing had been explained at all. Mind working overtime again 

    Lisa 

  • Lisa. 

    Not trying to scare you but chemotherapy is a mixture of poisons mixed to do most harm to the type of cancer they have to work against.

    Hope i haven't made you worried buy buy putting that like that.

    Remember alot of forum people have been there and done that and still fighting.

    Billy